13/07/2026
Five Years On, JOOTRH-CONSA Partnership Is Changing the Story of Sickle Cell Disease
Five years ago, most babies born with sickle cell disease in western Kenya were diagnosed only after developing life-threatening complications.
Today, thanks to a partnership between Jaramogi Oginga Odinga Teaching and Referral Hospital (JOOTRH) and the American Society of Hematology (ASH) through the Consortium on Newborn Screening in Africa (CONSA), hundreds of newborns are being screened early, allowing clinicians to begin life-saving care before symptoms become severe.
The CONSA project introduced routine newborn screening for sickle cell disease in Kisumu County through the installation of the Migele screening machine at JOOTRH. Building on the success of the project, the hospital integrated newborn screening into routine care, ensuring children diagnosed with sickle cell disease receive timely treatment and long-term follow-up at Victoria Annex.
Victoria Annex, JOOTRH's specialized sickle cell disease and hematology centre, provides comprehensive outpatient and inpatient services, surgical care, a 24-hour laboratory and pharmacy as well as advanced Red Blood Cell Exchange therapy. The facility also runs specialized paediatric sickle cell clinics and a structured transition programme that ensures adolescents seamlessly move into adult care, providing continuity of treatment throughout their lives.
Speaking on behalf of the Chief Executive Officer, Dr. Molla Lolla described newborn screening as a game changer, saying early diagnosis enables timely interventions, including hydroxyurea therapy, before severe complications develop. She added that the programme has strengthened research, generated local evidence to inform policy and positioned JOOTRH to become a regional centre of excellence in sickle cell disease care.
The meeting was chaired by Dr. Molla Lolla, with Dr. Ogweno Nyasoro representing the Director of Clinical Services and Dr. Julie Awuor leading presentations on the progress made at Victoria Annex. The visiting CONSA delegation comprised Dr. Bernard Awuonda, Dr. Alexis A. Thompson, Ms. Julie Kennedy-Lesch, Dr. Teresa Coetzer, Ms. Marie Benoit-Finch, Dr. Enrico Novelli, Phillip Okech, Evelyn Kibore, Donnela Adoma and Tereza Otieno, who reaffirmed their commitment to strengthening research, laboratory systems and comprehensive sickle cell care through continued partnership with JOOTRH.