The Plumber, His Missus, & Her Brain Tumours

The Plumber, His Missus, & Her Brain Tumours Wife with a wheelchair
CNS tumour advocate

So I am confused.For months the agency and the media have been bombarding us with headlines about rorting and fraud. The...
28/08/2026

So I am confused.

For months the agency and the media have been bombarding us with headlines about rorting and fraud. The cuts last week are apparently going to fix this.

Excellent.

Below is a screenshot I received on Wednesday regarding a complaint I made about a provider 6 months ago. [Disclosure-I used AI to redact the business name.]

In my complaint I provided details of overcharging and deceptive business practices that I had experienced from a provider.

The NDIA has decided no action is required. This provider is still rorting people.

These cuts were NEVER about fixing the fraud.

Photo description
Screenshot of an email that Rachael received relating to a complaint of rorting by a provider, the NDIA is declining to investigate.

I usually don't post on politics. But this has been a devastating week. Labor, the Coalition & One Nation all voted in f...
21/08/2026

I usually don't post on politics. But this has been a devastating week.
Labor, the Coalition & One Nation all voted in favour of massive cuts to the NDIS.
Here's the thing, I agree the scheme needs to be sustainable. I agree there is fraud. Unnecessary red tape is endless.

Equipment suppliers often have insane mark-ups. There are providers doing the wrong thing. The NDIS loses 75% of the appeals against them at a cost of $65 million in legal fees.
That all needs an overhaul.

That's not what these reforms will do.

Instead all participants are set to lose up to 50% of their funding for community, civic and social participation. What does that mean in real terms?

This is the funding for support workers that enables disabled people to:
*go to work
*attend medical appointments
*visit family & friends
*go shopping
*engage in leisure activities
*study
*carry out volunteering

The NDIS has never paid for these activities, they have funded the support for people like myself to do them.

If I want to access my community now I will be expected to attend a day program. Where, when, who, what, how will be removed from my control.

I sit on six different boards/advisory groups where I give of my time to the community I live in. I work. I'm a Justice of the Peace. I attend endless medical and rehabilitation appointments to keep myself as healthy as possible. I enjoy socialising with the people I love.

My opportunity to do all those things will now be severely curtailed. I will have to rely on my husband John to do more for me. So he has to be my carer not my partner. He won't be able to do all of the things he enjoys doing, and deserves to do them.

Tens of thousands of support workers (a high percentage of them female) will become unemployed. They will no longer be spending their wages in their communities. Many will need to access Centrelink. This will have a huge flow on effect to small business.

Bluntly, disabled people will have their quality of life significantly worsen. There will be increased hospital admissions causing added strain to Medicare. Higher unemployment. Some disabled people simply won't survive.

The government had the opportunity to do the right thing. They could have clamped down on fraud. Put a cap on equipment costs. Removed the endless bureaucracy that adds to cost overruns. Crafted people's plans correctly so that $65 million wasn't wasted on appeals.

They didn't.

Instead, they took the easy way out & decided that being disabled means you're a second class citizen. You don't get choices about how you live & what a full life looks like.

Really wish I wasn't disabled right now.

Photo description
Selfie of Rach & the beautiful Sascha from Sargood On Collaroy kayaking at Clontarf. They are both smiling.

YOU CAN'T BE WHAT YOU CAN'T SEE I was pretty convinced when we relocated that I wouldn't make any friends-the wheelchair...
25/07/2026

YOU CAN'T BE WHAT YOU CAN'T SEE

I was pretty convinced when we relocated that I wouldn't make any friends-the wheelchair adds an extra layer of difficulty that I just wasn't up for.

But then I started joining things, lots of things. And then one day recently I woke up and realised that I had made friends. And that they were supportive when I had an idea.

With the support of Luke Hadfield from Camden Haven Chamber of Commerce and the immense assistance of the fabulous duo Amy Vandenhurk from Bower On Lake and Chan Ansell from Camden Haven News Of The Area I am applying for funding for grants to put on two disability led events this year. One will be artistic & one will be recreational.

I'm super excited & have created a page to promote it, if you can head over and give it a like that would be awesome.

https://www.facebook.com/profile.php?id=61592598052359&sk=about

Shout out to my fantastic allied health team at Diverging Pathways who visited Sargood On Collaroy this week. It was fabulous to see you.

Photo credit Sarah Broadhurst

Marita, Bec Dalzell, Kelly Malofie, Natalie West & Mark from Diverging Pathways standing behind Rach who is in her wheelchair. Behind them is Collaroy ocean pool and a beautiful sunset.

