A C McArthur Services

22/07/2026

https://www.facebook.com/share/p/1eLsurFr4D/

𝐇𝐞𝐥𝐩 𝐬𝐡𝐚𝐩𝐞 𝐀𝐮𝐬𝐭𝐫𝐚𝐥𝐢𝐚𝐧-𝐥𝐞𝐝 𝐌𝐂𝐀𝐃 𝐫𝐞𝐬𝐞𝐚𝐫𝐜𝐡

TAMS is proud to invite eligible community members to participate in a The University of Melbourne research project led by Master of Genomics and Health student Jackson Rees, with assistance from TAMS.

The project explores patient experiences of MCAD diagnosis and genetic testing, including KIT D816V and TPSAB1 testing, access to testing, how clearly results were explained and their role in clinical discussions.

𝑷𝒂𝒓𝒕𝒊𝒄𝒊𝒑𝒂𝒕𝒊𝒐𝒏 𝒊𝒏 𝒑𝒓𝒐𝒋𝒆𝒄𝒕𝒔 𝒍𝒊𝒌𝒆 𝒕𝒉𝒊𝒔 𝒉𝒆𝒍𝒑𝒔 𝑻𝑨𝑴𝑺 𝒂𝒏𝒅 𝒇𝒖𝒕𝒖𝒓𝒆 𝒓𝒆𝒔𝒆𝒂𝒓𝒄𝒉𝒆𝒓𝒔 𝒅𝒆𝒎𝒐𝒏𝒔𝒕𝒓𝒂𝒕𝒆 𝒕𝒉𝒆 𝒏𝒆𝒆𝒅 𝒇𝒐𝒓, 𝒂𝒏𝒅 𝒗𝒂𝒍𝒖𝒆 𝒐𝒇, 𝒓𝒆𝒔𝒆𝒂𝒓𝒄𝒉 𝒄𝒐𝒏𝒅𝒖𝒄𝒕𝒆𝒅 𝒊𝒏 𝑨𝒖𝒔𝒕𝒓𝒂𝒍𝒊𝒂. 𝑾𝒆 𝒆𝒏𝒄𝒐𝒖𝒓𝒂𝒈𝒆 𝒕𝒉𝒐𝒔𝒆 𝒘𝒉𝒐 𝒂𝒓𝒆 𝒆𝒍𝒊𝒈𝒊𝒃𝒍𝒆 𝒕𝒐 𝒎𝒂𝒌𝒆 𝒕𝒉𝒆𝒊𝒓 𝒗𝒐𝒊𝒄𝒆𝒔 𝒉𝒆𝒂𝒓𝒅.

𝘗𝘭𝘦𝘢𝘴𝘦 𝘳𝘦𝘢𝘥 𝘑𝘢𝘤𝘬𝘴𝘰𝘯’𝘴 𝘳𝘦𝘤𝘳𝘶𝘪𝘵𝘮𝘦𝘯𝘵 𝘦𝘮𝘢𝘪𝘭 below (top comment) 𝘤𝘢𝘳𝘦𝘧𝘶𝘭𝘭𝘺 𝘣𝘦𝘧𝘰𝘳𝘦 𝘥𝘦𝘤𝘪𝘥𝘪𝘯𝘨 𝘸𝘩𝘦𝘵𝘩𝘦𝘳 𝘵𝘰 𝘱𝘢𝘳𝘵𝘪𝘤𝘪𝘱𝘢𝘵𝘦.

Survey: https://redcap.unimelb.edu.au/surveys/?s=WJAPPJN7LJKNXEP7

19/07/2026

🧡🫶🏻

⭐️ Community Recognition | Ange McArthur ⭐️

It was a pleasure to deliver a Community Recognition Statement celebrating the incredible Ange McArthur and her nomination as the 2026 Local Woman of the Year. 💜

Ange's tireless advocacy for people living with a disability is making a real difference, helping more than 100 NDIS participants while creating employment opportunities that value lived experience.

Thank you, Ange, for everything you do to build a more inclusive and compassionate community. Congratulations on this well-deserved recognition! 👏

12/07/2026

https://www.facebook.com/share/p/1DY7ZrR2Yx/

09/07/2026

I'm not sure if this applies to every SC/PRC out there, but I know I've had a few scenarios where a really sh*tty outcome has left me as the bad guy, and here's a gentle reminder that it's not cool, and that's not what we're here for.
This was the year I decided I don't tolerate it, and I encourage others to as well. We can only do what we can do 🧡
If you genuinely have a terrible SC/PRC, that's a whole other kettle of fish and I think we know how I feel about that 😅

IMAGE DESCRIPTION 📸

✨Image 1/3
A square graphic with a soft blue background and abstract orange, purple and black decorative shapes. The heading reads, "A gentle reminder (this may not apply to everyone, but just in case)." The post explains that Support Coordinators (SCs) and Psychosocial Recovery Coaches (PRCs) cannot make the NDIS approve funding, speed up wait times, override legislation, or create approvals that aren't supported by evidence or legislation. It emphasises that SCs and PRCs do not have the power to overturn NDIS decisions and can only work within the legislation and evidence available.

