Alpha-1 Europe Alliance asbl

12/10/2026

🫁 Sharing lives: 𝗹𝘂𝗻𝗴 𝘁𝗿𝗮𝗻𝘀𝗽𝗹𝗮𝗻𝘁𝗮𝘁𝗶𝗼𝗻 in Alpha-1

For some people living with Alpha-1 Antitrypsin Deficiency ( ), lung transplantation can offer a new opportunity when advanced lung disease significantly affects everyday life.

Thanks to advances in transplantation, surgery and long-term care, people with AATD can benefit from transplantation and continue living life beyond their previous limitations.

Behind every transplant is an extraordinary act of generosity — one person’s decision to donate can change another person’s life.

💙 This European Donation Day, let’s recognise the donors, families and healthcare professionals who make transplantation possible.

Sharing lives. Sharing hope.

10/10/2026

🫶 Sharing lives.

Today we mark 𝗘𝘂𝗿𝗼𝗽𝗲𝗮𝗻 𝗗𝗮𝘆 𝗳𝗼𝗿 𝗢𝗿𝗴𝗮𝗻, 𝗧𝗶𝘀𝘀𝘂𝗲 𝗮𝗻𝗱 𝗖𝗲𝗹𝗹 𝗗𝗼𝗻𝗮𝘁𝗶𝗼𝗻 (𝗘𝗗𝗗) — a day to recognise the profound impact that donation can have on people living with serious and life-threatening conditions.

For people living with Alpha-1 Antitrypsin Deficiency ( ), transplantation can become a life-changing option when the condition reaches an advanced stage.

A donated organ can mean more than a transplant. It can mean more time, more possibilities and a new chapter in life.

💙 This European Donation Day, let’s raise awareness of the importance of organ, tissue and cell donation and the difference it can make.

Sharing lives. Sharing hope.



Alpha 1 Österreich 🇦🇹 (Austria) Alpha-1 plus 🇧🇪 (Belgium) Alpha-1-Antitrypsin in Deutschland 🇩🇪 (Germany) Alpha-1 Foundation Ireland 🇮🇪 (Ireland) Associazione Nazionale Alfa-1-AT 🇮🇹 (Italy) Longfonds 🇳🇱 (Netherlands) Alfa-1 Norden / Alpha-1 Nordic 🇩🇰 🇫🇮 🇳🇴 🇸🇪 (Denmark, Finland, Norway, Sweden) AA1P- Associação Alfa 1 de Portugal 🇵🇹 Asociatia Alfasim 🇷🇴 (Romania) Alfa España 🇪🇸 (Spain) Fundación Lovexair 🇪🇸 (Spain) Alpha-1 Switzerland 🇨🇭 (Switzerland) Alpha-1 UK 🇬🇧 (UK)

09/10/2026

As comes to a close, we join the global community of patients who rely on Plasma-Derived Medicinal Products (PDMPs) in thanking all plasma donors for their generosity. 🩸 From the Alpha-1 community, thank you for helping make treatments possible for people living with and many other conditions. 💙 𝑻𝒉𝒂𝒏𝒌 𝒚𝒐𝒖, 𝒅𝒐𝒏𝒐𝒓𝒔!

09/10/2026

Excited about this upcoming event! The new Alpha-1 Patient Advisory Group puts our communitys voices at the heart of research and awareness.
Join the free webinar on 4 November to learn more and get involved. Register now 👇

🌟 We have just launched a new Patient Advisory Group for people living with alpha-1 antitrypsin deficiency (AATD)!

In just 1 month, we are hosting a free webinar for people living with and affected by AATD: https://europeanlung.org/en/get-involved/events/alpha-1-patient-webinar-latest-research-updates-and-live-qa/

Join us to hear from people living with the condition, get the latest research updates, learn more about the new Patient Advisory Group and discover opportunities to get involved in research and awareness activities. There will also be a live Q&A with experts and members of the community.

