Cavernous Malformation Canada

Home
Canada
Edmonton, AB
Cavernous Malformation Canada

Cavernous Malformation Canada-informs, supports and connects Canadians affected by cavernous malformation. About Cavernous Angioma

What’s In a Name?

Cavernous Angioma - Cavernoma - Cavernous Malformation - Cavernous Hemangioma or acronyms like: CCM (Cerebral Cavernous Malformations) and CA (Cavernous Angioma)

These terms are used interchangeably to refer to mulberry-shaped abnormal blood vessels in the brain or spine. Angioma Alliance Canada is an organization for and by individuals who have these abnormal blood vessels and those who care abo

ut them. There is a great deal of information to learn about living with cavernous angiomas. Here you will find information about symptoms and treatment, surgery, rehabilitation, genetics, diagnostic testing, pregnancy, and pediatric cavernous angiomas. If you have questions about this information, feel free to write [email protected], or ask your question on the Community Forum or connect with a Peer Support volunteer. Content graciously provided by Angioma Alliance USA

08/16/2026

Dr. Steinberg speaks to clinicians, scientists, nurses and other medical professionals at the Dr. Steinberg speaks to clinicians, scientists, nurses and other medical professionals at the https://www.cavernousmalformation.ca/2026-symposium through the backdrop of his extensive clinical and research experience; known for developing approaches to complex cerebrovascular disorders. With a demonstrated commitment to the advancement of knowledge and discovery throughout his career as well as a leading expert in CM, his lecture on this challenging topic is one not to miss .

Dr. Steinberg is the Bernard and Ronni Lacroute-William Randolph Hearst Professor of Neurosurgery and the Neurosciences
Founder and Co-Director, Stanford Stroke Center and Former Chair (1995-2020), Department of Neurosurgery Stanford University.

Through our commitment of broadening knowledge and education for our patients and families, Dr. Steinberg will join the Patient and Family Conference taking place at the same time to shed light on the most pressing questions from this group. Tickets available at the link https://www.cavernousmalformation.ca/2026-conference

08/05/2026

Today's

Accueillez l'adversité à bras ouverts. Elle révélera en vous un courage insoupçonné.

07/20/2026

Countdown is on to our Patient and Family Conference! Join us September 18-19, 2026 in Toronto as we connect, hear from experts and have every lingering question about CM answered! Maybe there is even a special surprise!

Learn more and register at https://www.cavernousmalformation.ca/2026-conference

We will also have optional dinner and local activities to enjoy!

Hotel group rates are available until August 18 within walking distance of the venue. Flight discounts are also available for flights booked through www.aircanada.ca

If you have any questions send us an email at [email protected]

Can't wait to see you there!

>>>>>>>>

Le compte à rebours est lancé pour notre Conférence des patients et de leurs familles ! Rejoignez-nous les 18 et 19 septembre 2026 à Toronto pour échanger, écouter des experts et obtenir des réponses à toutes vos questions !

Pour en savoir plus et vous inscrire, rendez-vous sur https://www.cavernousmalformation.ca/2026-conference

Un dîner et des activités locales (en option) seront également proposés.

Des tarifs de groupe sont disponibles jusqu'au 18 août pour les hôtels situés à proximité du lieu de l'événement. Des réductions sur les vols sont également offertes pour les réservations effectuées via www.aircanada.ca.

Pour toute question, veuillez nous écrire à [email protected].

Au plaisir de vous y retrouver !

07/08/2026

J'ai appris que je suis capable de surmonter les difficultés. Je suis reconnaissant qu'elles m'aient conduit jusqu'ici.

06/30/2026

Our Mission takes us from coast to coast across Canada and this Proclamation from Prince Edward Island recognizing the unequal access to diagnosis and care for cavernous malformation patients amplifies the need for our continued work to raise awareness, education and support for patients and caregivers affected by this rare disease.

Thank you to the Province of PEI for this proclamation and recognition of the challenges our community faces.

06/24/2026

The Province of British Columbia has declared June as Cavernous Malformation Awareness Month!

Recognition of this rare disease and the barriers to diagnosis and care along with social, financial and health impacts to patients and their caregivers has a meaningful impact.

The need to raise awareness and increase support the need for treatment options and change towards an improved quality of life for those affected cannot be stated more fully.

We are on a mission..

