SPG4 Cure Fundraiser

06/06/2026

Thank you to our city councillor Glen Gower - Councillor / Conseiller - Stittsville for holding a ceremony where Jack could present a Certificate of Appreciation to Renata and Liam for their incredible efforts in helping make our community a better place. Their dedication to fundraising for a cause is so inspiring, and we were deeply honoured that they chose our family to support with their fundraiser’s donations - to help us continue reaching toward a cure for Jack! 💙

06/05/2026

Thank you to everyone who helped us make our second annual Jack’s Gala fundraising event an incredible success! We are so grateful to all of you and are excited to push research forward even further to develop a cure to SPG4! 🌟

Our hearts are full after hosting our second Jack’s Gala: Reaching for the Stars!💫

Thank you to everyone who made this night happen - our incredible sponsors, donors, committee members, volunteers, speakers, emcee, live auctioneer, contributors, and every guest who came out to support us to help us raise funds for SPG4 research and a cure for Jack. Your generosity, kindness, and belief in our family made this night truly unforgettable.

And the biggest news of all…

✨ Together, we raised over $150,000 + a generous $75,000 donation from the Harrison McCain Foundation - for a GRAND TOTAL of over $225,000!! ✨

Thank you for helping us reach for the stars! 🚀💙

For more on our story or to donate, please see our Registered Canadian Charity:
https://blugenes.org/spg4-cure/
fage .co .photography .pamic .laidlaw .sudds .phelan3 .burch

05/28/2026

✨🎈 The excitement is building for Jack’s Gala: Reaching for the Stars — and one of the most anticipated moments of the night is our incredible Balloon Pop! 🎈✨

Thanks to the generous support of .niagara , guests will have the chance to purchase balloons for a chance at an amazing prize! 🌟

Whether you grab one balloon or increase your chances with three, every pop adds to the fun, energy, and unforgettable atmosphere of the gala. Trust us… you won’t want to miss this crowd-favourite experience! 💫

A huge thank you to Modern Niagara for sponsoring this exciting feature and helping make the night even more memorable.

We can’t wait to see all of our incredible guests there for an evening of celebration, surprises, and reaching for the stars together! 🚀⭐

Www.jacksgala.com ✨

Derick Fage Sandra Plagakis SPG4 Cure Fundraiser

05/24/2026

We are so excited about this live auction feature for Jack's Gala - the ultimate living room transformation! We hope to see you there! 🚀⭐️

🏠🌟LIVE AUCTION FEATURE FOR JACK’S GALA: THE ULTIMATE LIVING ROOM TRANSFORMATION🌟🏠

✨ Get ready for a truly transformative opportunity to completely reimagine your living space. This is your chance to bring together top local design, craftsmanship, and home comfort in one exclusive package that blends style, function, and luxury — all while making a meaningful difference for our son Jack and everyone living with SPG4.

This package includes:
renovations
Custom decorative accent wall — $3,500 value ✨


Electric fireplace — $1,000 value ✨


Electrical connection for the fireplace, plus TV plug if needed — $500 value ✨


Paint donated to help complete the transformation ✨


$2,000 furniture gift card ✨

Total value: over $7,000

This is more than just a renovation package — it’s a chance to create a beautiful, comfortable space in your home while supporting a cause that means everything to our family.

We can’t thank these businesses enough for helping make this package happen. Their generosity is going to help us raise funds toward Jack’s cure and make this live auction item one people won’t forget.

We hope to see you there! Thank you for your support! 🌟

For more information or to buy tickets:
Www.jacksgala.com

La-Z-Boy of Ottawa, Gatineau and Kingston La-Z-Boy Oakforge Home Renovations The Fireplace Center & Patio Shop RONA+ Kanata

05/21/2026

🌟🛻We have a winner!!!🛻🌟

💛Congratulations Jen Demers, you have won our Monster Truck Raffle!! We hope you have the best time!!!

💙Thank you so much to everyone who entered for supporting research for a cure for our son, Jack!

05/20/2026

Only 6 days left to purchase tickets to our upcoming fundraising event Jack's Gala on May 30th at the Brookstreet Hotel! 🌟

🚨ONLY 6 DAYS LEFT TO BUY TICKETS!🚨

📆 Registration for Jack’s Gala CLOSES on May 26th!

🎟️You can purchase your tickets here: https://www.eventbrite.ca/e/jacks-gala-reaching-for-the-stars-tickets-1846654847359

For more information:
🌟Website: www.jacksgala.com
🌟Contact: [email protected]" rel="ugc" target="_blank">[email protected]

We hope to see you there! 🚀

05/19/2026

🚨LAST DAY TO ENTER!

📆THIS WEEKEND!

💙Thank you for your support!

🚨WIN 6 TICKETS to the MONSTER SPECTACULAR🚨 at the Canadian Tire Centre on Saturday, May 23 at 2 PM! 🛻💥🔥

Get ready for an action-packed afternoon of massive monster trucks, incredible jumps, freestyle competitions, wheelie contests, and nonstop family fun — all while supporting an important cause. Monster Spectacular is one of Canada’s biggest monster truck experiences and is bringing the excitement to Ottawa this May!

🎟 RAFFLE DETAILS:• 1 ticket for $10• 3 tickets for $20• Contest closes MAY 19‼️

ALL proceeds will go directly toward SPG4 research through the SPG4 Cure Fundraiser in support of Jack and families affected by SPG4.

HOW TO ENTER:
📧 Email: [email protected]
Include:
•Your name
• Your phone number
• Number of raffle tickets you’d like

Payment information will then be sent to you. Once payment is received, your name will officially be entered into the draw! The contest closes May 19 and the draw will be made!

Thank you for helping us fund critical SPG4 research to help Jack and others with this rare generic and progressive disease.

For more on our story:
https://blugenes.org/spg4-cure/

05/18/2026

🔵 Bottle Drive Fundraiser for SPG4 Research! 🔵

From Jack’s Kindergarten Teacher:

“Jack’s team is doing a bottle/can drive to raise money for SPG4 - a rare disease that a special student I taught has. If you have any bottles/cans we can take off your hands, let me know and Mark and/or I will arrange to pick them up. Cash donations are also welcome. All proceeds from the bottle drive are going to support the fundraising effort. We will be collecting until the end of June!! For more info, check out https://blugenes.org/spg4-cure/.”

💙 Thank you for your support! 💙