PiNSA

PiNSA Primary Immunodeficiency Network of South Africa

Some children carry more than books to school.For children living with primary immunodeficiencies, every school day come...
24/06/2026

Some children carry more than books to school.

For children living with primary immunodeficiencies, every school day comes with extra planning, extra precautions, and extra challenges.

Medications. Masks. Medical appointments. Missed days. Constant vigilance.

This winter, remember that not every health battle is visible.

A little understanding goes a long way.

21/06/2026

Today we celebrate the dads who do far more than anyone sees.

The dads who learn medical terms they never expected to know.

The dads who sit through appointments, ask the difficult questions and fight for the care their children deserve.

The dads who become researchers, nurses, advocates, drivers, protectors and cheerleaders.

The dads who carry the worry quietly, but never stop showing up.

To every father, grandfather, stepfather and father figure in the primary immunodeficiency community, thank you.

Your strength matters.
Your support matters.
Your love matters.

Happy Father’s Day from all of us at PiNSA.

08/06/2026

🛡️ Your immune system is your body's invisible army. But for people living with Primary Immunodeficiency (PID), that army is missing soldiers — from birth.
PID is not one disease. It's a group of over 400 conditions where the immune system simply doesn't work the way it should. Everyday infections that most of us shake off can become life-threatening.
The good news? With early diagnosis and the right treatment, people with PID can live full lives. 💚
The challenge? Most people — and even many doctors — have never heard of it.
That's why we're here. 🇿🇦

04/06/2026

Are you a doctor treating patients with PID? Are you diagnosed with primary immunodeficiency in South Africa? Join our support network! 🇿🇦
📧 [email protected]
You're not alone.

Please donate blood or plasma at your nearest South African National Blood Service or Western Cape Blood Service branch ...
01/06/2026

Please donate blood or plasma at your nearest South African National Blood Service or Western Cape Blood Service branch 🙏

Every donation helps secure lifesaving treatment for patients with a primary immunodeficiency. 💗

18/05/2026

For people living with Primary Immunodeficiency (PI), their immune systems can't produce enough antibodies to fight off infections — a condition they are born with and live with every day.

The life-saving treatment? Immunoglobulin therapy (Ig therapy) — and it comes entirely from donated human plasma.



11/05/2026

*This is a reminder to donate plasma at your nearest South African National Blood Service or Western Cape Blood Services.*
Plasma is incredibly important in the production of immunoglobulin products for patients with a range of conditions, including Primary Immunodeficiency.

To the moms carrying more than most people will ever see.The appointments.The worry.The medications.The late nights.The ...
10/05/2026

To the moms carrying more than most people will ever see.

The appointments.
The worry.
The medications.
The late nights.
The strength it takes to keep showing up, even when your own health is part of the battle too.

Today we celebrate the mothers raising children with Primary Immunodeficiencies while often navigating their own health journeys at the same time.

You are caregivers, advocates, protectors and the steady hand through uncertainty.

Most of all, you are not alone.

From all of us at PiNSA, Happy Mother’s Day to the women holding families together with courage, resilience and love. 💙

08/05/2026

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