06/23/2026

We're on a mission and failure is not an option. Patients and families with this rare disease depend on it.

Every action impacts- the discussions with scientists, clinicians, government, the public, funding, asking the hard questions, connecting, collecting and so many actions-big and small- all bring us closer to a cure and impacting the quality of life of patients with cavernous malformation and their caregivers. We are grateful for your support-an action that impacts our ability to engage and create change.

Donate at https://www.zeffy.com/en-CA/donation-form/raise-money-during-cavernous-malformation-awareness-month Learn more about cavernous malformation at www.cavernousmalformation.ca

06/18/2026

The capital of Alberta and also the home of Cavernous Malformation Canada, we are grateful to City of Edmonton - Local Government and Mayor Andrew Knack for this proclamation.

On June 18, Edmonton will by lighting up the High Level Bridge, the Alberta Legislature and Fairmont Hotel Macdonald . Join us in our event https://www.cavernousmalformation.ca/events/edmonton-ab-community-meet-up

>>>>

Capitale de l'Alberta et siège de Cavernous Malformation Canada, nous remercions la Ville d'Edmonton et le maire Andrew Knack pour cette proclamation.

Le 18 juin, Edmonton illuminera le pont High Level, l'Assemblée législative de l'Alberta et le Fairmont Mac pour soutenir la cause des malformations caverneuses. Rejoignez-nous ! https://www.cavernousmalformation.ca/events/edmonton-ab-community-meet-up

06/11/2026

It's official! The Province of Alberta has declared June as Cavernous Malformation Awareness Month-forever!

C'est officiel ! Nous sommes reconnaissants à la province de l'Alberta d'avoir déclaré le mois de juin Mois de sensibilisation aux malformations caverneuses – et ce, pour toujours !

06/03/2026

In June, we shine a light on cavernous malformation across Canada in various forms, including lighting up landmarks across the country. We shine a light on our need for research, clinical trials and funding commitments for these. We highlight the barriers to diagnosis and care and most of all, we honour the people impacted by this rare disease every single day-without a cure and limited treatment options.

Shine a light on cavernous malformation this June to bring it into the spotlight. Even a small act like sharing posts, talking to your friend or colleague about the disease, or sharing in the lighting events reminds us that together we can increase awareness.

The lighting schedule is below and https://www.cavernousmalformation.ca/event

Manchester Square Edmonton-June 1-30
Province House-Halifax-June 4
Sydney City Hall-Sydney-June 4
SaskTel Centre-Saskatoon-June 4
Sylvan Lake Lighthouse-June 5
Calgary Tower-June 7
Mississauga Clock Tower-June 8
Hamilton Signature Sign-June 9
Peterborough City Hall-June 9-11
Nanaimo Bastion-June 9-10
London City Hall-June 12
Canada Life/JA Taylor-London-June 12
RBC Building-London-June 12
CN Tower-June 13
Toronto sign-June 13
Niagara Falls-June 14 at 1015PM
Barrie Heart Sign-June 14
Peace Bridge-June 15
Aurora Town Square-June 15
Saskatoon City Hall and Prairie Wind-June 16-17
Fred Lundy Bridge and River Walk Commons Newmarket-June 16
Maple Ridge City Hall-June 17
High Level Bridge Edmonton-June 18
Alberta Legislature-Edmonton-June 18
Fairmont Macdonald -June 18
Sails of Light Vancouver-June 19
NL Confederation Building-June 19
Vancouver Convention Centre-June 20
RBC Place-Winnipeg-June 20
Olympic Cauldron Vancouver-June 20
Bracebridge Falls-June 22-26
Winnipeg Sign/Esplanade Riel Bridge June 22
Moncton City Hall-June 26
Moncton Downtown/Downing St/Avenir Place June 26
British Columbia Legislature-June 27
Charlottetown City Hall-June 28
Shaw Building Charlottetown-June 28
Vancouver City Hall-June 28
Burrard St. Bridge Vancouver-June 28
.and more coming!

Address

Edmonton, AB
T6X2A4

Website

http://www.cavernousmalformation.ca/

Alerts

Be the first to know and let us send you an email when Cavernous Malformation Canada posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Cavernous Malformation Canada:

Featured

New Nottingham Medical Clinic

Want your practice to be the top-listed Clinic in Edmonton?