05/08/2026
1 in 20 children are affected by a birth defect or genetic disease, including cancer, cystic fibrosis and life-threatening metabolic disorders. That is equivalent to 12 children every minute worldwide.
For many families, a diagnosis brings complex treatment, ongoing appointments and uncertainty about the future. While other children are playing sport or spending time with friends, those living with serious genetic conditions may be undergoing chemotherapy, taking multiple medications or recovering from major surgery.
Jeans for Genes Day raises awareness and funds vital research into genetic diseases, including gene therapies that aim to improve treatment options and find cures for conditions once considered incurable.
Your GP can support your child’s ongoing health needs, coordinate specialist care and referrals, monitor treatment and connect your family with additional services. They can also support the physical and emotional wellbeing of parents, siblings and carers during what can be a stressful and uncertain time.
If your child is living with a genetic condition, your GP is a trusted place to discuss their care and the support available to your family.
Book an appointment with your local GP.