Amazing Grace Davenport

Amazing Grace Davenport I have NAA10 - Ogden syndrome this means I have many complex needs, I am very rare 1 in 200 in the world.

At last I am home and in my nice very comfy chair which mummy was up very early so I could have my feed, I have had a sl...
14/06/2026

At last I am home and in my nice very comfy chair which mummy was up very early so I could have my feed, I have had a sleep and now feed number 2 of 5 for today.

Daddy & George have been cleaning up the bits of mess George has made

Good morning everyone EEG is off a little bit of a bad hair day today Mummy has been and give me a wash and sorted my ha...
10/06/2026

Good morning everyone

EEG is off a little bit of a bad hair day today

Mummy has been and give me a wash and sorted my hair out now

To much excitement for me and having some sleep now

Much love to everyone amazing grace Davenport

Daddy went and spoke the eeg team and look what they done me lol, eeg 24hr to save a trip next month
09/06/2026

Daddy went and spoke the eeg team and look what they done me lol, eeg 24hr to save a trip next month

I have gone for some fresh air at last
08/06/2026

I have gone for some fresh air at last

I have the best mummy in world she has been fantastic looking after me, I know mummy has had a very rough and difficult ...
07/06/2026

I have the best mummy in world she has been fantastic looking after me, I know mummy has had a very rough and difficult week, but I am on the mend and getting ready to escape my safe bed and hospital, come on mummy can we brake out of here :-)

Without mummy daddy and George it wouldn’t be has fun been in here and they have all looked after me

05/06/2026
Well the last 24hrs have been so tough for mummy and daddy, doctors to MAC hospital then moved to Manchester kids, found...
04/06/2026

Well the last 24hrs have been so tough for mummy and daddy, doctors to MAC hospital then moved to Manchester kids, found out to have a twisted bowel which last night was operated on and today I have a stoma, which is where the bag goes, the nice nurses have given me meds and now I am going on the ward, amazing grace Davenport is escaping the ICU again

So last night mummy took me to Macclesfield hospital, due to not been well, after some time and checks the kind doctor g...
03/06/2026

So last night mummy took me to Macclesfield hospital, due to not been well, after some time and checks the kind doctor got me an ambulance to Manchester kids hospital, I have something wrong with my bowel, I am now having 2 mins sleep and hopefully the surgeon to see me

Mummy has been amazing and daddy has been running round getting my brother and sorting things out

Unfortunately we have a very poorly grace, she’s been admitted last night to hospital due to a very distended tummy, she...
03/06/2026

Unfortunately we have a very poorly grace, she’s been admitted last night to hospital due to a very distended tummy, she’s in alot of pain and discomfort. She has just had a chest x ray, we will keep you all updated ### please pray for grace xx

Well what a day we have had two visits to hospitals, first to Macclesfield hospital to replace Graces peg, due to it com...
07/05/2026

Well what a day we have had two visits to hospitals, first to Macclesfield hospital to replace Graces peg, due to it coming out,

Followed by a visit to the heart specialist at Manchester children’s hospital, but then fireman Sam had to turn up due to a fire alarm at the hospital

What an eventful day xx but grace still has a smile, Grace still has issues with her heart but she has the best support ever ###x thanks everyone for your love xx

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Congleton

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