06/05/2026
I wrote something personal yesterday.
All of it was written from a small hospital room with my son during an oral food challenge.
The last time we were in that room, he had an IgE reaction that needed epinephrine, followed by an acute FPIES reaction. I still remember watching him go from happy and chatty to quiet, withdrawn, vomiting, lethargic, and too unwell to care when they placed an IV.
That kind of thing comes home with you.
Then life asks you to keep going. You keep reading labels, packing safe food, carrying medication, asking questions, making plans, and trying to figure out where careful ends and fear begins.
This is the part of food allergy parenting I wish had more room. The mental load. The isolation. The grief of food becoming complicated. The way your world can slowly get smaller while you are working so hard to keep your child safe.
There is such a tricky balance in this work. Protecting them matters. Helping them live matters too.
This is one of the reasons I love ACT in this space. It helps families move with fear present, while staying connected to safety, values, and the life they are trying to build.
Families need solid medical plans. They also need support for what it feels like to carry them.
I wrote more about this here:
https://www.mindfullynursed.com/post/when-food-is-not-just-food
If you know a food allergy or FPIES family who might feel seen by this, you’re welcome to share it.
When your child has FPIES or IgE-mediated food allergies, food can carry fear, grief, hope, and history. This is a personal reflection on oral food challenges, parent trauma, and finding room to live alongside the medical plan.