📅 4 November 2026
🕠 18:30–19:45 CET
💻 Online

✅ Register now: https://us02web.zoom.us/webinar/register/WN_pGjSO8PVTd21_wvK6PpmFQ

👥 Learn more about the Alpha-1 Patient Advisory Group: https://europeanlung.org/en/people-and-partners/patient-advisory-groups/alpha-1-patient-advisory-group/



This webinar is delivered with the support of our partners the European Alpha-1 Research Collaboration (EARCO), Respiratory Society, -1 Europe Alliance asbl, Alpha1 Deutschland e.V. & Alpha-1 UK.

08/10/2026

shines a light on the life‑saving power of plasma.🩸

For the community, plasma donations mean access to the only therapy that can slow lung damage and protect long‑term health.

Each Alpha‑1 patient needs about 900 donations every year to receive augmentation therapy — a treatment made entirely from the plasma of generous donors.

Augmentation therapy helps maintain healthy AAT levels, protect lung tissue, and improve daily life.

This International Plasma Awareness Week, we thank you and honour the donors who make this possible and call for stronger support for plasma collection across Europe. 💛 Plasma donors give Alpha‑1 patients more time, more stability, and more hope.

07/10/2026

Europe needs more life‑saving plasma! 🌍🩸

Around 300,000 patients across rely on plasma‑derived medicinal products (PDMPs) to manage chronic and rare diseases. Yet donor numbers remain too low, and European plasma collection continues to fall short of rising demand — forcing the EU to depend heavily on plasma imported from the United States.

This , we call for stronger collaboration between public and private sectors to expand plasma collection in Europe and secure the therapies patients depend on.

For people living with Alpha‑1 Antitrypsin Deficiency ( ), plasma donation isn’t optional — it’s a lifeline.

💛Learn more at: https://www.euneedsmoreplasma.com/


PPTA Europe Plasma Protein Therapeutics Association
Alpha 1 Österreich 🇦🇹 (Austria) Alpha-1 plus 🇧🇪 (Belgium) Alpha-1-Antitrypsin in Deutschland 🇩🇪 (Germany) Alpha-1 Foundation Ireland 🇮🇪 (Ireland) Associazione Nazionale Alfa-1-AT 🇮🇹 (Italy) Longfonds 🇳🇱 (Netherlands) Alfa-1 Norden / Alpha-1 Nordic 🇩🇰 🇫🇮 🇳🇴 🇸🇪 (Denmark, Finland, Norway, Sweden) AA1P- Associação Alfa 1 de Portugal 🇵🇹 Asociatia Alfasim 🇷🇴 (Romania) Alfa España 🇪🇸 (Spain) Fundación Lovexair 🇪🇸 (Spain) Alpha-1 Switzerland 🇨🇭 (Switzerland)Alpha-1 UK 🇬🇧 (UK)

06/10/2026

🩸 Plasma makes up more than half of what flows in our veins — and it carries the proteins and nutrients that keep us alive.
It helps regulate blood pressure, fight infections, support clotting, and deliver electrolytes to our muscles.

And when donated, plasma becomes 𝗹𝗶𝗳𝗲‑𝘀𝗮𝘃𝗶𝗻𝗴 𝗺𝗲𝗱𝗶𝗰𝗶𝗻𝗲𝘀 for people living with rare conditions like Alpha‑1 Antitrypsin Deficiency ( ), where augmentation therapy is often the only treatment available.

💛 Plasma is precious. Donors make hope possible.

This week, we stand with the global community to celebrate plasma donors and raise awareness of the therapies that depend on them.

PPTA Europe Plasma Protein Therapeutics Association

05/10/2026

𝗜𝗻𝘁𝗲𝗿𝗻𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗣𝗹𝗮𝘀𝗺𝗮 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗪𝗲𝗲𝗸 is here!💛

A week dedicated to boosting global awareness of plasma collection, celebrating donors, and strengthening understanding of plasma‑derived medicines. 💉
The Alpha‑1 Europe Alliance is proud to join the global community in this campaign, standing with Alpha‑1 patients across Europe to amplify the message that plasma saves lives.

