CHES Foundation, Inc.

07/28/2026

🎨 ꜰXᴘʀᴇꜱꜱɪᴏɴꜱ - ꜰᴏʀ ᴏᴜʀ ᴜʟᴛʀᴀ ʀᴀʀᴇ 🔟 ꜰᴀᴄᴛᴏʀ 10'ꜱ!

Living with Factor X means carrying one of the rarest bleeding disorders largely without a roadmap, and often, without anyone nearby who truly gets it.

All our upcoming webinars are in one place! ↪ https://ches.education/webinars

Join CHES and Bri Beck, LCPC, ATR-BC, for some creative reflection time, and an open group discussion, we'll explore what it means to live with Factor X not just medically, but emotionally, and the quiet power of being truly understood by someone who has lived it too.

07/27/2026

🧬 𝗙𝗿𝗲𝗲 𝗪𝗲𝗯𝗶𝗻𝗮𝗿: 𝗛𝗲𝗺𝗼𝗽𝗵𝗶𝗹𝗶𝗮 𝗔 𝗚𝗲𝗻𝗲𝘁𝗶𝗰𝘀 | 𝗛𝗲𝗺𝗼𝗽𝗵𝗶𝗹𝗶𝗮 𝗔 𝗮𝗻𝗱 𝗣𝗿𝗲𝗴𝗻𝗮𝗻𝗰𝘆
𝗣𝗿𝗲𝘀𝗲𝗻𝘁𝗲𝗱 𝗯𝘆 𝗝𝗶𝗹𝗹 𝗝𝗼𝗵𝗻𝘀𝗲𝗻, 𝗠𝗗

Space is limited to 300 attendees — register now to save your spot:
👉 https://tinyurl.com/3enx993s

Join the Hemophilia A Research Program for an informative session covering:
✅ Hemophilia A Genetics
✅ Hemophilia A and Pregnancy
📅 Wednesday, July 29, 2026
🕕 6:00–7:30 pm PDT / 9:00–10:30 pm EDT

07/27/2026

If you have ever had an opportunity to hear Dr. Jill Johnsen speak, she is a gem! If you haven't-this is your opportunity! July 29, 2026 9:00 PM ET
REGISTER HERE: https://tinyurl.com/3enx993s
HARP Hemophilia A Research Program HARP EDUCATION PRESENTS FOLLOWING WEBINAR: •Hemophilia A Genetics Hemophilia A and Pregnancy Wednesday, July 29, 2026, 6:00 M PDT (9:00 PM EDT) JILL JOHNSEN, MD TO REGISTER: https://tinyurl.com/3enx993s For more information on the HARP: harpf8.org

Welcome! You are invited to join a meeting: HARP Education Webinar: Hemophilia A Genetics | Hemophilia A and Pregnancy. After registering, you will receive a confirmation email about joining the meeting.

07/24/2026

👩 "𝐉𝐮𝐬𝐭 𝐬𝐨 𝐲𝐨𝐮 𝐤𝐧𝐨𝐰, 𝐦𝐨𝐦 𝐭𝐨 𝐦𝐨𝐦, 𝐰𝐡𝐞𝐧 𝐈 𝐚𝐬𝐤 𝐡𝐨𝐰 𝐲𝐨𝐮'𝐫𝐞 𝐝𝐨𝐢𝐧𝐠, 𝐲𝐨𝐮'𝐫𝐞 𝐬𝐚𝐟𝐞 𝐭𝐨 𝐠𝐢𝐯𝐞 𝐦𝐞 𝐭𝐡𝐞 𝐥𝐨𝐧𝐠 𝐯𝐞𝐫𝐬𝐢𝐨𝐧." 🛟

SOMEONE wanted to gloat about a particular team winning a big championship but we made her come back down to earth 🌍

https://ches.education/newsblog/2026/bdnews7-24-take-make-bfff-gtbleedingedge

This weeks Digital Digest covers a powerful, resonating platitude from Heather, originally from GutMonkey. They're coming to InhibitCon! Which means so should you if you're affected by an inhibitor! There's content for our females only group BFFF, Hermanas de Sangre next week and the GT Bleeding Edge project is fast approaching. If you're in the GT Community, they want your voice!

Find ALL of what is in this edition using the link above! 👆

07/17/2026

📥 𝗗𝗶𝗮𝗹 𝗨𝗽 𝗜𝗻𝘁𝗲𝗿𝗻𝗲𝘁 𝗶𝘀 𝗖𝗮𝗹𝗹𝗶𝗻𝗴, 𝗗𝗼𝗻'𝘁 𝗣𝗶𝗰𝗸 𝗨𝗽 𝘁𝗵𝗲 𝗣𝗵𝗼𝗻𝗲 ☎️

Unless of course you're joining us in New Orleans for InhibitCon! We still have a handful of spots left for adults and families to join us for this jam packed weekend! Travel and Hotel is provided for all who apply.

https://ches.education/inhibitcon-registration

Got Inhibitors? We sure do! Subject matter experts will be joining us from around the country AND the final night will be a 90's Wacky Game Show MegaMix. Boy that is a mouthful! Are you already signed up and joining us? Comment below ⬇️ We just started booking flights!

