Mason: My Super Sonic Survivor

Mason: My Super Sonic Survivor 🎗️ Mason | Choroid Plexus Carcinoma Warrior
💛 Helping Mason fight Brain Cancer
🧠 Fight #2
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Follow his journey and join Team Mason 💜

04/08/2026

PLEASE WATCH

Honestly nobody has any idea how hard this hit me watching this .. 😓💔

The Rare Cancers Bill is an important step, but now we absolutely need sustained investment to turn hope into better treatments and ultimately, cures. Thank you so much for continuing to use your voice Archie 💛

This is why raising awareness matters. This is why sharing Mason’s journey matters. There is not enough research, not enough money invested, not enough awareness. We need help to find a cure. Please continue to keep on following, sharing & raising awareness ❤️‍🩹🧠🎗️

Something NEEDS to change!!!

31/07/2026

31/07/2026

Today the pathology results were back following Mason’s brain surgery. The results showed what we were expecting, Mason has a Grade 3 choroid plexus carcinoma, again.

I’ve always known Mason’s cancer is serious. I’ve lived and breathed it every single day. But I don’t think I’d ever truly allowed myself to put into perspective just how much of Mason’s life is resting on the treatment decisions that are about to be made. Recurrences and relapses make things so much harder moving forward.

The next few weeks aren’t just about choosing a treatment plan. They’re about choosing the treatment that gives my little boy the best chance at life.

And when you really let that sink in… it’s absolutely terrifying.

One of the hardest things about Mason’s diagnosis is how incredibly rare this type of brain tumour is. Unfortunately that’s one of the biggest problems we face. Because there are so few cases, there isn’t a clear answer about the best way to treat it. There isn’t a straightforward plan or a treatment they know will definitely work because there simply aren’t enough cases to compare it to.

What we do know is that Mason’s tumour has resisted chemotherapy, so there is no doubt that radiotherapy is now the next step. But deciding on the type of radiotherapy isn’t straightforward. The team has to decide which type of radiotherapy gives him the best chance.

His team are now discussing his case with specialist advisory panels across the UK and America. They’re bringing together as many experts as they can because this tumour is so rare, and they want to make the best possible decision for Mason. I’m feeling so grateful that they’re leaving no stone unturned.

As his mum, there is nothing harder than knowing I can’t fix this. I would take every bit of this away from him if I could. Because he doesn’t deserve any of it. All I can do is put my trust in the incredible people caring for him, hold his hand through every step, and hope with everything I have that they find the treatment that gives him the future he deserves.

Comment a purple heart below to show your support for Mason ⬇️ it’s his favourite colour at the moment 💜💜💜

A little Mason update ✨Mason got home over the weekend, much earlier than expected after his brain surgery. He’s been re...
28/07/2026

A little Mason update ✨

Mason got home over the weekend, much earlier than expected after his brain surgery. He’s been recovering really well and was more than ready to get back to his home comforts. He’s on minimal pain medication now and is continuing to recover well.. actually better than I thought he would, he continues to amaze me every day!! ❤️‍🩹

The weekend was all about resting, relaxing and making the most of being home. We managed a trip to Smyths for a few goodies, had some lovely visits from family and friends, and of course we had to pimp out his wheelchair with some cool new wheels 😎 because they have to match his amazing personality, don’t they?! Thank you for all the help with the order Niftikit ♿️💜

Today was a trip back to the hospital to have his wound checked, cleaned and re-dressed. Everything is looking really good. (Don’t worry, I won’t be posting the wound photos on here… I’m sure not everyone would appreciate those! 🥴)

We’re back at the hospital next week for various tests and a lumbar puncture before we move on to the next big step in Mason’s journey – radiotherapy treatment. It’s definitely all go at the minute, with lots of hospital appointments, planning and plenty of back and forth, but things are moving along quickly.

As always, thank you all so much for your continued love, support and messages. They really do mean the world to us & Mason loves to read and hear the messages left for him!

Much love,
Team Mason 🎗️💛

26/07/2026

Today we’re sharing a very special message from Jeff, winner of *Beast Games - Season 1*. 💙

Jeff is halfway across the world, yet he still took the time to send Mason this incredible message ahead of his brain surgery at the start of this week. It’s a reminder of just how far Mason’s story has reached and the amazing connections he’s made along the way.

Mason and Jeff shared an instant connection through their experiences with brain health. Many know Jeff's story and his incredible advocacy for his son Luke, who lives with Creatine Transporter Deficiency (CTD), a rare genetic brain disorder. Mason's own journey through brain cancer created an immediate bond built on understanding, resilience, and hope. Watching them connect was a powerful reminder that even the hardest journeys can bring people together in the most unexpected and meaningful ways. ❤️

The love, support, and kindness Mason continues to receive from people across the globe is truly overwhelming. He has touched so many hearts, and it means the world to see such genuine support from someone like Jeff. Moments like these remind us that kindness knows no distance. 🌍💚

#831

26/07/2026

That day in June when we went on a boat cruise in Paris and Mason spent the afternoon with Mr Beast & his crew for filming 🤩🤩🤩 MrBeast how amazing!! 💙🩷

Second brain surgery?? Smashed it mate 😎He never ever fails to amaze me!! 🤩Cancer can take a lot away from you, but it w...
24/07/2026

Second brain surgery?? Smashed it mate 😎
He never ever fails to amaze me!! 🤩

Cancer can take a lot away from you, but it will never take away your incredible smile my boy!

Let’s get you home to rest champ 🧠🥊

Edinburgh Children's Hospital Charity
Brain Tumour Research


💛🎗️💛

23/07/2026

Every step is a victory 💪🏻
Less than 24hrs after major brain surgery and up on his feet being cleared by physio already - this boys made of strong stuff 🧠🥊👏🏻🤩

The update you’ve all been waiting for .. ❤️‍🩹Mason is back from his brain surgery and is doing well all considering wha...
22/07/2026

The update you’ve all been waiting for .. ❤️‍🩹

Mason is back from his brain surgery and is doing well all considering what he’s just endured! He’s very tired and in quite a bit of pain with his head, which is completely expected after such a major operation, but it’s all part of the recovery process. He’s been a bit sick aswell but also normal post brain surgery and being closely monitored. For now, it’s all about pain relief, plenty of rest, sleep, and letting his little body heal.

The most important thing is that he is alert, responding well, and his pupils are reacting as they should. Couldn’t be more relieved!

The incredible neurosurgeon who performed today’s surgery is also the surgeon who operated on Mason before, so I already knew he was in the very best hands. She’s confident that all of the tumour has been removed, however an MRI scan on Friday will confirm this to double check. Once again, she has done an amazing job, and we are so incredibly grateful for her skill, care, and dedication.

First step of fight number 2 complete ✅🧠❤️‍🩹
The next few days will be focused on his recovery. Mason is such a little fighter, and we’re so proud of how brave he has been through all of this. 💛🎗️💛

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