04/09/2026
I’m a social worker.
I work with disability. I understand the NDIS. I know about capacity building, inclusion, reasonable adjustments, regulation, behaviour, sensory needs and supporting families.
And then my six-year-old daughter was diagnosed with autism.
Suddenly, I wasn’t the professional sitting alongside a family.
I was the mum.
And being Mum is completely different.
I’m learning what it means to understand my daughter not through a professional lens, but through the everyday moments of raising her.
The clothes that suddenly don’t feel right.
The mornings where getting out the door feels enormous.
The big emotions over something that might look tiny to somebody else.
The planning, preparing and anticipating.
Wondering whether I should push her a little or recognise that she genuinely can’t manage something today.
Trying to work out when to accommodate and when to build skills.
Trying to protect her without making her world smaller.
And sometimes questioning myself constantly.
There is also grief in this journey, and I think we need to be allowed to talk about that without it being interpreted as grieving our children.
I don’t grieve my daughter.
She is funny, loving, determined, beautifully herself and deeply loved.
Sometimes I grieve the ease I wish she could have.
I grieve when I see how much harder the world can be for her.
I worry about whether people will understand her when I’m not there to explain.
I worry about school, friendships, belonging and what happens as she gets older.
And then there are moments where I realise how much she is teaching me.
To question what we call “normal”.
To stop measuring success against what everybody else is doing.
To notice the things underneath behaviour.
To celebrate progress that might be invisible to somebody else.
And to remember that sometimes surviving a difficult day together is enough.
I thought my professional experience would prepare me for this.
In some ways, it has.
But lived experience has taught me things no textbook, qualification or professional role ever could.
Because I’m not observing this from the outside.
I love the little person at the centre of it more than I can possibly explain.
I’m still learning.
I still get it wrong.
Some days I handle things beautifully.
Other days I’m exhausted, frustrated and wondering what the hell I’m doing.
I’m her mum first.
And right now, we’re learning this together.