CFS Facts

07/08/2024

01/08/2024

Although research has shown that people with ME/CFS have biological abnormalities that are associated with disease severity and symptoms, and most researchers consider ME/CFS as a biological disease, there is still a misconception amongst many people – worryingly, including health professionals – that the disease is psychological in nature (psychosomatic) rather than biological. The principal aim of ME Research UK is commissioning and funding biomedical research into the causes, consequences and treatment of ME/CFS, and we have invested £2.4 million in 8 countries.

Read why ME/CFS is a biological illness, and not psychological in nature: tinyurl.com/art2601
Read more about ME Research UK-funded projects: tinyurl.com/meresearchukprojects or visit website via link in bio

01/08/2024

01/08/2024

Last November, exclusively for ME Research UK, Cort Johnson took a look at some of the ways in which the brain may be involved in ME/CFS, and research aiming to explore this further, including one ME Research UK-funded study.

Read more: https://meres.uk/inthebrain

17/07/2024

In case you missed it - Last month, exclusively for ME Research UK, Cort Johnson explored some of the muscle abnormalities identified in recent ME/CFS research, and how these may contribute to the symptoms of the disease.
Read more: https://bit.ly/45uwmJK

24/03/2024

Link in 1st comment

29/01/2024

05/01/2024

Frobly-mobly [FROH-blee MOH-blee]
(adv.)
- Neither well nor unwell; fine, okay, so-so, fair to middling, etc.

From “A Glossary of Local and Provincial Words Used in England” -1839 where it is only said to be from the South.

Used in a sentence:
“Cozy pajamas, hot cocoa, and fuzzy blankets got her through the worst part of the flu; she now felt frobly-mobly—not yet ready to conquer the world, but not really inclined to stay in bed all day either.”
__________
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Your daily journey awaits with holidays listed for every single day of the entire year. Let this calendar help you find the good things in the world, there is always an excuse to celebrate. And learn some snazzy new words while you're at it!
https://grandiloquent-word-of-the-day-2024-wall-calendar.backerkit.com/hosted_preorders

05/01/2024

Fascinating long Covid research study from the Netherlands published today.

Image is from Guardian article:
"Long Covid causes changes in body that make exercise debilitating – study. Experts say severe muscle damage, mitochondrial problems and microclots may explain impact of working out"
https://www.theguardian.com/world/2024/jan/04/people-with-long-covid-should-avoid-intense-exercise-say-researchers

Full research paper can be read here:
"Muscle abnormalities worsen after post-exertional malaise in long COVID"
https://www.nature.com/articles/s41467-023-44432-3
"This study highlights novel pathways that help to understand the pathophysiology of post-exertional malaise in patients suffering from long COVID and other post-infectious diseases."

Press release:
https://www.amsterdamumc.org/en/spotlight/tiredness-experienced-by-long-covid-patients-has-a-physical-cause.htm

Discussion thread on the Science for ME forum
https://www.s4me.info/threads/muscle-abnormalities-worsen-after-post-exertional-malaise-in-long-covid-2023-4-w%C3%BCst-van-vugt-appelman-et-al.34994

Twitter thread by corresponding author:
https://x.com/RobWust/status/1742856116181028994?s=20
Includes:
"We are now seeing if something similar happens in patients with ME, and hope to include muscle biopsies from patients with severe ME as well in the near future"

"This collaboration between ,
, , and would not have been possible without the help of so many students, colleagues, and private funders. We also acknowledge the contribution of
, Patient-Led Research Collaborative , and for future work! 2/m"

"Professor Steve Griffin, of Leeds University, said the study suggests “the approach to treating conditions such as long Covid, ME and CFS [myalgic encephalomyelitis and chronic fatigue syndrome] using graded exercise regimens is entirely flawed. Moreover, it appears that over-exercising under these circumstances is actually directly damaging”."

https://inews.co.uk/news/long-covid-patients-serious-injury-running-cycling-2837180

Edited to add:
New
‘Finally we’re believed’: Long Covid sufferers hail new research saying they should avoid intense exercise
People with long Covid tell The Independent of their relief over new research
https://www.independent.co.uk/news/uk/home-news/long-covid-intense-exercise-b2473174.html