EASEE Epilepsy

💜 Sharing insights & support for life with epilepsy
🧠 EASEE® - first minimally invasive brain pacemaker for drug-resistant focal epilepsy

05/09/2026

The seizure is the part people see. It is rarely the part that takes the most out of you ⚡

What sits around it is harder to describe. The waiting. The planning that goes into things other people do without thinking. The quiet calculation before a train journey, a night out, a shift at work. The phone that stays on loud because someone at home wants to be reachable.

When seizures are not under control, all of that runs in the background, every day. From the outside it can look like an ordinary life. Inside, a lot of energy goes into keeping it looking that way.

We are not saying this to make anyone afraid. We are saying it because plenty of people carry exactly this and assume they are the only ones 💭

If you recognise yourself in any of this, whether you live with or love someone who does, the comments are open. Sometimes it helps to see it written down by someone else.

03/09/2026

"Who do I even talk to about this?" 🧠

That question comes up a lot, and it is a fair one. Epilepsy care is not evenly spread, and finding someone with real depth in the subject can feel like guesswork.

Our centre map takes some of the guesswork out. Enter a postcode, set a radius, and you can see which epilepsy centres are within reach.

One thing worth saying clearly: these centres are not there to talk you into anything. They are epilepsy specialists first. They handle diagnostics, medication questions, and the full range of treatment paths. Experience with is one part of what they offer, not the whole picture.

Have a look and see what is near you: precisis.de/en/find-easee-center/

Was finding the right specialists difficult where you live? Tell us how it went, we would like to hear it 💬

Please note: this post is intended as general information and does not constitute medical advice. What is suitable in an individual case can only be decided together with your treating medical team.

01/09/2026

Not every seizure means epilepsy 🧠

Around five percent of people have one epileptic seizure at some point in their life without epilepsy ever developing. One seizure is an event. Epilepsy is a diagnosis. The two are not the same thing.

There is also a second picture that gets overlooked: PNES, psychogenic non-epileptic seizures. They look similar from the outside, though they have a different origin and do not show the electrical activity in the brain that epileptic seizures do. What matters here: they are real. Nobody produces them on purpose, and they can be just as frightening and just as disruptive to everyday life.

To make it more complicated, both can occur in the same person. Which is one reason getting to a clear diagnosis sometimes takes patience 💭

Part two follows, on how is actually diagnosed. Anything you want us to cover in it? The comments are open.

Please note: this post is intended as general information and does not constitute medical advice. What is suitable in an individual case can only be decided together with your treating medical team.

29/08/2026

Drug-resistant epilepsy. It sounds like a verdict, though it is really just a medical definition 🧠

The definition is more precise than most people expect. It applies when two well-chosen anti-seizure medications, taken at an adequate dose over an adequate period, have not brought seizure freedom. Two. Properly tried. That is the threshold.

Here is the part that trips a lot of people up: it has nothing to do with how often you have seizures.

Someone with seizures every week and someone with seizures twice a year can both meet the definition. What counts is whether the medication achieved seizure freedom, not how many seizures happened along the way. If your seizures are rare, establishing drug resistance can simply take longer, because it takes more time to see whether a medication is working.

Around one third of people with fall into this group, and that includes focal as well as generalised forms. So if this describes you, you are in a very large group of people.

Part two is coming, on what tends to happen next. Anything you want us to cover? Comments are open 💬

27/08/2026

Two things people still believe about epilepsy that are simply not true ⚡

Myth one: epilepsy is contagious.
It is not. You cannot catch epilepsy from someone. Not by touching them, not by helping during a seizure, not by sharing a drink. This one sounds almost absurd written down, yet it still shapes how some people behave around a seizure. Which is exactly why it is worth saying out loud.

Myth two: with epilepsy you can never drive again.
Also not true. A diagnosis does not automatically mean the end of driving. After a defined seizure-free period, a licence can be possible again. facebook.com/ibrahim.soyudogan knows that road well. The rules depend on your situation and are assessed individually, so your treating team and the licensing authority are the right people to talk to.

