05/04/2026
Health Journey Update 🤍
As many of you have heard, I’ve been on an unexpected health journey… and it has been one of the hardest things I’ve ever faced.
On April 16, while doing a client’s hair, I suddenly lost the ability to walk. I went to emergency and was sent home—still unable to walk. The next morning, I woke up feeling completely normal. I went back to work, walking and carrying on as usual… until around 4:30 pm when my legs started to feel weak again. By 8:00 pm, I could barely walk. My gait had completely changed—it felt like my brain wasn’t communicating with my body (cue the “Frankenstein walk”).
I returned to emergency in Arcola, where Dr. Khalili, Azadeh was incredible—so kind, compassionate, and truly listening. She made the calls that got me in to see a neurologist in Regina, Dr. Shahab, whose level of care and knowledge has been nothing short of amazing. He is brilliant and patient.
Since then, it’s been a long road of testing—MRIs, CT scans, EMGs (the neck and groin ones… I would not recommend 😅), and more. I’ve had 5 IVIG treatments, a Rituximab infusion, and have been on countless medications, including high doses of prednisone, as doctors work to stabilize my symptoms and find the right treatment plan.
Through all of this, my people have been beside me every step of the way (or lack of steps, lol). My amazing Mom and Dad my sisters Lindsay and Chelsea and their families, my womb mate and best friend Brit the hours spent helping in anyway has been incredible. Her fiancé Colby (aka Uncle Buck), Cory’s mom Valerie, and his family, my incredible little boy Jack he is my whole world , and my supportive boyfriend Cory have helped me through this in ways I will never be able to fully express.
Cory—aka Nurse “Clark,” my real-life Superman—has quite literally carried me through this. The patience, care, and love he shows me every single day is something I will never be able to put into words. I am so incredibly lucky. When I go to bed at night he’s by my bedside and when I open my eyes he is there smiling positive, bright and ready to help me with everything I need. He is my rock.
After many tests and evaluations, I’ve been diagnosed with an autoimmune disease called Myasthenia Gravis. We are still waiting to confirm if it’s the MuSK subtype. This condition affects how your nerves communicate with your muscles, causing extreme and fluctuating weakness. I might have strength in the morning, and by the afternoon, I can barely move.
To give you an idea— I was able to shower using my wheelchair and take four supported steps at physio. By 12:45, Cory was spoon-feeding me because I couldn’t lift my arms. With this condition the go hard or go home mentally unfortunately doesn’t work. The more I do the less I can do, so it’s very much a learning curve. I’m used to pushing through and being busy so this will be a new life for me to figure out.
I am not paralyzed—I do have feeling in my legs—but right now, I cannot walk. Each “attack” looks different and affects different parts of my body. In some cases the eye will droop, speaking can be slurred or hard. Initially, it was mostly my legs, but recently it has progressed to my upper body. I’ve been moved to a more intensive ward for monitoring, as my arms have weakened, my chest feels heavy, my breathing is more difficult, and even speaking has become hard. Myasthenia Gravis can change very quickly, and in severe cases, it can affect the muscles needed to breathe.
Today I woke up and my chest feels lighter and breathing has improved I’m hopeful to move to a different room out of the constant observation care side.
MG is a rare condition, affecting about 30 in 100,000 people, but there is ongoing research—and I’m holding onto hope.
Right now, I am still admitted at Regina General. I had hoped to be transferred to Wascana Rehab, but due to the nature of my condition, it may not be the best fit for my recovery. Being away from my son Jack, and the normal life that I knew. There really aren’t words for that kind of pain.
To say this has been a struggle feels like an understatement… but I’ve fought through hard things before, and I will fight through this too.
As I navigate this new chapter, I ask for a little extra grace—personally, and with the salon and boutique. Things may not be perfect for a while, and it may look like the blind leading the blind. but I’m doing my best to figure it out as I go. I didn’t want to have to do a big “post” about my health but I decided it was easier than trying to explain it individually to people when talking isn’t always easy. Thanks for reading ❤️
Thank you, from the bottom of my heart, for all the love, support, and kindness you’ve shown me. It truly means everything.
-B
