Hope for Ayden

Hope for Ayden Strength. Courage.

Determination
Ayden was born with spastic quadriplegic cerebral palsy and is under palliative care after a bleed to the Brain inutro at 32 weeks then born prematurely at 35 weeks with his twins sister.

My time group outing today 🙂
06/06/2026

My time group outing today 🙂

So that new GJ peg Ayden had placed under surgery lasted 2 weeks spent about 4 hours up at the Ayr hospital Saturday nig...
03/06/2026

So that new GJ peg Ayden had placed under surgery lasted 2 weeks spent about 4 hours up at the Ayr hospital Saturday night as the balloon broke (holds the button in place) 😑 It took me years to agree on having this done for him. Won't be rushing back to have it done again after all this happing unless the vomiting becomes bad again.

Time in the standing frame this morning 🙂
28/05/2026

Time in the standing frame this morning 🙂

Went out with Ayden and his big sister Ainsley to the biggest morning tea yesterday was a nice little outing supporting ...
22/05/2026

Went out with Ayden and his big sister Ainsley to the biggest morning tea yesterday was a nice little outing supporting a good cause.

Woo hoo 20 days now no vomiting 🎉 Still getting used to the change of the New peg button but, feeds and medications are ...
19/05/2026

Woo hoo 20 days now no vomiting 🎉
Still getting used to the change of the New peg button but, feeds and medications are going well so far.

Home time!! Heading back home to celebrate Ayden's sister Anastasia's 16th birthday today 🎂🎈
18/05/2026

Home time!!
Heading back home to celebrate Ayden's sister Anastasia's 16th birthday today 🎂🎈

Went outside for a walk and to see how Ayden goes in the wheelchair after having the steroids injected into his hips.
17/05/2026

Went outside for a walk and to see how Ayden goes in the wheelchair after having the steroids injected into his hips.

So Ayden had a really bad day yesterday 😔 he had temps and was in pain so they put him on iv antibiotics.Today he doing ...
17/05/2026

So Ayden had a really bad day yesterday 😔 he had temps and was in pain so they put him on iv antibiotics.
Today he doing and looking great 🥰 so hopefully home tomorrow fingers crossed so we can celebrate his sister Anastasia's 16th birthday.

Everything went well Ayden is in recovery and waiting to head back down to the childrens ward
15/05/2026

Everything went well Ayden is in recovery and waiting to head back down to the childrens ward

Ayden has been admitted for a planned procedure at 10am in the morning to have his mic-key button changed over to a GJ b...
14/05/2026

Ayden has been admitted for a planned procedure at 10am in the morning to have his mic-key button changed over to a GJ button because of his constant vomiting, but in the last 16 days now we have had no vomiting at all. That's the longest he has ever gone without vomiting ever 🤦 He is also getting steroid injections into his hips to see if it helps with pain when sitting in his wheelchair and being in his standing frame Ayden will then go to ICU to recover as a precaution.

Address

Ayr, QLD
4807

Telephone

+61401145333

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