Like our Rethink Fabry HERoes page for the latest news and updates, community support, and information that can help you understand Fabry on a deeper level. We're so glad you've joined us. Before you dive in and start contributing to the community, there are a few things we'd like you to keep in mind while you're here. The Golden Rule--treat others how you'd like to be treated--is our guiding prin
ciple here, so please remember to always be respectful to others! This is a safe space for anyone who has Fabry disease or loves someone with Fabry. Derogatory, inflammatory, or argumentative comments aren't allowed. We want everyone to be able to share openly and talk candidly, but please remember to keep conversations clean and constructive. We may need to remove comments that cross the line. Above everything else, we want Rethink Fabry HERoes to be a kind and supportive place for everyone. Please keep in mind that we work in a regulated industry, which is why we ask that you follow our Community Guidelines outlined below. It also may take us some time to respond to your posts, comments, and questions. We appreciate your patience and participation! Chiesi Global Rare Diseases does not necessarily agree with or endorse the content posted here by others. And we can't guarantee that information offered by others is always accurate, complete, or reliable. For more information about the Chiesi Global Rare Diseases privacy policy, visit https://www.chiesiusa.com/privacy-policy/.
1. We at Chiesi Global Rare Diseases want to provide a respectful and welcoming community for all. Comments that are profane, defamatory, libelous, offensive, abusive, discriminatory, demeaning, disparaging, threatening, repetitive, and/or disruptive to the community, or that contain leetspeak (use of numbers or characters as letters) or are spam (including links), impersonating other people, posting chain letters or pyramid schemes, "spamming" (sending a message more than once), posting or transmitting charity requests or petitions for signatures, and sending unsolicited mass e-mailings, may be removed.
2. For your protection, we will remove any comments that contain any personal, proprietary, confidential, sensitive, or nonpublic information, such as your e-mail or phone number.
3. From time to time, we may share links to informative third-party sites that you may find useful. Unless otherwise indicated, Chiesi Global Rare Diseases does not endorse and is not responsible for the content of these third-party sites.
4. Your doctor is the best resource for medical advice and information when it comes to your health. Please don’t use information on this page to replace conversations with your doctor. Please do not take the page, or any community comments, as medical advice. Likewise, please do not post any medical-advice-related comments to the page content.
5. We must respect our platform and follow Facebook's posting guidelines and Terms of Use. Comments that do not adhere to these terms and guidelines will be removed.
6. Please don't use our page as a place to promote your product or pitch your services. We reserve the right to remove any links to personal products or services that don’t relate to the mission or purpose of the Rethink Fabry HERoes page. There is a chance that your comment may have included other content not outlined above. Please know that Chiesi Global Rare Diseases reserves the right to remove content at its sole discretion. Chiesi Global Rare Diseases assumes no responsibility for any user-generated content posted in comments to posts on the Rethink Fabry HERoes page. Chiesi Global Rare Diseases is not responsible for obtaining releases or permissions for user-generated content shared on the Rethink Fabry HERoes page. Chiesi Global Rare Diseases is not responsible if someone shares user-generated content from Rethink Fabry HERoes’ social properties on other social media channels. We expect that you will honor others' intellectual property rights. Do not post content that infringes someone else's rights. We may remove content if it may violate such rights. We will respond to requests by anyone who notifies us that such rights are being violated. Violation Protocol:
We reserve the right to ban users from the Rethink Fabry HERoes page who violate the Community Guidelines. Please check often for updates, as we reserve the right, at our sole discretion, to modify these Community Guidelines at any time. Your use of this page indicates your acceptance of any revisions to these terms. Also, while these rules cover most common situations, they cannot anticipate everything. Consequently, Chiesi Global Rare Diseases reserves the right to take any actions it deems appropriate to ensure this site is not disrupted or abused in any way. If Community Guideline violations continue, the Community Manager may ban the user and report him/her to Facebook. Adverse Events:
If you think that you have had any medical adverse event or reaction from a Chiesi Global Rare Diseases product, please talk to your doctor or pharmacist. You are encouraged to report negative side effects of prescription drugs to the FDA directly. Visit www.fda.gov/medwatch or call 1-800-FDA-1088. If you include any potential adverse events in your post, we may need to contact you to find out more information. We will also report this information to the FDA. This is due to our responsibility of drug safety reporting. Chiesi Global Rare Diseases Employees and Agents: If you are an employee, affiliate, or agent of Chiesi Global Rare Diseases, please identify yourself as such. Pharmaceutical Industry: In an effort to maintain transparency, we ask that those who work in the pharmaceutical industry please identify as such by using the hashtag . Please note that this page is for US residents only.
