Vasculitis Patient-Powered Research Network

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Vasculitis Patient-Powered Research Network Patient-powered research network improving the lives of patients with vascuiltis by collecting patie

The Vasculitis Patient-Powered Research Network seeks to transform how clinical research in vasculitis is conducted by directly engaging patients, investigators, care providers, and health systems to develop research methods to electronically collect health records and patient-reported data on a large number of patients with various forms of vasculitis. The goal of the V-PPRN research program is t

o conduct high-quality studies that will improve the care and the health of patients with vasculitis by exploring research questions that matter most to patients and advance medical knowledge about vasculitis.

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