WOMEN SHOWING UPWe had big plans for last night, heading off to the adult circus to celebrate a friend's birthday. But i...
11/07/2026

WOMEN SHOWING UP

We had big plans for last night, heading off to the adult circus to celebrate a friend's birthday.

But it's been raining. Like a lot.
So the access to the circus is a mud bath.
With two of us in wheelchairs we had to pivot at the last minute and come up with a new plan. (Being disabled requires having to constantly change plans at the last minute.)

And all these women showed up. To support, commiserate, laugh and eat Thai food.

Women holding space and lifting up each other. Making our birthday girl Sarah Eade feel special.

And it really doesn't get more magical than that.

Photo 1
Photo credit Bianca Dennelly
In the background a circus tent. In the front lots of mud and a wood chip path.

Photo 2
Photo credit Chan Theresa
7 women in a selfie smiling at the camera with a table full of crafty bits at Community Crafts.

IT'S ALL ABOUT MEI have realised in the last few years how important it is to fill your cup [yes Selena Purdom, I HAVE b...
28/06/2026

IT'S ALL ABOUT ME

I have realised in the last few years how important it is to fill your cup [yes Selena Purdom, I HAVE been listening!]

Spending time with like minded women where no subject is taboo, where everyone holds space, and where you can harness your creativity-even if you're like me and the least artistic person on the planet.

Leesa Baxter and I spent the weekend at a women's art retreat. Fabulous food, comfortable surroundings and magical staff. If you live on the Mid North Coast do yourself a favour and sign up to a class at The Seed Art School. Aimee, Jade, Cherie & Hayley are a beautiful bunch of ladies. They gently cajoled and I found myself actually creating something I like. [Photo below]

We were joined by a fabulous group of women Emily, Tina, Jo & Peta-all of us coming from diverse backgrounds, yet melding together into a cohesive, supportive group in a very short period of time.

I can't emphasise enough what a nourishing experience it was.

P.S. One of the ladies-Emily-makes the most divine resin objects. Check out Make Me With Emily-her videos are mesmerising.

P.P.S. Immense gratitude to Aimee for organising this, and for putting her heart into listening to my lived experience of disability.

Photo 1
Round mosaic with a blue mosaic 5 in the centre.

Photo 2
Closeup selfie of Leesa & Rach smiling at the camera.

I STILL CALL AUSTRALIA HOMEIn August of this year it will be 30 years since I arrived in Australia, November it is 20 ye...
19/06/2026

I STILL CALL AUSTRALIA HOME

In August of this year it will be 30 years since I arrived in Australia, November it is 20 years since I became a citizen.

I love and miss New Zealand, particularly my family. But I made the decision that if I was going to live here and raise my children here that I had a moral obligation to become a citizen.

That obligation also extends to giving back to the community I live in. As an able bodied person the opportunities to do so were endless, as a wheelchair user not so much.

Additionally I wanted to increase visibility & representation of disabled people in every facet of society.

So this morning the Plumber & I went to the local court and I made an affirmation that confirmed me as a Justice of the Peace (JP).

My thanks to Robert Dwyer MP who signed off on my application, and immense gratitude to the always supportive Luke Hadfield, President of Camden Haven Chamber of Commerce who has offered space for me to carry out JP services locally.

Photo credit John Thorpe
Photo description Rach sitting in her wheelchair wearing a floral dress & denim jacket. Behind her is a building that says Port Macquarie Courthouse.

WHEN YOU MAKE AN ASSUMPTION I spent several hours at the hospital this week. I've got a biopsy thing on Wednesday and ge...
16/05/2026

WHEN YOU MAKE AN ASSUMPTION

I spent several hours at the hospital this week. I've got a biopsy thing on Wednesday and general anaesthetic is a bit of an issue, there were some conversations around that.

Anyway, because I haven't been to this particular hospital before they had to create a new file which involved the very nice nurse asking me a ton of questions. Which was fine until we got to the employment bit.

Nurse: obviously you don't work.
Me: that's incorrect, I do actually work a few hours a week. Can I ask why you made that assumption?
Nurse: well you said you received the NDIS, so I naturally assumed.

Therein lies part of the problem. The NDIS is NOT a welfare scheme. I do not receive any money from them. They pay expenses I wouldn't have if I wasn't disabled eg a wheelchair. I have the same living costs as anyone else; access to the NDIS (and 3 incredibly understanding bosses) enables me to work a small amount every week to help with those costs. Additionally, some disabled people work & some don't. There's no one size fits all.

