Whole Self

09/06/2026

Being a woman is awesome, right??!!

06/06/2026

Love our dads 🤗❤️

Love to all dads who stuck around with their autistic child 💙

27/05/2026

❤️❤️❤️❤️❤️❤️❤️

Always repost 🦓

27/05/2026

The Government is relying on disabled people, carers and families being too exhausted, overwhelmed or frightened to fight back.

Do not stay silent.

These proposed NDIS reforms risk:
• reducing supports
• increasing reassessments
• forcing people through inaccessible systems
• increasing reliance on unpaid carers
• narrowing who is considered “disabled enough”
• making it harder to challenge decisions
• pushing people toward crisis, segregation and institutional models of care

And while politicians talk about “sustainability”, women are already carrying enormous invisible labour behind closed doors to keep disabled family members safe and functioning.

Many disabled people only appear to be “coping” because somebody else is privately absorbing the cost.

That is not sustainability.
That is systemic neglect shifted onto families.

EMAIL YOUR MPs.
SEND SUBMISSIONS.
COMMENT.
POST.
MAKE NOISE.

Be respectful.
Be factual.
Be relentless.

Because if thousands of us speak, they cannot pretend they did not know the harm these reforms would cause.

You have until 29 May.

Let’s make them hear us.

Email template in comments below!

Australian Neurodivergent Parents Association - ANPA
Protect Our NDIS Alliance
Nicole Moran
William WB
NDIS Professionals Union - Professionals Australia
The Growing Space

27/05/2026

They want to live as independently as possible!!!

27/05/2026

👏👏👏👏👏👏

Disability advocates have warned the Albanese government’s planned overhaul of the NDIS risks repeating the very policy failures that led to the system’s creation in the first place.

“Beneath the language of sustainability lies a more uncomfortable question: whether Australia is once again mistaking cost displacement for economic reform,” said Muriel Cummins, occupational therapist and member of grassroots campaign Every Australian Counts

“When support is withdrawn, need does not disappear,” said Ms Cummins.

Read the full piece on The Point: https://thepoint.com.au/news/260521-need-does-not-disappear-advocates-warn-ndis-overhaul-risks-repeating-past-mistakes

27/05/2026

Yesterday I had a conversation with a friend that really stopped me in my tracks.

She told me about an article discussing the NDIS and how, in many ways, the funding can be viewed as a monetary calculation of the cost of caring. She said something along the lines of, “If the NDIS has lifted even 20% of the workload from carers, imagine the true dollar value of what carers do every single day.”

And honestly… that hit me hard.

When my own world changed years ago, I lost my career, our financial security, opportunities, our home, cars, all the tangible things you can easily place a dollar figure on. I understood those losses because society understands those losses. They’re measurable.

But it never truly occurred to me that the work I was doing as a full-time carer actually had value too.

The countless appointments.
The emotional regulation.
The advocacy.
The sleepless nights.
The constant hypervigilance.
The planning.
The researching.
The preventing crises before they happen.
The carrying of an entire family’s emotional wellbeing on your shoulders.

That labour is often invisible. Especially when it’s done by parents.

We talk so much about the “cost” of the NDIS spending growth, but rarely about what that figure actually represents. Behind those numbers are families who were previously carrying impossible loads alone, often at enormous financial, emotional and physical cost to themselves.

The rapid growth of the NDIS is not simply a story about government spending. It’s also a reflection of the true cost that families have quietly absorbed for decades behind closed doors.

And perhaps for the first time, some of that invisible labour is finally being recognised.

Please don’t burden families with 100% of that cost again. Not because families don’t love deeply enough, work hard enough, or sacrifice enough, but because the true cost of care was never sustainable for families to carry alone. And in reality, it is not sustainable for our society or government either.

Somewhere along the way, we have to stop pretending that unpaid care comes without a cost. ❤️