28/07/2026
One of the first books I read (or listened to) during my own recovery was the book "Breath" by .
It's a book I recommend now to any of my group members or 1-1 clients because it's amusing, informative and fairly accessible. It's also packed full of so much good stuff.
When I first read this book, the one thing that jumped out at me the most was this quote - "you are the pilot, not the passenger"
With an illness like or ME/CFS it's really easy to feel completely out of control - your body is not your own, your symptoms are EVERYWHERE, you have no control over anything and you feel terrible.
When I first became unwell I had no idea what to do or where to start. And it took me over a year to feel like I had any sort of control (and even then it wasn't much)
But over time I did manage to take back a bit of control - finding the things that help, knowing what to do (or what not to do) and when. And over time I began to feel a bit more of a "pilot" in my own recovery, in my own life, than I did before.
Episode 193 explores this quote in more detail and how to apply it to your own recovery.
https://www.buzzsprout.com/1835170/episodes/17969906
www.LongCovidPodcast.com