Brain Tumour Research SA

03/08/2026

A milestone worth celebrating for the brain tumour community. 💛

For the first time in more than 20 years, eligible patients diagnosed with IDH-mutant astrocytoma or oligodendroglioma, a rare and incurable brain cancer, will have access to a new targeted treatment through the Pharmaceutical Benefits Scheme (PBS).

Voranigo (vorasidenib) — which can help slow tumour growth — will now be subsidised for eligible patients, significantly reducing the cost of this treatment and improving access for those who may benefit from it.

The NeuroSurgical Research Foundation and Brain Tumour Research SA were proud to stand alongside our colleagues in the Australian Brain Tumour Collaborative for this important announcement. This achievement was many years in the making and we are grateful to Servier for their ongoing support and advocacy to make this possible.

A special thank you to Leah for sharing her story — a powerful reminder of why continued research and collaboration are so vital, and the many patients and families who generously shared their time and lived experience to support this process. This win belongs to our brain cancer community - your voice truly makes a difference.

Watch the 9 News coverage here: https://youtu.be/QdVsK1w8ww4?si=1s0lHCy1-YSBesBg

If you think you may meet the criteria for Voranigo®, please speak with your treating clinician.

A drug that can help hundreds of Australians living with a rare for...

18/07/2026

🧠 Help spread the word this Glioblastoma Awareness Week and support brain tumour research.

Download or share this graphic to show you're backing research into better treatments for glioblastoma.

Together, we can drive discovery and change what's possible for patients and families.

💛 Support brain tumour research: nrf.supporterhub.net.au/donations/gbm-week

Every breakthrough begins with research.

17/07/2026

17/07/2026

13/07/2026

🧠 Today marks the beginning of Glioblastoma Awareness Week.

Glioblastoma (GBM) is the most aggressive form of brain cancer. Treatment options remain limited and survival has changed very little in almost 30 years.

But behind every statistic is a person—and teams of researchers working every day to change what's possible.

Throughout this week, we'll be sharing more about glioblastoma, why it remains so difficult to treat, and highlighting the incredible South Australian research working towards better outcomes for patients.

Because every breakthrough begins with research. 💛

13/07/2026

🎬 What an incredible afternoon!

A huge thank you to everyone who joined us for our Toy Story 5 charity movie fundraiser. With a packed house of 152 moviegoers, a fantastic atmosphere and a wonderful film, it was a truly memorable event.

Together, we raised an amazing $4,357 for SA brain tumour research.

A special thank you to Surfacing Contractors Australia in Memory of Mark Weber for organising this fantastic event. We are also incredibly grateful to our generous prize donors, the beautiful Capri Theatre for hosting us, and every person who came along to support this important cause.

Your generosity is helping fund vital brain tumour research that brings hope to patients and families across our community.

Thank you for making such a difference 💛

17/06/2026

Please sign the petition below to support life-saving proton therapy radiation treatment here in Australia.

The Facility is built. The expertise is here. This is not a political or state rivalry issue. It is about the hundreds of families still having to uproot their lives and travel to the US away from their support networks to access proven, life-saving treatment that should be available here.

Please sign and share if you can 🙏

Thank you to those that have already signed 💛

Australians Need Proton Therapy Here at Home

16/06/2026

𝗜𝘁’𝘀 𝗡𝗲𝘂𝗿𝗼𝘀𝘂𝗿𝗴𝗲𝗿𝘆 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗠𝗼𝗻𝘁𝗵 🧠💙

The NeuroSurgical Research Foundation supports vital research to improve outcomes for people facing brain, spine, and nervous system conditions.

If you believe in better treatments, faster recoveries, and hope for the future — donate today.

🔗 https://drct-nrf.prod.supporterhub.net/donations/neurosurgical-general-appeal

Every dollar brings us closer to breakthroughs!

16/06/2026

𝗡𝗲𝘂𝗿𝗼𝘀𝘂𝗿𝗴𝗲𝗿𝘆 𝗤𝘂𝗶𝘇 𝗧𝗶𝗺𝗲! 🧠

What is the “burr hole” procedure used for?

A) Measure blood pressure in the brain
B) Drain a subdural haematoma
C) Replace a section of skull
D) Stimulate the brain during seizures

Think you know the answer? Drop your guess below!

Answer revealed in comments!