Neither myth is harmless. Both of them shrink the world of people living with , and usually the people repeating them have no idea they are doing it.

Which myth are you most tired of hearing? Drop it in the comments, we are collecting for part two 👀

24/08/2026

After an epilepsy diagnosis, treatment always starts in the same place: medication 🧠

For around two thirds of people, that medication also leads to seizure freedom. That number gets lost in a lot of conversations about epilepsy, so it is worth saying plainly.

The word doing the heavy lifting here is "matched". Anti-seizure medication is not interchangeable. What suits a generalised can be a poor match for a focal one, and vice versa. Finding the right fit depends on knowing which type is actually in play, which is one reason an accurate diagnosis matters so much.

So if the first medication did not work, that is not a dead end. It is often part of the process of finding the one that fits.

Where are you in that journey right now? Still searching, or did you find your fit? Share it in the comments if you feel like it 💬

Please note: this post is intended as general information and does not constitute medical advice. What is suitable in an individual case can only be decided together with your treating medical team.

21/08/2026

Freedom rarely starts big 🧠

It starts with doing the food shop on your own. With saying yes to plans without running the odds in your head first. With sleeping through the night. With one day that was not quietly organised around fear.

When seizures continue despite medication, epilepsy has a way of working its way into almost every decision. Not loudly. It just sits there, in the background, shaping what feels possible.

That is the part people rarely see from the outside. The planning. The mental arithmetic before something as ordinary as a train journey.

We would like to hear from you: what does freedom look like in your everyday life with ? Maybe it is something tiny that nobody else would notice. Share it in the comments 💬

19/08/2026

Two thirds of people with epilepsy become seizure free on medication, usually through their local neurologist. So when does a specialist epilepsy centre come into the picture? 🧠

An epilepsy centre is set up for the more complicated cases. Specialists there work across all forms of epilepsy, with diagnostic procedures and experience that a neurology practice generally cannot offer.

A referral may be worth discussing if seizures continue despite medication, if the diagnosis is still unclear (focal, generalised, or epileptic at all?), if drug resistance is suspected, if side effects are hard to live with, or if you want further options assessed properly.

None of this means anything went wrong before. Some forms of simply take longer to pin down, and a second set of eyes can bring real clarity.

If you are curious where centres offering are located, you can browse our map here: precisis.de/en/find-easee-center/

Have you ever been referred to a specialist centre? What made the difference for you? 💬

17/08/2026

E, A, S, E, E. Five letters standing in for a rather long name 🧠

EASEE® is an acronym for "Epicranial Application of Stimulation Electrodes for Epilepsy". It sounds technical, though what it describes is surprisingly simple.

Epicranial means on top of the skull. The electrode sits between the scalp and the skull bone. The bone itself stays closed, and the brain and major nerves are not touched during this form of ⚡

That was the design intention behind from the start: minimally invasive and fully reversible. For adults living with drug-resistant focal , it can be an option worth talking through.

Curious how something that sits under the scalp actually works? We have broken it down here: precisis.de/en/patients

Which term did nobody properly explain to you at the beginning? Share it in the comments, chances are someone else had the same question 💬

06/07/2026

No improvement despite medication?

Many people with focal epilepsy know this feeling all too well: for around one in three, medication alone isn’t enough. 🤯

Some of these people wait up to 22 years for alternative treatments. But there are options: one of them is our EASEE® neuromodulation system.

Don’t want to wait any longer and want to find out about your options? Then take the self-assessment now and find out in just a few minutes whether EASEE® might be an option for you! Read more on our website:
🧠 https://precisis.de/en/

Please note: The self-assessment is not a substitute for medical advice. Medical decisions should always be made in consultation with your treating doctors.

Adresse

Margot-Becke-Ring 8
Heidelberg
69124

Telefon

+4962216559300

Webseite

https://easee.precisis.de/en/, https://precisis.de/en/

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