Hypermobility for Paediatric OTs

04/08/2026

20/06/2026

It's not every day you see featured in Australian news. Today, we did.

Thank you to Natasha Boreland for securing this piece and sharing your story which shines a light on the realities of living with vascular Ehlers-Danlos syndrome (vEDS), and the gaps in care that many Australians with heritable connective tissue disorders continue to face.

Thank you to Geelong Advertiser for publishing this important story.

Thank you also to CTDNA Scientific and Medical Advisory Committee member A/Prof Geoff Lester for contributing his expertise and helping raise awareness of these complex conditions.

At CTDNA | Connective Tissue Disorders Network Australia, we remain committed to working alongside our community, healthcare professionals and policymakers to improve awareness, education, care pathways and health equity for Australians living with heritable connective tissue disorders.

HealthEquity PatientAdvocacy

09/05/2026

From our friends at Ocean Kids Health

03/05/2026

Mr Butler, you have gone too far.

Without a real NDIS, people are left with failing hospital and mental health systems that are not fit for purpose.

Hospitals are already full, community health can only see a drop in the ocean of those needing support. Where are disabled people meant to get the help they need and deserve?

Cutting costs = shifting costs.

People don’t disappear.
Needs don’t disappear.

The only thing that actually disappears here is the promise made to people with disability that the NDIS would provide lifelong supports.

Foundational supports are a bridge to nowhere.

Shall we reroute the road and drop them off on your front lawn?

01/04/2026

A new National Pain Alliance, steered by Chronic Pain Australia, launched yesterday (30 March), to advocate for chronic pain to be formally recognised within