Children's Hydrocephalus Support Group

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Children's Hydrocephalus Support Group

Children's Hydrocephalus Support group meets 4 - 6 times a year at Seattle Children's Hospital.

It is open to the public and alternates between informative presentations and peer to peer support discussions.

01/04/2016

Meeting Cancelled due to illness.

Our meetings happen rain or shine and tomorrow it will be shine! Please join us to meet other families and adults who understand living with hydrocephalus. Saturday, April 2 from 10:30 am to 12:30 pm at Seattle Children's Hospital, Ocean 7, Dining Rooms 1, 2 and 3. Childcare provided. You must RSVP if you are bringing children! RSVP Lori via email to [email protected] See you there!
Address: 4800 Sand Point Way NE, Seattle, WA 98105 Thanks!

18/03/2016

Calling all hydrocephalus folks! Take the challenge! Just One Sponsor! I am asking every family in the PNW to try to find Just One Sponsor (a corporate sponsor the for Aug. 6 Seattle WALK). Anyone who secures a sponsorship between the levels of $250 and $10,000) will have their name entered into a drawing for an Amazon Echo - a virtual assistant who will play music, read aloud, answer questions etc!
You ask a company. The company will say yes or no, hopefully yes! I have the sponsorship information to send you if you PM me.
Ask your grocer, dentist, mechanic, dry cleaner, lawyer, accountant and friends and family members who have businesses. I have a letter template and all of the information in detailed information to help support you in your ask. Many thanks for your help!!

11/03/2016

Mark your calendar for our next meeting! Meet other families and adults who understand living with hydrocephalus. Saturday, April 2 from 10:30 am to 12:30 pm at Seattle Children's Hospital, Ocean 7, Dining Rooms 1, 2 and 3. Childcare provided. Please RSVP Lori via email to [email protected] See you there!

Address: 4800 Sand Point Way NE, Seattle, WA 98105

25/02/2016

Tonight! Tonight! Do you have questions about hydrocephalus? Come to the Hydrocephalus Support Group Meeting on Thursday, February 25 6 pm to 7:30 pm at SCH to get answers from experienced Neurosurgery Nurse Practitioners Nadine Nielsen and Laura Zapata! Please RSVP to [email protected] today and let me know if you are bringing children. There is complimentary childcare provided by Betsy Conyard and Seattle Children's Hospital Junior Volunteers.
Meeting will be held at Seattle Children's Hospital's dining rooms 1, 2 and 3 Ocean Level 7 by the cafeteria. Dining rooms 1 and 2 will be for set up for childcare and dining room 3 is for the meeting with the adults. Pizza will be provided for dinner.
4800 Sand Point Way
Seattle, WA 98105
See you there! Thank you!

22/02/2016

Do you have questions about hydrocephalus? Come to the Hydrocephalus Support Group Meeting on Thursday, February 25 6:00 pm to 7:30 pm at SCH to get answers from experienced Neurosurgery Nurse Practitioners Nadine Nielsen and Laura Zapata! Please RSVP to [email protected] today and let Lori know if you are bringing children. There is complimentary childcare provided by Betsy Conyard and Seattle Children's Hospital Junior Volunteers.

Meeting will be held at Seattle Children's Hospital's dining rooms 1, 2 and 3 Ocean Level 7 by the cafeteria. Dining rooms 1 and 2 will be for set up for childcare and dining room 3 is for the meeting with the adults. Pizza will be provided for dinner.
4800 Sand Point Way
Seattle, WA 98105

See you there! Pizza is provided for dinner. Thank you!

04/02/2016

February 2016 Support Group Meeting

Ask Your Neurosurgery Nurse Practitioners Anything!

Please join us on Thursday, February 25, 2016 from 6 pm to 7:30 pm for our next meeting:

Ask Your Neurosurgery Nurse Practitioners Anything!

Nadine Nielsen and Laura Zapata will be joining our group for an informal question and answer session where you can ask all of your questions relating to hydrocephalus. They both have many years of experience with patients and families with hydrocephalus.

Meeting will be held at Seattle Children's Hospital's dining rooms 1, 2 and 3 Ocean Level 7 by the cafeteria. Dining rooms 1 and 2 will be for set up for childcare and dining room 3 is for the meeting with the adults. Pizza will be provided for dinner.

4800 Sand Point Way
Seattle, WA 98105

Childcare will be provided but you must RSVP with number and ages of children.

Please RSVP to the meeting so we know capacity and how many junior volunteers for childcare will be needed. RSVP to [email protected]

See you there! If you have questions, please email Lori Poliski at [email protected]

Thank you.

02/12/2015

RSVP Today! Local Hydrocephalus Folks:
Wednesday, Dec. 9, 5:30 to 7:00 pm – Please come meet:
Dr. John Kestle, co-founder of the Hydrocephalus Clinical Research Network (HCRN) and a pediatric neurosurgeon
Ms. Diana Gray, the new Hydrocephalus Association (HA) CEO
Dr. Michael A. Williams, a neurologist recently hired to establish and direct an Adult Hydrocephalus and Transitional Care practice at the University of Washington. This will be a first in the area and is really needed!
Meeting location: Sheraton Seattle Hotel at Sixth and Pine, Seattle
Learn about the work and progress of HCRN and HA in improving treatments and outcomes for hydrocephalus as well as what’s new at the University of Washington in adult hydrocephalus care.
There will be a presentation, Q&A, and meet and greet. Appetizers will be served.
Please RSVP to [email protected] by December 4th or for more information. Unfortunately the organizers cannot provide childcare at this venue. Hope to see you there!

24/11/2015

Local Hydrocephalus Folks:

Wednesday, Dec. 9, 5:30 to 7:00 pm – Please come meet:

Dr. John Kestle, co-founder of the Hydrocephalus Clinical Research Network (HCRN) and a pediatric neurosurgeon
Ms. Diana Gray, the new Hydrocephalus Association (HA) CEO
Dr. Michael A. Williams, a neurologist recently hired to establish and direct an Adult Hydrocephalus and Transitional Care practice at the University of Washington. This will be a first in the area and is really needed!

Meeting location: Sheraton Seattle Hotel at Sixth and Pine, Seattle

Learn about the work and progress of HCRN and HA in improving treatments and outcomes for hydrocephalus as well as what’s new at the University of Washington in adult hydrocephalus care.
There will be a presentation, Q&A, and meet and greet. Appetizers will be served.

Please RSVP to [email protected] by December 4th or for more information. Unfortunately the organizers cannot provide childcare at this venue. Hope to see you there!

21/11/2015

Come join us! Hydrocephalus Support Group on Saturday, 11-21-15 from 10:30 am to 12:30 pm at Seattle Children's Hospital in Dining Rooms 1, 2 and 3. Childcare provided! Hope to see you there! We have about 23 adults and 18 children attending!

16/11/2015

Support Group Meeting this Saturday! Please RSVP to [email protected] for the Support Group meeting on Saturday, Nov. 21 at 10:30 am to 12:30 pm at Seattle Children's Hospital in Dining rooms 1, 2 and 3. Childcare will be provided but you must RSVP in advance to plan...Thanks so much!

Address

Website

http://www.hydrosupport.org/

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