Epilepsy Society

Epilepsy Society We are the UK’s only charity transforming the lives of people with epilepsy through world-leading research, advocacy and care. We are here for you.

People are at the heart of everything that we do; and we hope to see the day when epilepsy is irrelevant. Our vision is a full life for everyone affected by epilepsy. We want everyone affected by epilepsy to have the best opportunity for a full life – as free from seizures as possible. We set out to make a difference to every person affected by epilepsy whatever their background, however seriously

it affects them, and whether they have the condition themselves or are close to someone with epilepsy.

A huge thank you to all at Strata Homes Limited, who took on the Yorkshire Mountain Biking Marathon earlier this month t...
31/07/2026

A huge thank you to all at Strata Homes Limited, who took on the Yorkshire Mountain Biking Marathon earlier this month to raise funds in memory for their colleague Tom.

Tragically, Tom passed away in February this year due to epilepsy. He was only 26 years old.

His colleague Kate said: “Everyone liked Tom and he is dearly missed. We wanted to do something so raising funds for the Epilepsy Society seemed appropriate in the hope that they will be able to support others and their families who live with epilepsy.”

Tom’s father, Tim, shared the following about his son: “Thomas had a presence when he walked in a room, a beautiful smile and the greenest eyes which could melt any cast iron heart. Yes, Thomas had epilepsy however, he never let the condition define the person he was. Instead he endeavoured to educate others through his fund raising for The Epilepsy Society”.

So far, an amazing £2,925 has been raised. If you would like to make a donation, please click here: https://www.justgiving.com/page/kate-shaw-1?msockid=301790dd0dd4623707ed85220c2f6347&utm_source=facebook&utm_medium=social&utm_campaign=epilepsysociety&utm_content=fundraising

Thank you to everyone who has already completed our survey about medication supplies. We are closing the survey tomorrow...
29/07/2026

Thank you to everyone who has already completed our survey about medication supplies. We are closing the survey tomorrow so we can analyse the results in time for the political party conferences.

We have heard from a number of people who have experienced difficulties in getting their medication and others who have felt anxious about securing future prescriptions.

To help us better understand whether you are facing any issues in getting your medication for yourself, or someone you care for, please complete our survey. It only takes a few minutes.

To take the survey click on the link in our bio.

Thank you to everyone who has already completed our survey about medication supplies. We are closing the survey tomorrow...
29/07/2026

Thank you to everyone who has already completed our survey about medication supplies. We are closing the survey tomorrow so we can analyse the results in time for the political party conferences.

We have heard from a number of people who have experienced difficulties in getting their medication and others who have felt anxious about securing future prescriptions.

To help us better understand whether you are facing any issues in getting your medication for yourself, or someone you care for, please complete our survey. It only takes a few minutes.

To take the survey click here: https://www.surveymonkey.com/r/ZSV58ZW?utm_source=facebook&utm_medium=social&utm_campaign=epilepsysociety&utm_content=medicationshortages

If you're going on holiday this summer, it’s important to be prepared, especially if you or someone you’re travelling wi...
29/07/2026

If you're going on holiday this summer, it’s important to be prepared, especially if you or someone you’re travelling with has epilepsy.

We’ve put together some practical travel tips on medication, insurance, flights, vaccinations and healthcare coverage.

For more detailed information as well as links to other resources, visit our website: https://epilepsysociety.org.uk/living-epilepsy/travel-and-holidays?utm_source=facebook&utm_medium=social&utm_campaign=epilepsysociety&utm_content=epilepsyinformation

Stay safe and enjoy your summer break. 💜

Contribute to the 1 in 100 projectIf you live with epilepsy or support someone who does, please consider contributing a ...
28/07/2026

Contribute to the 1 in 100 project

If you live with epilepsy or support someone who does, please consider contributing a 100-word piece sharing a snapshot of your lived experience, including a creative title to help PhD student Jessie Buckle. A qualified architect, she is looking to influence building standards and climate change to make them more inclusive for people with epilepsy.

The 1 in 100 project explores the reality of epilepsy through a unique constraint: lived experiences told in 100 words.

Why 100 words?

In the UK, 1 in 100 people live with epilepsy.

Why does this matter?

By gathering these stories alongside her questionnaires and PhD thesis, she is building
the evidence needed to:

💜Ensure the lived reality of epilepsy is represented.

💜Influence building standards and spatial inclusivity.

💜Inform climate change policies to better protect vulnerable communities.

💜Demonstrate personal stories hold equal weight to traditional data and contribute to a more informed understanding of epilepsy.

💜Raise awareness and reduce stigma. 💌

If you are interested, please email Jessie at [email protected]

If you’re currently studying and deciding on a university course or other higher education options, now is a good time t...
27/07/2026

If you’re currently studying and deciding on a university course or other higher education options, now is a good time to look at what support is available.

Our website includes information on things like Disabled Students’ Allowance (DSA) and Personal Independence Payment (PIP), as well as practical advice to help you prepare for the next step.

Find out what support you may be entitled to click here: https://bit.ly/4exKYOM

For many parts of the country, very high temperatures are forecast for the bank holiday weekend and into next week.Every...
24/07/2026

For many parts of the country, very high temperatures are forecast for the bank holiday weekend and into next week.

Everyone should be careful in the hot weather, and if you have epilepsy you may want to take additional precautions.

We’ve put together some information on staying cool in the sun, along with advice for staying safe while swimming and storing medication.

Remember, if you're struggling you can always call our free helpline or use our webchat service for additional information and resources.

Helpline: 0300 102 0024
Webchat: https://epilepsysociety.org.uk/helpline?utm_source=facebook&utm_medium=social&utm_campaign=epilepsysociety&utm_content=climatechange

Good luck to Matty Robertson and all the athletes competing at the Commonwealth Games, which get underway today!Matty, a...
23/07/2026

Good luck to Matty Robertson and all the athletes competing at the Commonwealth Games, which get underway today!

Matty, a Paralympic medallist, has been an incredible advocate for epilepsy awareness. He has spoken openly about managing epilepsy while training and competing as a cyclist for England and Great Britain.

Most recently, Matty supported Epilepsy Society's Challenge 100 campaign, sharing training tips and helping to keep fundraisers motivated as they walked, ran or cycled 100 miles throughout the cold January weather!

You can catch Matty in action in the C1–3 Kilo on Friday 31st July and the pursuit on Sunday 2nd August.

Wishing Matty and all the athletes the very best of luck! 💜

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