29/05/2026
Bramacare has coordinated an open letter, now covered by ITV News, calling for a National Eating Disorder Death Register. When someone dies from cardiac arrest, organ failure, or su***de caused by an eating disorder, that underlying cause must be recorded - not swallowed by statistics.
An FOI request has since revealed that just 29 deaths linked to eating disorders were officially recorded between 2024 and 2025. Not because eating disorders are rare, or any less deadly but because the way deaths are classified allows eating disorders to disappear from the record entirely.
With at least 1.25 million people in the UK living with an eating disorder, and anorexia nervosa carrying the highest mortality rate of any psychiatric illness, this is a public health crisis hidden in plain sight.
If we are serious about saving lives, we must first be serious about counting them.
Thank you to everyone who signed the letter and has raised awareness on such a critical issue:
Vanessa Longley, CEO of Beat
Sarah Hughes, CEO of Mind Professionals
Hope Virgo, Mental Health Campaigner and Secretariat for the APPG on Eating Disorders / Dump The Scales
Dr Simon Opher MP
Richard Quigley MP
Wera Hobhouse MP
Laetitia Beaujard-Ramoo Beaujard, CEO of Bramacare
Agnes Ayton, Consultant Eating Disorder Psychiatrist, Oxford Health NHS Foundation Trust
Helen Missen, Campaigner at F.E.A.S.T.
Suzanne Baker, Carer Representative at F.E.A.S.T.
David Viljoen, Consultant Psychologist
Jodie G, Digital Communications, Accessibility and Inclusion Lead at Dump The Scales
Hannah Hickinbotham, Founder of The Full of Beans Podcast
Anna Carnegie, Researcher and person with lived experience
James Downs, Mental Health Campaigner
Ellie Smith, person with lived experience
Rowan Miller, Development Director at REDCAN UK
Anne Fry, CEO of Eating Distress North East
Claire Jackson MBACP (Accred), Founder and Executive Director of Caraline
Mandy Scott, Founder of Personalised Eating Disorder Support
Paula Blight, CEO of SWEDA
Alana W., CEO of SYEDA
Julie Hogg-Weld, Development Manager of SupportED
Daniel Magson, CEO of First Steps ED
Joanne Ormiston-Booth, Service Manager at FREED
Counting deaths alone will not end these tragedies. But without accurate measurement, effective action is impossible.
Please see here: https://www.youtube.com/watch?v=emVVvfKS-F8