Rory's Warriors

Rory's Warriors Inspired by nine-year old Rory who has incurable Brain Cancer. We aim to raise awareness and funds

Less than 4 weeks until Connor's Run comes to Tannum!! To keep it simple - $10 registration per person on the day - Cash...
17/09/2026

Less than 4 weeks until Connor's Run comes to Tannum!!
To keep it simple - $10 registration per person on the day - Cash or card accepted. All and any extra donations welcome πŸ™
Let's have some fun while raising awareness for childhood brain cancer and helping change the odds for these kids.

This post did have a caption originally - not sure what happens to them?!! Connor's Run Melbourne today - our 9th year. ...
13/09/2026

This post did have a caption originally - not sure what happens to them?!!
Connor's Run Melbourne today - our 9th year. It didn't disappoint - the weather, the atmosphere, the smiles, the fundraising, the kit kits, the friends.....

Rory scootered the 9.6km and enjoyed the finish line party as always.

What you don't see is the hour long nap at the after party, the nap on the train and the very quiet afternoon playing with lego. Brain cancer never goes away, and it continues to impact Rory's life every day.

Just another reason why this day is so important.

https://www.connorsrun.com/fundraisers/roryberry24027/connors-run

Rory is at Connor's Run!!!He's once again scooting - adorned as always in his champion Cape πŸ¦Έβ€β™‚οΈHe would love a little d...
12/09/2026

Rory is at Connor's Run!!!
He's once again scooting - adorned as always in his champion Cape πŸ¦Έβ€β™‚οΈ
He would love a little donation for his fundraising Page- link in stories πŸ™ŒπŸ«ΆπŸ§ πŸ’™

Today Rory visited the Education Low Vision Assessment Centre in Brisbane. After questioning specialists for 6+ years ab...
10/09/2026

Today Rory visited the Education Low Vision Assessment Centre in Brisbane. After questioning specialists for 6+ years about his particular impairment, it was a relief to have our parental observations validated.
But more importantly, to identify the exact areas of visual perception Rory struggles the most with: contrast and biological movements the worst.
This knowledge will be shared with his teaching team at TannumSHS to better enable his learning, allowing Rory to make even more use of his incredible brain 🧠

With only 4 days to go until the official Connor's Run - now is the best opportunity to make your donation!Donation matc...
09/09/2026

With only 4 days to go until the official Connor's Run - now is the best opportunity to make your donation!
Donation matching is on again - so every dollar you donate is DOUBLED πŸ™ŒπŸ’™ We would love to get to $5000 this year 🫢
Rory is back in Brisbane today for more appointments, check ups and tests. Because even though he was diagnosed over 8 years ago, and has been off treatment for over 6, brain cancer is the gift that never ends.
We have 17 people in our team - not too late to join in the fun! Link in bio and story πŸ’›πŸ©΅

Connor's Run - Tannum Sands - is coming!!Be part of Australia's single largest event for paediatric brain cancer and hel...
04/09/2026

Connor's Run - Tannum Sands - is coming!!
Be part of Australia's single largest event for paediatric brain cancer and help children (and their families) fighting this deadly disease.
More details to come - but SAVE THE DATE
SUNDAY 11TH OCTOBER

OK- so when I posted this there was an explanation attached - which somehow never made it to this post πŸ€·β€β™€οΈThis was Rory...
26/08/2026

OK- so when I posted this there was an explanation attached - which somehow never made it to this post πŸ€·β€β™€οΈ
This was Rory's turn to unload the dishwasher. Job not quite completed - not because he's lazy but because he doesn't see πŸ˜”
Cortical Visual Impairment is untreatable and permanent. Another permanent side-effect (invisible disability) of brain cancer πŸ˜ͺ
On top of this the optic nerve of his left eye (that sends the images from his healthy eyes to his brain) is pretty much useless - caused by his previous hydrocephalus.
You can imagine how this Impairment affects his function - both in movement and learning. Yet most people have no idea about it.
Soldier on Rory πŸ’ͺπŸ™Œ

We travelled down to Brisbane again last week - MRI was STABLE πŸ₯³πŸŽ‰ !! YAY for another 6 months 😁Dr Tim the oncologist mad...
07/07/2026

We travelled down to Brisbane again last week - MRI was STABLE πŸ₯³πŸŽ‰ !! YAY for another 6 months 😁
Dr Tim the oncologist made a plan for neuropsych assessment πŸ€“ and starting rehab in September, to help determine the best ways for Rory to learn and make the most of his incredible brain πŸ§ πŸ’™
Mum loved the coffee β˜•οΈ machine (especially after the late night 6 hr drive there!) and the wonderful hospitality and convenience at the house 🏠 πŸ™
Flashback to Rory 8 years ago when he spent 2 months in the neck brace following spinal cord surgery on his largest tumour ❀️

A huge THANK YOU!! to everyone who showed up today for our Go Grey in May event πŸ™Œ It was a beautiful morning,  with wond...
24/05/2026

A huge THANK YOU!! to everyone who showed up today for our Go Grey in May event πŸ™Œ

It was a beautiful morning, with wonderful company, so much delicious food, a little bit of running and more than $1200 raised for kids with brain cancer!!

So grateful for the donations, if you were still hoping to donate the link is in the bio 😘

Address

Geelong, VIC
3220

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