08/12/2026
CT scans and chemo infusions
I know I’ve been a slacker with this journal when my close friends message me for progress updates. If I would update this journal faithfully, they would already know and not have to ask. Sorry, friends.
Let’s get down to what people want to know: CT results. The CT showed a small (maybe 13%) decrease in tumor size, especially in the abdominal tumor.
How am I feeling? Right this minute? Uhm… that’s better left unsaid. I’m currently sitting in the infusion lab getting my dose of paclitaxel. This is the drug that causes neuropathy among other things. In fact, I need to pause this writing to put my ice packs back on my hands. After that last infusion, I’ve been struggling with my hands going numb. I was negligent in my last infusion about my ice packs. Brb.
That “brb” turned into three days. I talked the doctor into letting me do this chemo with no prior infusion of steroids and half the Benadryl which had already been halfed the time before, so now we were at 25% original dose. I’m a glut for punishment.
A friend asked me to share what the six-hour chemo infusion is like. I cringe just thinking about it. It’s the systemic poisoning I have the biggest problem with. I know a lot of people feel like they don’t have the luxury to think that way – to think of another option than being poisoned. Or – they can’t accept that chemo is poison because then they wouldn’t believe it could heal them and it’s their last hope. You must believe in a thing for it to do you any good.
Anyway. Details. The infusion appointment starts at 9am where I’m ushered to a nice recliner down a hallway of open-ish cubicles as a couple nurses flit around with IV lines and small bags of fluids. A nurse preps my port site with a few sterile liquids before telling me to take a deep breath. Those port needles hurt. That seems like a simple statement, but I have had two very difficult insertions back-to-back and I cried when this last one had to be pulled out and redone.
It was my fault. I freaked out and pulled back in fear. Then I cried. Then I told myself to calm down because my anxiety was bringing the problem to pass. I relaxed against the back of the chair, calmed my breathing and the next insertion was quick and not nearly as painful.
At this point, there is a knot in my stomach in grim anticipation for the medicines to come. I am given anti-nausea medicines and my 25% Benadryl. That’s it. One of the meds caused some burning and tingling in my neck and right side. I hadn’t ever felt that before but that might be because the steroids had always been given first. I tell you what – when you get a massive dose of steroids like that, you feel amazing!! Freaking amazing!
So, I didn’t feel amazing this time. And my drowsiness was much milder but strong enough to make me useless during the infusion. I always bring books to read but it’s futile. Absolutely futile.
The time is roughly 9:40 and the real drugs begin. The nurse puts on a full body suit of PPE because these drugs are so potent and poisonous. She connects the small bag of chemotherapy drug to my IV line, asks an overseer to check the drug and my information and then starts the pump. The first drug takes about a half hour. This is usually the time I play a game with my husband, or we chat while I still have some braincells for the task.
By the time the next medicine comes, I’m too drowsy for games and I have to put the ice packs on my hands and feet to help keep the neuropathy at bay. This drug takes 3 hours to infuse. I used the ice only on my hands this time because I don’t have enough packs to keep my hands and feet iced the whole time. So, I use the feet packs in the hand gloves and save at least those appendages.
The last drug only takes a half hour and then the needle is quickly taken out and I’m on my way. The infusion itself doesn’t hurt, only the aftereffects.
I won’t write too much more even though so much has been stewing. Chemo brain is a real thing and I can’t tell you the number of times I’ve had a great thought but couldn’t remember it moments later to write it down. Or I begin a train of thought and it ends in a pool of misty confusion somewhere in the deep recesses of my brain.
The few days after this chemo were not fun. I still took my zeolite after the 24-hour mark, but it did not combat the nausea. I ended up taking one of the nausea pills I was given after my first chemo. It worked after about an hour, and I only needed one (instead of prescribed 4 in 24 hours) each day for two days. I have also taken a couple hydrocodone to help with the neuropathy pain that seems to set in as I lie down for the night.
As I feel more of the chemo pain this time, I know it’s not from a side-effect of the steroids. The other pre-chemo drugs also did not cause the nausea, neuropathy or any other psychosis that follows. I’ll write more about it later, but my mind has been a scary mess over this last month, which is why I opted for no steroids.
But, as I felt the pain this time (and am still dealing with some of it), I know it’s only from the chemo drugs and not at all from the steroids or from the cancer itself. I wanted to feel the effects for themselves. If the medicine makes me feel like I’m dying, I have to ask myself “did the cancer make me feel this way?” For me, that answer is no. But, as I take chemo and as it saturates my body over the course of these months, I feel a waning in my physical ability overall. I am weaker. I can’t think clearly. I have aches and pains everywhere. I have fear and anxiety that was never present before.
That’s not from the cancer. It’s from the medicine. It’s from the thing that’s supposed to be saving me. It’s like losing from winning. The thing that’s supposed to help is the thing that is causing the hurt. I’m feeling this firsthand and in a very gradual, sickening way.
But don’t worry, good comes from all of this and I will be cancer-free in the end.