06/16/2026
Since Darcie’s break out from prison…I mean Rehab…last Monday (Oh my gosh, how has it been a WEEK already?!), so much has happened. Having her home has been so wonderful. As per usual - this post is going to be full of TMI. But it wouldn’t be Darcie Strong if we left out the icky, gory details.
The first few nights at home consisted of rearranging the house to accommodate her wheelchair. This was basically like playing Tetris because we live in a teeny tiny 120 year old home, but we succeeded! She is now as able to navigate our home as possible.
Then came an appointment to the radiation oncologist. Here we were told that she is essentially a trial case because there has never been one like hers. They said that her specific diagnosis states that she has lung cancer on the skin of her foot. So weird - as per Darcie’s new usual. A few studies have shown that the lung NUT Carcinoma is reactive to radiation, chemo, and immunotherapy. The doctor said that she has actually treated a case that was similar and would like to start radiation and chemo ASAP because Darcie’s cancer has proven to be super aggressive - which we saw first hand. Unfortunately, we have to continue to wait for Darc to heal more because radiation can reopen wounds, and that is the last thing that they want for her flap. Radiation will be done on her foot, the lymph nodes behind her knee, and all the hot spots in her groin and pelvis. The radiation can cause some nausea, but most of the side effects should be localized. She could lose hair in these areas. She is pretty bummed about not having to shave those areas. Haha.
The doctor informed us that they were speaking with the medical oncologist (the doctor who does chemotherapy) and it was decided that chemo and radiation have been shown to work best for NUT Carcinoma when they run together. So far, we know for sure that radiation will run 5 days a week for 7 weeks. We aren’t sure what chemo or immunotherapy will look like so far, but we do know that immunotherapy will take place after the other two have concluded.
Last week was graduation for Sunrise High School!! Congratulations class of 2026! Darcie was able to go see her students walk the stage and give so many hugs and hand shakes. It was so beautiful for her to be able to see so many smiling faces! She is so proud of each and every one of them! Seeing her coworkers was exactly like a good friendship - picking up right where they left off. It was so wonderful for her to be wrapped in so much love! She mentioned to me that she felt human for the first time in weeks because she was able to put on a nice outfit and see some of her people. Unfortunately, getting out of the house was quite exhausting. Friday was spent resting and recuperating.
The morning of graduation, Darcie got up to go to the restroom and realized she had a wet spot on her pants near her lymph node incision. It feels like we have been here before! Luckily, we did not have to rush her to the ER this time. We took pictures and sent them to her dermatology oncologist and he had her come in to Huntsman. So, we hopped in the car and drove to Salt Lake City last minute for an appointment. When we were there, he cleared out her wound. It was pretty full of necrotic tissue and was definately in need of a clear out. Luckily, the doctor did not find any tunneling. Tunneling could mean trouble, but we dodged a bullet this time! This wound would now need a wound vac in order to heal properly and much quicker. We laughed because we had the wound vac in a return envelope ready to ship back. The next day, Darc received a call from her case manager and they literally told her that they have never had orders to switch a wound vac from one location of the body to another before it had been sent back to the manufacturer….shocker, right?! The one thing we have come to count on hearing is, “We have never seen/heard/done this before!” Good news though, it was approved by insurance to switch the location and home health was called in. It was difficult to get a good seal on wound because it was incredibly close to her private area. Thankfully, Darcie’s home health nurse is a bad ass and can do anything!
This week is FULL of appointments. Today she had home health, occupational therapy, physical therapy, and a lovely coworker stop by to bring a meal. Tomorrow, she has her medical oncologist followed by labs. Wednesday, she has an appointment with her dermatologist oncologist and a nurse’s appointment. We aren’t entirely sure what this means, but we are assuming it is a wound vac change. Thursday is catch up day where I will be catching up on laundry and house work because it is an appointment free day! I’m sure I will have Darc scrubbing baseboards as well! 😉 Friday, we are back down at Huntsman for an appointment with plastics and a check on her wrist and foot splints.
I have been doing some of her wound care lately. Everything is looking so good. Things are healing and have mostly stopped bleeding. I am so hopeful moving forward that she should be healed soon and able to start the next steps in this journey. Right now, things feel very positive and like they are moving in the right direction! What a breath of fresh air!!
Funny story, we were in the car on the way to our nephew and niece’s birthday party on Sunday. My GPS is set to notify me of drive times to my common locations. It now only alerts me to go to Huntsman and Home. Wild how predictable a person can become in such circumstances!
As always, we are so thankful for our village! Every text, call, visit, donation, comment, and reaction have been super uplifting. We are constantly in awe of the size and love of our village! We love and see every single one of you! ❤