On a lighter note, my beautiful cousin Leesa & I are heading off to a musical. Any guesses as to which one? Quote below is a clue.

"Yeah, well maybe that's because if I did, your boyfriend would remove my lungs with a spoon."

Photo

Selfie of Rach & Leesa smiling at the camera with a body of water behind them.

SOMETIMES YOU JUST NEED FAIRYBREADNot long after I was diagnosed I went to a retreat in Geelong, and while I was there I...
06/05/2026

SOMETIMES YOU JUST NEED FAIRYBREAD

Not long after I was diagnosed I went to a retreat in Geelong, and while I was there I met a sweet young lady named Lauren, and her mum Kerri.

In 2020 the evil beast that is brain cancer took Lauren from all who loved her. Over the years Kerri & Lauren's sister Sophie have kept in touch and I have so enjoyed seeing photos of everything they do to honour and remember Lauren.

Lauren loved elephants and fairy bread. So when I saw spoke guards for my wheelchair that had fairy bread on them, I just had to have them. And every time someone comments on them I'm going to tell them they were inspired by Lauren.

May is brain tumour awareness month. If you have some spare $ please consider one of the charities below.

Cure Brain Cancer
Brain Tumour Alliance Australia (BTAA)
Cancer Council Australia
RCD Foundation-Robert Connor Dawes
Peace of Mind Foundation



Photo credit Jasper Peady

Rach sitting in her wheelchair with the water [and her awesome EP] behind her. She has covers on her wheels which are purple and have fairy bread on them.

There has been a lot of fear amongst NDIS participants in relation to proposed cuts to social & community participation....
02/05/2026

There has been a lot of fear amongst NDIS participants in relation to proposed cuts to social & community participation.

There's also confusion over what that funds. To be clear, it funds the time/labour of a support worker. I pay for all activities/entry fees/food/tickets.

I work very hard to be as independent as possible, but the bottom line is I'm disabled & often require help.

A friend overseas did me a big favour & I wanted to buy her an Australian made gift to say thank-you. So I went to some markets with a support worker.

This involved a ramp that was too short, therefore too steep, which then meant I couldn't propel myself up it & had to be pushed.

Then I needed to pay for parking, but the screen on the machine was too high & the sun was shining on it so I couldn't read the screen. Again my support worker had to step in.

Many of the stallholders wanted cash (which I don't object to), but I didn't have any and the market ATMs were in a trailer, meaning you had to go up a step. So I'd have to give my support worker my card & PIN (breach of banking regulations) to get the cash.

This is daily life, without funding for social & community participation I wouldn't be able to do the basic things many people take for granted.

Photo

Market ATM up on a trailer with a step in front of it.

WOULD YOU LIKE TO SWAP PLACES WITH ME? Imagine that you had a house (body) that you were comfortable in. It was familiar...
24/04/2026

WOULD YOU LIKE TO SWAP PLACES WITH ME?

Imagine that you had a house (body) that you were comfortable in. It was familiar & held memories.

You paid insurance premiums (GST, income tax) in the knowledge that in the unlikely event your house (body) was damaged you'd be covered.

There's an incident. Your house (body) is damaged. You just want it back the way it was. The insurance company (NDIS) informs you that you will have to spend 6-12 months filling in reams of paperwork & answering intrusive questions about how you live your life in your house (body.)

You go through all of that and your insurance (NDIS) claim is accepted. But then the insurance company (NDIS) tells you that how your house (body) is repaired is entirely up to them. You have no say in how your insurance claim (NDIS) funding is spent. Faceless executives who don't know you will decide.

Then the insurance company CEOs (federal government) tells you that even though you paid your premiums (GST, income tax) they think they might means test you, and if they think you have too much money they won't pay out your claim.

And in the mean time the media tells everyone you're rorting the system, and you're a drain on the economy, and society. And social media jumps on board with people talking about how their husband's cousin's neighbour's hairdresser heard about someone getting a Caribbean Cruise through NDIS funding.

Meanwhile you're just hoping you can get funded for a wheelchair that fits you (4 years and waiting.)

I completely agree that the scheme needs some serious adjustment, but next time you share a meme or talk about cost blow outs, please remember there's individuals like myself who are looking in the mirror this week & asking if society values us at all.

I would give up these so called perks in a heartbeat if it meant a return of independence, autonomy, & most of all dignity.

If you relate to any of this please feel free to share it.

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North Haven, NSW

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