Baby Amara's Brain Cancer Journey

18/06/2026

💛🩶 BEFORE SHE GOT THE CHANCE TO LEARN TO WALK, BABY AMARA WAS FIGHTING FOR HER LIFE. 🩶💛

As Baby Amara continues the fight of her life through intensive chemotherapy at Queensland children's Hospital, we're asking Brisbane and the wider Australian community to stand with her — and with every child and family facing the devastating reality of childhood cancer.

At just ONE year old, while other babies are taking their first steps, saying their first words, and discovering the world around them, Amara is fighting Stage 4 ATRT brain cancer — one of the rarest and most aggressive childhood cancers.

This journey is heartbreaking — not only for Amara and her family, but for the thousands of children and families across Australia facing childhood cancer every day.

📅 On 19 July, we want to see the Story Bridge illuminated in GOLD and GREY — the colours of childhood cancer awareness — to honour Amara and every child bravely battling cancer.

This is bigger than a bridge.

It’s about raising awareness.

It’s about shining a light on childhood cancer.

It’s about showing families facing the hardest days of their lives that they are seen, supported, and never forgotten.

Brisbane City Council

🚨 WE NEED YOUR HELP TODAY 🚨

✅ COMMENT and tag Brisbane City Council

✅ Message Brisbane City Council requesting the Story Bridge be lit on 19 July

✅ SHARE this post across community groups, schools, sporting clubs, workplaces, local pages, and networks across Australia

✅ Tag Children’s Health Queensland and help raise awareness for childhood brain cancer

✅ Tag friends, family, businesses, community leaders, media outlets, and organisations that can help amplify this message

Every comment, every share helps support awareness and early detection, and research towards finding a cure.

One voice can be missed.

Thousands of voices create change.

Together, let’s show Amara, her family, and every child and family affected by childhood cancer that they are seen, supported, and never forgotten.

👇 COMMENT “FOR AMARA”, TAG BRISBANE CITY COUNCIL, AND SHARE THIS POST NOW 👇

💛🩶 FOR AMARA. FOR EVERY CHILD. FOR EVERY FAMILY. 🩶💛

15/06/2026

Her first words are coming back… and she keeps saying ‘mum, mum, mum’ 💔💛”

15/06/2026

Amaras first words are coming back… and she keeps saying ‘mum, mum, mum’ 💔💛”

14/06/2026

💜 I Wonder When It’s My Turn 💜
Today was another good day for me 🌈

Mum stayed by my side all day, and we spent every moment together 🤍
I had another bath, which felt so nice 🛁, and I got to spend more time sitting up in my chair.

The doctors told my nurses to lower my oxygen again and bring down my breathing support even more 💙

I worked really hard, and I did really well.

Mummy read me books 📚 and played with my toys 🧸
We played all day inbetween my little naps, I loved it so much.

Mummy was so proud of me today 💜

Today also reminded me that life keeps moving outside the hospital walls 🌍

My little sissy she's 4 wasn’t feeling well today 🤒 so she stayed home with Daddy to rest and get better. I missed her lots and can’t wait for cuddles when she’s feeling better 🤍

I did get to see my big brother his 7 only for a little while this morning, he said he was going out for a big day of adventures with grandma today 👦💙

When he came back, he was so excited to tell me all about it 😄

He said Grandma took him on a big ferry to GG’s (Great Grandma’s) place 🛳️💛
They played on a big pirate ship and had a picnic lunch by the river with Grandma and GG 🏴‍☠️🥪

Then they went to another park, and another playground with an even bigger pirate ship 🌟
He told me all about the climbing, exploring, and how much fun he had.

After that, they caught another big ferry and found a huge pink playground with slides and climbing ropes 🎀🛝
He said it wasn’t far from where I am in the hospital, only a short walk away.

It sounded like so much fun 💭💗

As I listened to him talking and smiling about his day, I wished I could have been there too 💔

Maybe soon I’ll be strong enough to go outside in my pram 🍼🌤️
Even if I can’t run or play just yet, I’d love to feel the sunshine on my face, look up at the sky, watch other children playing, and hear their laughter 🌈

I think I’d like that more than being in this hospital bed all day 🏥

I just keep wondering when it’s my turn for a little adventure too 💜

But for now, I’ll keep working hard, one day at a time 🤍

While today is part of my story, it is also part of so many other children and families facing childhood brain cancer 🎗️

Behind every hospital door is a family trying to stay strong, siblings missing each other, and children doing their best every single day 💔💜

That’s why sharing my story matters 📢

Every share helps raise awareness and brings more understanding to what families like mine go through 🤍
The more people who understand childhood brain cancer, the more hope we can create for better treatments, more research, and brighter futures for children like me 🌟

My biggest wish is that one day soon no baby, child, or family will have to go through this 💜

With love,
Amara 💜

13/06/2026

Baby Amara's Update 💖

Today was a quiet day for me. Grandma stayed by my side, and having her with me made me feel safe and loved. 🥰

I didn't have much energy today, so I spent most of the day sleeping and resting while my little body continues to fight.

