VIH'Gilance

VIH'Gilance Placer les patients au coeur de notre projet, écouter, soutenir, orienter, accompagner, prévenir, sensibiliser , ce sont les fondements de notre association.

VIH’Gilance c’est un autre regard

VIH’Gilance c’est l’histoire et la motivation d’un groupe de personnes toutes impliquées et formées dans la lutte contre le VIH/SIDA depuis de nombreuses années : volonté d’agir, d’aller au plus près des populations clefs pour un dépistage précoce et une prise en charge plus rapide, volonté de combattre les idées reçues et les discriminations qui pèsent lourdemen

t sur les épaules des patients. C’est parler autrement, parler du “Vivre avec “ , évoquer les années 90 n’a plus aucun sens en 2024. En 40 ans, la recherche , les traitements tout a changé et le patient VIH a le droit de ne plus se percevoir comme une potentielle source de contamination puisque de multiples études l’ont prouvées Indétectable = Intransmissible . Cela ouvre bien des perspectives aux personnes vivant avec le VIH : ne plus s’empêcher d’avoir une sexualité, ni de tomber amoureux(-se), pouvoir faire des enfants comme n’importe quel couple. De quoi redonner l’envie de prendre soin de soi, d’être observant-e aux traitements et plus globalement de renforcer sa qualité de vie. Répondre aux besoins concrets de ceux que le VIH met en danger (25 000 personnes en France seraient porteuses du virus sans le savoir), en écoutant davantage les patients et en les considérant comme les véritables acteurs de cette épidémie est une des multiples réponses à une nouvelles prévention, une prévention qui sera écoutée !!!

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15/06/2026

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🇺🇸 Our brother David lost his battle with AIDS in 1988.

What an amazing and successful young man. His quick wit and personality is missed everyday. His goal after graduating from Carolina with a major in English was to live in New York and he made that dream a reality. He struggled in the beginning but found his path to success in the fashion industry. First as a buyer for ready to wear ladies at Lord & Taylor and later as a partner in women’s clothing firm. He and his partner Jonathan Hitchcock also a known clothing designer had a fabulous New York lifestyle. The end for them was very sad and David eventually moved home as he needed full time care.

I married my partner Chuck last year and knew David was smiling from above for us. I will always admire his strength and positive outlook on life.

On David’s grave marker per his request were the words of Robert Frost - “Two roads diverged in the woods and I chose the one less traveled.”

We love and miss you everyday David ❤️‍🔥 📖 by Jeffrey Dawkins

C'est avec plaisir que VIH’Gilance sera présente aux côtés du Refuge Manche sur l'édition 2026 de Green River Valley 😏
15/06/2026

C'est avec plaisir que VIH’Gilance sera présente aux côtés du Refuge Manche sur l'édition 2026 de Green River Valley 😏

13/06/2026

Diffusé le 4 juin dernier sur France 3, le documentaire « Les Audacieux·ses », réalisé par Julia Mourri et Clément Boxebeld, raconte l’histoire de seniors-es LGBT+ qui refusent de finir leur vie dans l’isolement ou le retour au placard. Parmi eux-elles figurent aussi des personnes vivant ...

Tous les témoignages publiés par VIH'Gilance sont puissants et certains encore plus 😥🔥🔥🔥
12/06/2026

Tous les témoignages publiés par VIH'Gilance sont puissants et certains encore plus 😥🔥🔥🔥

🇺🇸 In 1992, Jeff Cochran, our friend in South Beach, Miami, tells us he’s known about his positive status for nearly four years. We never knew. He’s only 26 years old. We see him in London and are shocked to learn that this beautiful young man, a successful model, now has a CD4 count of zero. KS has started to appear all over his body. He’s making plans to die in Key West. He says this in a matter-of-fact way. To us such news is increasingly commonplace but always shocking.

Jeff stays with us in London, June 1993. He’s here for radiotherapy to treat a lesion in his mouth. Cancer is attacking his gut, his spleen is enlarged, his liver is failing, his bone marrow no longer produces white blood cells. He’s incredibly thin and he’s covered in KS. That’s what fu***ng AIDS does. It strips away all one’s natural defences and allows every monster that is drifting by entry to feast unhindered. Jeff has no defence against any sort of microscopic attack, nothing. Despite all this, he’s spirited and exhibits no self-pity. I so wish he had a lover with whom he could share this ghastly downward spiral toward death.

September 1993: Jeff stays with us again in London. He has managed to access treatment at St Barts Hospital for the cancer that spreads relentlessly through him. His gut hurts constantly. His will to survive remains undimmed.

Pursuing further treatment, Jeff is an inpatient at St Barts. There I find him Zen-like and accepting, despite the ghastly side effects of the medication, which slowly drips down a permanent line passing through his chest and into his blood. During his “time out” from hospital, he stays with us at Moreton Yard. His health gets worse, if that’s possible. Now, in addition to all else, lymphoma is in his lungs. When I hug him, it’s like holding a living skeleton. He’s fighting hard to hang onto his diminishing life force.

Jeff is having ever stronger chemo to hold the advancing cancer at bay. It’s sapping what little remains of his strength and he’s sick all the time. How much pain is he prepared to accept in order to prolong his life? It’s a personal decision which, in varying ways, many of us may find ourselves having to make.

Jeff is back in hospital in London. CMV has turned him blind. He has no defences to slow its attack. He still makes jokes and is never sorry for himself. I will never forget his courage. When he was getting near to the end of his life, when he had so much pain and so little energy, I remember him telling me: “I need visitors who make me laugh.”

Jeff lies, curled up, on his hospital bed. He can no longer support his head on his wasted neck. All his energy and strength are gone. Humour and irony still hang amongst the few frail words which come from him. The doctors have upped the amount of morphine to dull the constant pain. He is fading but remains in control. I bid him farewell. His parents sit tearful and resigned beside him. I remind him of all the joyous sun-filled times we’ve spent together. He tries to respond but I tell him no. I hold his hand and stroke his hair. His breath is shallow and gurgling; his body now only bone, covered by the thinnest tissue of skin. He is yellow and grey amongst white sheets. Calm, not frightened, accepting, going. I kiss his living face one final time. Jeff dies at 3am the following morning.

At Jeff’s cremation, Michelle Paradise, his actress friend, reduces us to tears: “I was the older sister he never had. He was the younger brother I never had.”. A tear finds its way to the end of her nose. There it hangs, a perfect glistening droplet, reflecting light. His parents, so brave, give each of us a packet of tulip bulbs: ‘In memory of Jeff – may new growth and beauty bring fond memories.’ 📖 by Derek Frost

11/06/2026
11/06/2026

En novembre 2025, les résultats d’une vaste enquête inédite ― ANRS - Trans & VIH ― sur les femmes trans vivant avec le VIH en France ont fait l’objet d’un article scientifique publié dans le BEH (Bulletin épidémiologique hebdomadaire). Retour sur les points clefs ― vulnérabilités sociales, obstacles administratifs, accès aux soins ― avec Liam Balhan, premier auteur de cet article. Interview : https://www.aides.org/actualite/lactu-remaides-femmes-trans-vih-sante-menacee-vulnerabilites

08/06/2026

Campagne de nos amis-ies belges 🙂

08/06/2026

Festive c'est certain et VIH'Gilance sera présente aux côtés des pompiers pour la prévention 😏

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