CIDP Awareness and my personal journey

CIDP Awareness and my personal journey Fighting an Autoimmune Disease Chronic inflammatory Demylating Polonueropathy. C.I.D.P .
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The pain is quieter now.Not gone… just silent.Since surgery last week , I’ve learnt to move through life differently. Mo...
23/05/2026

The pain is quieter now.
Not gone… just silent.

Since surgery last week , I’ve learnt to move through life differently. More carefully. More slowly. More silently… because sometimes even the smallest movement reminds me of the pain my body carries. The bruises you can see hurt, but it’s the emotional journey and the quiet acceptance of living with CIDP that truly changes you.

There’s a grief in accepting that life doesn’t always look the way it once did. That your body has limits. That strength sometimes means resting, adjusting, and learning a completely new way to live.

But through all of it, I still try to hold onto positivity. I still choose hope on the hard days. I still choose to keep going, even when the journey feels overwhelming.

CIDP may have changed parts of my life, but it has also taught me resilience, patience, and a strength I never knew I had. And even with the scars, the bruising, the pain and the adjustment… I’m still here, still fighting, and still finding light in the middle of it all. ✨

Hospital FatigueToday I’m calling it what it is… Hospital Fatigue.The endless appointments.The treatments.The waiting ro...
24/03/2026

Hospital Fatigue

Today I’m calling it what it is… Hospital Fatigue.

The endless appointments.
The treatments.
The waiting rooms.
The conversations about blood results and medications that become part of your everyday vocabulary.

Living with an autoimmune disease means accepting that hospitals, doctors, and treatments will always be part of my life. Some days I face it head on with strength and determination. Other days… I simply need to walk in the opposite direction for a moment and forget that this lifelong battle exists.

Not because I’m giving up.
But because even fighters need to breathe.

I want to take a moment to acknowledge the incredible doctors and medical teams who have stood beside me through this journey. Your knowledge, compassion and commitment never go unnoticed. You carry people like me through the hardest days, and for that I am deeply grateful.

But today is also about honesty.

Living with chronic illness can be exhausting in ways people don’t always see. It’s the quiet fatigue of always managing something that never truly goes away.

Still — I refuse to surrender to it.

I will keep fighting.
I will keep showing up.
And I plan on living a long, full life — even if it means treatment is part of that life forever.

Some days I rest.
Some days I step away.
But I never quit.


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Melbourne, VIC

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