Chiari and Syringomyelia Australia

30/07/2026

We already posted the article but here is a summary showing Chiari found within the family is highly likely linked to underlying connective tissue disorders. If you have more than one member of the family with Chiari it’s best to get screened for connective tissue disorders as well.

💜 Research Update

A recent study explored the connection between familial Chiari and connective tissue disorders, finding higher rates of hypermobility, joint issues, and easy bruising among those with a family history of Chiari.

More research is needed, but these findings add to our understanding of familial Chiari.

PDF version: https://www.conquerchiari.org/library/index/click/895

27/07/2026

𝐍𝐚𝐭𝐢𝐨𝐧𝐚𝐥 𝐏𝐚𝐢𝐧 𝐖𝐞𝐞𝐤 26-31 July

𝑃𝑎𝑖𝑛 𝐿𝑖𝑣𝑒𝑠 𝐻𝑒𝑟𝑒

Pain lives in Chiari and Syringomyelia. Please consider sharing your pain stories to let people understand the impact of pain.

More info: https://chronicpainaustralia.org.au/painliveshere/

26/07/2026

The 2026 National Pain Report is here 📑

Discover what Australians living with chronic pain told us about healthcare, work, mental health, sleep and the cost of living.

Read the report today at: painliveshere.org.au

25/07/2026

💜 Research Update

A recent study on pain management following Chiari decompression surgery highlights the variation in postoperative care and the need for more standardized recovery protocols. Continued research like this helps improve our understanding of the recovery process and identify opportunities to enhance patient care.

PDF Version: https://www.conquerchiari.org/library/index/click/893

25/07/2026

Heritability of Chiari strongly linked to heritable connective tissue disorders.

Familial CM-I is strongly associated with CTDs, particularly EDS, and systemic comorbidities such as hypermobility, postural orthostatic tachycardia syndrome, and mast cell activation disorder. These findings support a heritable link between CM-I and CTDs and highlight the importance of detailed fam...

15/07/2026

04/07/2026

July is Disability Pride Month.
What does disability pride mean to you?
The colours of the disability flag are:

Red Stripe: Physical disabilities
Gold Stripe: Neurodiversity
Blue Stripe: Emotional and psychiatric disabilities
Green Stripe: Sensory disabilities
White Stripe: Undiagnosed and invisible disabilities

Disability pride means a lot of different things for different individuals. Some people see it as a way of making disability and all we can do visible, To challenge abelist views and many other reasons.


www.chiariaustralia.com

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01/07/2026

🔬 New Chiari research update!

New consensus guidelines indicate that most women with stable Chiari malformation can safely consider vaginal delivery and epidural pain relief during childbirth. Read the latest summary from Conquer Chiari and stay informed.

PDF Version: https://www.conquerchiari.org/library/index/click/892

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25/06/2026

🔬 New Chiari research update! A recent study highlights a novel surgical approach nicknamed the "Baklava Dough" technique, designed to improve cerebrospinal fluid flow while preserving the dura. Early results showed significant symptom improvement, syrinx reduction, and low complication rates.

PDF version: https://www.conquerchiari.org/library/index/click/891

Read the latest summary from Conquer Chiari and stay informed.

03/06/2026

🔬 New Chiari research update! A recent study compared the anatomical structures of Chiari 0 and Chiari 1, revealing both important similarities and key differences that may help researchers better understand diagnosis, symptoms, and syringomyelia. Read the latest summary from Conquer Chiari and stay informed.

PDF version: https://www.conquerchiari.org/library/index/click/889