01/08/2026
Today, 1 August, the SMA Europe cameras start rolling. 🎥
3, 2, 1... Rolling! is our awareness campaign, created together with the Rolling Journalists, young people living with spinal muscular atrophy (SMA).
Over the next few weeks, we will share the stories, voices, and perspectives that matter most to our SMA community.
While transformative treatments have changed the lives of many people living with SMA, research remains the driving force behind better therapies, earlier diagnosis, more personalised care, and ultimately, a future where a cure is possible.
As Olga Germanenko, Vice-President of the Board at SMA Europe, says:
“Supporting fundamental research is critical. It lays the necessary foundation for developing new drugs, improving diagnostic methods, and finding ways to completely cure the disease. Fundamental science helps identify molecular markers that in the future can accurately predict the course of the disease and assess the effectiveness of treatment for each patient.
The discovery of the mechanisms being studied for SMA also provides the scientific basis for the search for treatments for other severe neurodegenerative and genetic diseases.
Continuing to support and fund fundamental research is essential today. The more we invest in supporting basic research today, the more progress we will see tomorrow and, perhaps, the closer we will get to the currently elusive goal of a complete cure.”
This is just the beginning. Over the coming weeks, we will bring you conversations with researchers, clinicians, advocates, and people living with SMA to explore why research matters and why continued investment is essential for the future of our SMA community.
3, 2, 1... Rolling!
