11/09/2026
Why are we so invested in making people push harder along established routes, when human intelligence, self-knowledge and genuine persistence might be found in creating another way? We seem far more comfortable asking people to increase their effort than questioning whether the route itself still makes sense.
For people with chronic conditions and disabilities that are fluctuating or largely invisible, capability can easily be mistaken for capacity. Once somebody has been seen working, travelling, dancing or managing well, that visible moment becomes the standard they are expected to sustain.
We reward persistence when it takes a familiar form: working the expected hours, maintaining the expected pace and continuing to do things in ways society already recognises. Changing the method, reducing the load or using support can be interpreted as giving up.
Finding another route may be one of the most intelligent responses available.
When we are in survival, however, it can be difficult to see beyond keeping the existing structure standing. We use our remaining energy trying to cope better with the same life.
I know this because becoming a mum as a neurodivergent woman with chronic illness led me into burnout. I spent years trying to make the old ways work through effort. Now I understand much more about what drains me, what gives me energy and what I need in order to function sustainably.
Self-knowledge is part of finding another way. So is knowing what support will make a genuine difference and where to find it. This is much of what I do in my work: looking beneath the immediate difficulty, making sense of the wider pattern and helping people find routes that work with who they are.
For me, “never give up” now means staying committed to the life I want while allowing the method to change. It means finding ways to be me without continually paying for it with my health.
When disabled people are judged by how much they can produce, how hard they will push and how little support they require, we keep locating the failure in the individual.
What if disabled people haven’t given up? What if society has given up on finding another way?