Andrew's Allies

Andrew's Allies this is to bring awareness to CDKL5 and Andrew's journey. Andrew is days shy of turning two. He is unable to sit, hold a bottle, or even talk.

He has something that is called CDKL5. It is a genetic mutation on the X chromosome. It effects around 1200-1500 people internationally, to date, and only around 200 boys. It includes Seizures, often uncontrolled and more than one type, low muscle tone, hyper flexibility, inability to communicate, feeding problems (Most kiddos have gtubes), a life bound to wheelchairs. A lifetime of therapies and

hospital stays. This page is for people to follow our journey with this awful genetic mutation and to promote awareness of CDKL5. You can always learn mor3e at www.cdkl5.com If you have questions, feel free to ask me! I ill attempt to answer them to the best of my ability.

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Summersville, WV
26651

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