Ehlers Danlos Syndrome Support

Ehlers Danlos Syndrome Support Target 125k Living with strength and
courage through
Ehlers-Danlos Syndrome & chronic illness Here to support, share, and raise awareness.

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His name is Toby, he has Ehlers Danlos syndrome but he is very spoiled and happy!
08/29/2026

His name is Toby, he has Ehlers Danlos syndrome but he is very spoiled and happy!

Important Information I Received After My hEDS DiagnosisHi all,I was recently diagnosed with hEDS at the GoodHope EDS Cl...
08/28/2026

Important Information I Received After My hEDS Diagnosis

Hi all,

I was recently diagnosed with hEDS at the GoodHope EDS Clinic. My EDS specialist provided this information with my diagnosis documentation.

I thought I’d share since I know it’s hard to get support with and find info on hEDS. There are some great pieces info on related conditions, precautions, risks and contraindications here!

PS: I’m an OT and I honestly suggest you share this info with any relevant healthcare providers (OTs, PTs, doctors and surgeons, dieticians, NDs, acupuncturists, RMTs, etc.)

apparently Ehlers-Danlos-syndrome
08/28/2026

apparently Ehlers-Danlos-syndrome

If EDS is so rare, I wonder why I have a sudden uptick of people I run in to who say they have it?
08/27/2026

If EDS is so rare, I wonder why I have a sudden uptick of people I run in to who say they have it?

ehlers danlos society responds to the DCC performance
08/26/2026

ehlers danlos society responds to the DCC performance

Ortho appts with EDS/hypermobility starter pack
08/26/2026

Ortho appts with EDS/hypermobility starter pack

Cassie spreading misinformation about what EDS causes...
08/26/2026

Cassie spreading misinformation about what EDS causes...

Me whenever I see a hypermobile content creator:(Obviously this isn't a catch-all, but it happens often enough that I th...
08/25/2026

Me whenever I see a hypermobile content creator:

(Obviously this isn't a catch-all, but it happens often enough that I thought this meme would be relevant lol)

Is anyone else with h-EDS struggling to get a formal diagnosis? The genetic specialist I saw is now saying their office...
08/25/2026

Is anyone else with h-EDS struggling to get a formal diagnosis? The genetic specialist I saw is now saying their office doesn’t take EDS patients and then says to come back in 2 years which is contradictory.

Message from the doctors office

What do you think about Starfire having Ehlers Danlos Syndrome (EDS) ?
08/24/2026

What do you think about Starfire having Ehlers Danlos Syndrome (EDS) ?

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