The good news is that my doctors are slowly weaning me off my oxygen support, and I'm doing well. Every small step forward is a victory worth celebrating. 🌟

If I'm well enough, my chemotherapy treatment will begin on Monday. It's a big step for me and my family, and we'd be grateful for your prayers and positive thoughts.

Thank you to everyone who follows my journey, sends love, shares my updates, and keeps me in your hearts. Your support means the world to us. ❤️

By sharing my story, we hope to raise awareness for childhood cancer and remind other families that they are not alone in this fight.

💛 If you're standing with me as I take this next step, please leave a yellow heart in the comments and share this post to help spread awareness.

Love,
Baby Amara 💕

13/06/2026

“Innovation cannot succeed without hope.” — Professor Richard Scolyer AO 🕊️

We are deeply saddened by the passing of Professor Scolyer.

A world-leading pathologist and 2024 Australian of the Year, he dedicated his life to advancing cancer research and improving outcomes for patients. When faced with his own diagnosis of glioblastoma, he showed extraordinary courage and generosity, choosing to contribute to experimental treatment in the hope of helping others.

His legacy will continue to guide cancer research and care for years to come.

We extend our sincere respect and gratitude for his contribution to medicine and to the lives of patients and families everywhere.

In quiet reflection, we also hold Amara and other children and families walking this journey with Atypical Teratoid Rhabdoid Tumor and similar conditions. Their courage is part of the broader reason this work matters, and why progress remains so urgently needed.

Rest in peace, Professor 🕊️

https://www.abc.net.au/news/2026-06-08/professor-richard-scolyer-open-letter-death-cancer/106741140?utm_campaign=abc_news_web&utm_content=link&utm_medium=content_shared&utm_source=abc_news_web

12/06/2026

12/06/2026

Yesterday, the doctors were concerned that Amara might be getting sick again, so they carried out swabs and a chest X-ray. Thankfully, the swabs came back clear, but her lungs are still showing signs of illness, and doctors remain concerned about her respiratory condition. She is being closely monitored as we work through the next steps in her care.

This journey reminds us every day that recovery is never a straight line. There are highs, lows, setbacks, and small wins that often mean the most.

Through it all, Amara keeps showing real determination — step by step, tiny milestone by tiny milestone. Sitting a little longer, moving a little more, breathing a little better, and finding small moments of joy in between it all.

Hearing her giggle, seeing her smile, and watching her keep going means more to us than words can explain. Even in between everything, she has small bursts of playtime, and those little moments of joy shine through in the middle of it all.

Thank you for walking this journey with us and for all your continued love and support 💜

Love, Mum and Dad 💜

I’ve been doing really well. I sat in my chair yesterday and today for a little bit. My therapist, Mum, Dad, and Grandma all say I’m doing really well with my movements.

I even had a nice bath this morning.

I love playing with my toys. It’s just sometimes hard — my hands don’t always do what I want them to, but I keep trying until I get what I want.

I even shone through today with little smiles and giggles.

My bravery beads arrived today. There are so many — maybe around 200! They are special beads I get for different things I’ve been through in hospital, and each one tells a part of my story. I’ll have to get Mummy to count them for me. I’ll tell you how many later.

I want to say thank you to my nurses for being so kind and caring for me, and to my doctors for trying really hard to help me get better. I’m very lucky to have them all looking after me.

And thank you to everyone for sharing my story and journey, and for holding my hand through it all 💜

Love, baby Amara 💜

11/06/2026

Uniting ATRT Families Around the World 💜

ATRT (Atypical Teratoid/Rhabdoid Tumor) is a rare and aggressive childhood brain cancer that changes life in an instant.

Behind every diagnosis is a child who is deeply loved, a family facing the unimaginable, and a story that deserves to be seen, heard, and remembered.

No family should ever face ATRT alone.

Whether your child is currently in treatment, a survivor, or forever in your heart, your journey matters. Every story shared helps raise awareness, brings comfort to another family, and builds a global community of understanding and support.

We invite families, friends, support groups, charities, hospitals, and awareness pages from around the world to come together:

💜 Share your child’s journey
💜 Tag ATRT families and support pages
💜 Share this post to spread awareness
💜 Help connect families across the world

Because awareness grows when stories are shared.
Because hope grows when voices come together.
Because no family should feel alone in this fight.

Every child deserves to be remembered.
Every story deserves to be heard.
💜 Every child deserves a chance to live, grow, and have a future.

10/06/2026

Today was a pretty big day for me!

🛁 I had my first bath in over a month.
👕 I wore real clothes for only the second time since my diagnosis two months ago.
😊 I even cracked a couple of smiles and giggles, but I was too quick for Mum and Dad to catch them on camera.
💪 I sat up in my chair and did a little workout too — everyone said I did really well.

Of course, I made sure to fit in lots of naps in between all that hard work. 😴

❤️ I also had some very special visitors today — Mum, Dad, Grandma, and my big brother.

Every day I'm taking little steps forward, and I'm so grateful for all the love, prayers, messages, and support you keep sending my way.

Thank you for standing by me and my family through this journey. Please keep sharing my story and sending your love — it means more than you'll ever know.

Love,
Amara 💙✨