🌻Image 2/3
A purple background with the same abstract design elements. The post explains what Support Coordinators and Psychosocial Recovery Coaches can do: advocate, provide evidence, escalate concerns, explore options and continue pursuing available pathways. It states they can challenge decisions where appropriate but must work within NDIS processes. The post acknowledges that many participants understandably look to their SC or PRC for answers during the current NDIS climate, but they cannot solve every problem. It ends by recognising that most SCs and PRCs are doing their best with the system they have to work within.

🌞Image 3/3
A blue background with an illustration of an angry face and a speech bubble containing symbols representing swearing. The post reminds readers that when an NDIS or NDIA decision is disappointing, it is likely not their Support Coordinator or Psychosocial Recovery Coach's fault. It says SCs and PRCs are not the punching bag—they can help hold space, share frustration, advocate where possible, and help plan next steps. The final message reads, "We're angry too."

30/06/2026

Happy 3rd Birthday to A C McArthur Services!
I am truly so grateful to everyone who's supported me and especially those who have been with me since the start.
I adore you beyond words 🧡🎉

23/06/2026

FINGERS CROSSED. Well done, everyone. We shouldn't have to, but so far, it's working.

10/06/2026

Well said, Hannah 👏👏👏

Video description: Hannah Diviney speaks in the NDIS Senate Hearing...

05/06/2026

Lately I've been trying to find the words to describe what it feels like working in the disability sector, and I keep coming back to one term: moral injury.
Moral injury isn't burnout. It isn't compassion fatigue. It isn't being "too emotional" or caring too much.

It's what happens when you're repeatedly placed in situations where your values, ethics, and professional knowledge tell you one thing, but the system allows or demands another.

It's knowing a participant needs support and watching them fight for it.
It's seeing families pushed to breaking point while trying to navigate impossible processes.

It's spending hours advocating, escalating, gathering evidence, writing reports, and explaining the same thing over and over again, only to watch people fall through the cracks anyway.

As both a Support Coordinator and an NDIS participant myself, I see this from both sides.

I see participants being treated as costs instead of people.
I see professionals forced to justify basic human needs.
I see a disability community that is exhausted, frightened, and increasingly unheard.

And I think many of us are carrying a level of grief that isn't being talked about enough.
Not grief because we care too much. Grief because we care deeply and are constantly witnessing preventable harm.

If you've been feeling angry, helpless, heartbroken, disillusioned, or questioning whether you're making a difference, you might not be burnt out.

You might be experiencing moral injury.

And if that's you, you're certainly not alone.

💛

03/06/2026

So keeping this from y'all has been really hard but IT WAS RELEASED TODAY AND I CAN FINALLY TELL YOUUUUU!
In March, I responded to a call out looking for late diagnosed AFAB neurodivergent humans to share their experiences. This lead to a follow up chat with one of the producers, where she soft-launched the new podcast the ABC Australia team were working on and explained the purpose of the chat, and invited me to be on the pod with none other than Grace Tame 😭🎉

It was so much fun, and it was like we'd known each other for yonks.
If you'd like to have a listen, I'll pop the links in my bio and below 👂🎧🧡

Spotify: https://open.spotify.com/episode/3WejbrOs2YTI72wkzBUlDs?si=e59e94a1d1e247e5

ABC Listen: https://www.abc.net.au/listen/programs/ladies-we-need-to-talk/autism-health-gap/106736872

Image Description:
Image 1:
Text reads: “I did another podcast...” and “I am so excited to now be able to share this! Link in caption & bio.” A screenshot of the ABC podcast Ladies, We Need To Talk episode titled “The health gap no one talks about” is shown, featuring an interview with autistic advocate Grace Tame. An arrow points from the podcast image to the photo of the two people standing together.

Image 2:
Text reads: “Obviously I had to get Grace to sign her book.” Beside the photo is a quote attributed to Grace Tame: “Dear Ange / Rupert, My neuro-Queen! You’re a fu***ng legend and it was a pleasure to yarn with you. I await an invite to join you for GF cheesecake. Until then, stay cool. Big love, Grace xo.” Below is a photo of the handwritten message and signature inside the book. Additional text humorously notes that security could only find an access code for “Rupert,” which was amusing for several reasons. The McArthur Services logo appears in the bottom corner.

30/03/2026

See you there!! 🧡

I keep getting asked if I'd run another PMDD workshop and so I finally listened because my PMDD has been PMDD'ing 🔥

The good part of that is that I've now had more personal experiences of treatment options over the past two months to add to the lived experience side of things, I suppose 😅

This workshop will be live online and also recorded and sent out for people want can't attend live or prefer to watch it at 2x speed, or whatever your preference is.

This is an interesting format I suppose because it's targeted at both clinicians and people who are PMDD curious/experiencers. I think I'm pretty good at speaking to both audiences at once and I really like to just treat people like the experts in their own lives anyway so it fits my vibe.

Thursday 16th April at 5.30 AEST. Or recorded and you can listen/watch whenever you get around to it.

Link in bio or via https://www.eventbrite.com.au/e/living-with-this-hell-pmdd-101-tickets-1985697811608?aff=oddtdtcreator