Down Syndrome NSW

17/10/2026

This Down Syndrome Awareness Month, we’re sharing the facts!

FACT #13: Down syndrome is the most commonly occurring chromosomal condition.

Let’s keep learning and spreading awareness.

16/10/2026

This Down Syndrome Awareness Month, we’re sharing the facts!

FACT #12: The cause of the extra chromosome is still unknown.

Let’s replace assumptions with facts.

16/10/2026

Celebrating Down Syndrome Awareness Month with Chris Bunton!

As part of Down Syndrome Awareness Month, Chris sat down with Her Excellency the Honourable Margaret Beazley AC KC, Governor of New South Wales, for a very special conversation.

Chris shares his lived experience, his achievements and why representation and inclusion are so important.

We’re incredibly proud to share Chris’s voice and this wonderful conversation.

🎥 See the full interview on our YouTube channel - link in bio!

16/10/2026

REGISTRATIONS CLOSE TODAY!

Still thinking about joining us? There’s still time to grab your tickets and be part of a wonderful day of celebrations, fun, family, and community!

Register for UP! For Fun: https://events.humanitix.com/up-for-fun-in-celebration-of-down-syndrome-awareness-month

Domain Car Park – Important Notice
Please note that one of the lifts at The Domain Car Park is currently out of order.
For those with accessibility needs: Please park on Ground Level and access the car park via Sir John Young Crescent.

15/10/2026

This Down Syndrome Awareness Month, we’re sharing the facts!

FACT #11: People with Down syndrome now have a life expectancy of 60+ years of age.

Let’s keep spreading awareness and understanding.

15/10/2026

Do you have good ideas to help people with Down syndrome, families, and the community? Are you interested in building skills like communication and leadership? Join the DSAN and be part of a community that works towards positive change. You do not need any experience to join.

To find out more, please fill in this form and we will invite you to an information session about DSAN in October -https://forms.cloud.microsoft/r/XBizd87P95

14/10/2026

This Down Syndrome Awareness Month, we’re sharing the facts!

FACT #10: Children with Down syndrome can learn to read, write, play, and make friends.

Let’s celebrate possibility and inclusion.

14/10/2026

It's What’s On Wednesday!

🎉 UP! For Fun – This Sunday, 18 October
We’re just days away! We can’t wait for a day of fun, connection and celebration. Still time to Register

📣 Dubbo families! 19 October
The Inclusive Education Conference & Community Meet-Up are happening next Monday. We look forward to connecting with families throughout the day and into the evening.

Looking ahead to November, there’s plenty more to come! Keep an eye out for our exciting online and in-person events coming your way.

Check out our Events Page and register for upcoming events:
https://www.downsyndromensw.org.au/get-involved/events

14/10/2026

Wishing all of Team Special Olympics NSW the best of luck at the Special Olympics Australia National Games in Melbourne next week, including Down Syndrome NSW staff Ellen and Chris! If you are going, please share your photos!

13/10/2026

Determining support needs MUST include unpaid support by carers and families. Ignoring these supports not only devalues the important role carers have in society, but does not form an accurate picture of what is needed for a person with Down syndrome to live an ordinary life.

Support needs don’t disappear because a family member provides the support.

We’re concerned that the new NDIS support determination rules may leave some people with Down syndrome and their families without the protections they need.

In a new opinion piece, our CEO Darryl Steff explains why the safeguard for people with high support needs must recognise all the support a person needs, including support provided by family.

People with the same support needs should have the same protections, regardless of who provides their support.

Darryl will be in Canberra this week to raise these concerns directly with Ministers, MPs and the Department.

Read and share Darryl’s opinion piece: https://buff.ly/jfo2DqZ