Learn more and take part at www.plasmaweek.org 💪



Alpha 1 Österreich 🇦🇹 (Austria) Alpha-1 plus 🇧🇪 (Belgium) Alpha-1-Antitrypsin in Deutschland 🇩🇪 (Germany) Alpha-1 Foundation Ireland 🇮🇪 (Ireland) Associazione Nazionale Alfa-1-AT 🇮🇹 (Italy) Longfonds 🇳🇱 (Netherlands) Alfa-1 Norden / Alpha-1 Nordic 🇩🇰 🇫🇮 🇳🇴 🇸🇪 (Denmark, Finland, Norway, Sweden) AA1P- Associação Alfa 1 de Portugal 🇵🇹 Asociatia Alfasim 🇷🇴 (Romania) Alfa España 🇪🇸 (Spain) Fundación Lovexair 🇪🇸 (Spain) Alpha-1 Switzerland 🇨🇭 (Switzerland) Alpha-1 UK 🇬🇧 (UK) PPTA Europe Plasma Protein Therapeutics Association

29/09/2026

🇬🇧 Mapping Alpha-1 care resources in the 𝗨𝗻𝗶𝘁𝗲𝗱 𝗞𝗶𝗻𝗴𝗱𝗼𝗺

The has a network of specialised centres and an active patient community supporting people living with Alpha-1 Antitrypsin Deficiency ( ), while research and clinical trial opportunities continue to evolve.

🔹 Access to specialised expertise:
The UK has four specialist Alpha-1 centres located in London, Cambridge, Coventry & Warwickshire, and Birmingham, providing expert diagnosis, multidisciplinary care, and long-term follow-up for people living with Alpha-1.
📍https://alpha1.org.uk/get-support/centres-with-alpha-1-expertise-in-the-uk/

🔹 Access to treatment
Augmentation therapy is not currently approved or reimbursed by NICE and NHS England for Alpha-1-related emphysema or COPD. While the UK is rebuilding its domestic plasma medicines programme, Alpha-1 augmentation therapy is not yet included.

🔹 Research and European collaboration
The UK participates in the Registry, contributing to European Alpha-1 research. As the clinical trial landscape continues to evolve, patients interested in participating should speak with their Alpha-1 specialist about the most suitable opportunities.
📍 Clinical trial guide: https://alpha1.org.uk/get-support/clinical-trials/

🔹 Patient support and awareness
Alpha-1 UK provides information, peer support, patient events, and awareness activities throughout the year, including its annual Alpha-1 Awareness Month campaign in November.

🔗 More information: https://alpha1.org.uk/

Together, these resources help strengthen access to specialist care, research opportunities, and patient support for people living with Alpha-1 across the UK.

25/09/2026

🫁🌍 World Lung Day 2026 | A Lifetime of Lung Health

Healthy lungs are essential at every stage of life — from childhood through adulthood and older age. But for people living with Alpha-1 Antitrypsin Deficiency ( ), protecting lung health can be especially important.

🧬Alpha-1 is a rare genetic condition that can increase the risk of serious lung disease, including emphysema. Early diagnosis, prevention and access to appropriate care can make a real difference in protecting lung health over a lifetime.

This , we join the global respiratory community in championing “A Lifetime of Lung Health” and raising awareness of the importance of protecting our lungs at every age.

💡 Simple steps can help protect lung health:
🚭 Be smoke-free
👟 Stay active
💉 Keep vaccinations up to date
🌿 Support a healthier environment
🍎 Eat well

💛 Together, we can help create a future where everyone — including people living with Alpha-1 — has the opportunity to enjoy healthier lungs throughout life.



Forum of International Respiratory Societies - FIRS Alpha 1 Österreich 🇦🇹 (Austria) Alpha-1 plus 🇧🇪 (Belgium) Alpha-1-Antitrypsin in Deutschland 🇩🇪 (Germany) Alpha-1 Foundation Ireland 🇮🇪 (Ireland) Associazione Nazionale Alfa-1-AT 🇮🇹 (Italy) Longfonds 🇳🇱 (Netherlands) Alfa-1 Norden / Alpha-1 Nordic 🇩🇰 🇫🇮 🇳🇴 🇸🇪 (Denmark, Finland, Norway, Sweden) AA1P- Associação Alfa 1 de Portugal 🇵🇹 Asociatia Alfasim 🇷🇴 (Romania) Alfa España 🇪🇸 (Spain) Fundación Lovexair 🇪🇸 (Spain) Alpha-1 Switzerland 🇨🇭 (Switzerland) Alpha-1 UK 🇬🇧 (UK)