05/29/2026
Julius "Juju" Leggs McClary
Our CLN2 Warrior Juju December 19, 2016 – May 24, 2026 On May 24, 2026, Pentecost Sunday, our beautiful baby boy gained his angel wings after courageously battling CLN2 Batten disease, a rare and devastating neurodegenerative disorder that slowly steals away a child’s abilities. Yet despite every obstacle placed before him, Juju continued to shine with a light so powerful that nothing, not even this cruel disease, could ever take it away. There is something deeply spiritual about the day...
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