07/11/2026

REPOST CORRECTION - TIME OF DAY 😬
🩸𝗚𝗹𝗮𝗻𝘇𝗺𝗮𝗻𝗻 𝘁𝗵𝗿𝗼𝗺𝗯𝗮𝘀𝘁𝗵𝗲𝗻𝗶𝗮 𝗶𝘀 𝗿𝗮𝗿𝗲𝗹𝘆 𝘀𝗽𝗼𝗸𝗲𝗻 𝗮𝗯𝗼𝘂𝘁 𝗹𝗶𝗸𝗲 𝘁𝗵𝗶𝘀 🎙️

𝗧𝗵𝗲 𝗕𝗹𝗲𝗲𝗱𝗶𝗻𝗴 𝗘𝗱𝗴𝗲, a new podcast series from BloodStream Media and Believe Ltd, brings together patients, caregivers, and clinicians to talk honestly about what GT looks like beyond diagnosis.

https://bit.ly/bleeding-edge-roundtable ↩ 𝘽𝙚 𝙖𝙥𝙖𝙧𝙩 𝙤𝙛 𝙩𝙝𝙚 𝙘𝙤𝙣𝙫𝙚𝙧𝙨𝙖𝙩𝙞𝙤𝙣 𝙝𝙚𝙧𝙚!

This is for you if you are living with GT, care for someone who is, or work as a provider and want a deeper understanding of the lived experience. Believe is hosting a live virtual round table and creating Episode 5 specifically for the GT community.

Sign-up today to join the conversation. Episode 1 launches July 15th and you won’t want to miss it! Aug. 18 @ 7AM PST | 10AM EST is the Roundtable Discussion!

07/10/2026

Heather says go Spain! I don't know a thing about soccer so I'm not sure if that's controversial? Maybe someone can challenge her war cry in the comments! 🤣
https://ches.education/newsblog/2026/bdnews7-10-gooaaall-inh-gtisth

In the bleeding disorder world, we're looking for more inhibitor affected adults and families to travel to New Orleans with us! https://ches.education/inhibitcon ᗧ···ᗣ···ᗣ··

We have a new dedicated page for all of our webinars coming up for the rest of the year. Check them out here: 🔗 https://ches.education/webinars

📚Read up on the articles we've selected this week that include GT, Genetics 🧬 and Iron Screenings!

07/09/2026

🧪 𝐇𝐨𝐰 𝐝𝐨𝐞𝐬 𝐇𝐞𝐦 𝐀 𝐩𝐚𝐬𝐬 𝐝𝐨𝐰𝐧 𝐚𝐧𝐝 𝐰𝐡𝐚𝐭 𝐚𝐫𝐞 𝐭𝐡𝐞 𝐠𝐞𝐧𝐞𝐭𝐢𝐜𝐬? 🧬

The Hemophilia A Research Program (HARP) is a study looking to learn about how hemophilia A affects mothers and babies. Interested in participating? Learn more here ↪ harpf8.org/join-the-study

Discover how genetics plays a key role in understanding and managing hemophilia A. This video covers what hemophilia A is, how it's inherited, and why genetic testing and counseling matter — for you and your family. Learn what to expect from the testing process and how sharing your results can make a difference in your care.

Discover how genetics plays a key role in understanding and managin...

07/08/2026

🧬 Free Webinar: Hemophilia A Genetics | Hemophilia A and Pregnancy
Presented by Jill Johnsen, MD

Space is limited to 300 attendees — register now to save your spot:
👉 https://tinyurl.com/3enx993s

Join the Hemophilia A Research Program for an informative session covering:
✅ Hemophilia A Genetics
✅ Hemophilia A and Pregnancy
📅 Wednesday, July 29, 2026
🕕 6:00–7:30 pm PDT / 9:00–10:30 pm EDT

07/03/2026

✨ 𝐸𝑠𝑡𝑎 𝑠𝑒𝑠𝑖ó𝑛 𝑒𝑠𝑡á 𝑎𝑏𝑖𝑒𝑟𝑡𝑎 𝑎 𝑡𝑜𝑑𝑜𝑠 𝑙𝑜𝑠 𝑝𝑎𝑐𝑖𝑒𝑛𝑡𝑒𝑠 𝑦 𝑐𝑢𝑖𝑑𝑎𝑑𝑜𝑟𝑒𝑠 𝑞𝑢𝑒 ℎ𝑎𝑏𝑙𝑒𝑛 𝑒𝑠𝑝𝑎ñ𝑜𝑙 𝑒𝑛 𝑙𝑎 𝑐𝑜𝑚𝑢𝑛𝑖𝑑𝑎𝑑 𝑑𝑒 𝐶𝐻𝐸𝑆 (ℎ𝑜𝑚𝑏𝑟𝑒𝑠 𝑦 𝑚𝑢𝑗𝑒𝑟𝑒𝑠). ✨ Si ya te registraste antes, no necesitas hacerlo otra vez. Solo revisa tu correo electrónico, enviaremos el enlace de Zoom.

🩺👩‍⚕️La Dra. Salinas (hematóloga pediátrica) nos compartirá, desde la perspectiva de un profesional de la salud, cómo prepararse para una cita y sacar el mayor provecho del tiempo con tu médico. Si eres nuevo en las sesiones, regístrate aquí: https://ches.education/hermanas-de-sangra

Esta sesión te ayudará a comunicar tus síntomas de manera efectiva, defender tu salud durante tus citas médicas y dar los siguientes pasos para obtener el diagnóstico y la atención que mereces.