The Pernicious Anaemia Society

The Pernicious Anaemia Society We are a registered charity that exists to provide information, help and support to sufferers of Pernicious Anaemia (PA), including their families and friends.

We also strive to improve current and future diagnosis and treatment of Pernicious Anaemia.

🌿 "Preventative healthcare isn't a luxury - it's the bedrock of a resilient NHS."For people with Pernicious Anaemia, thi...
10/09/2026

🌿 "Preventative healthcare isn't a luxury - it's the bedrock of a resilient NHS."

For people with Pernicious Anaemia, this couldn't be more relevant.

PA is an autoimmune condition. The immune system attacks the cells that allow B12 to be absorbed - meaning no amount of dietary change fixes it. Replacement therapy, usually in the form of injections, is required for life.

That's not a burden patients chose. But how that treatment is delivered? That's something we can change.

Right now, most PA patients get a clinical appointment every 8 to 12 weeks - a nurse or GP visit, repeated indefinitely, for a treatment that many patients could safely manage themselves.
Self-administration makes lifelong treatment sustainable - for patients and for the NHS.

Fewer clinical appointments means freed-up NHS time and resources

Treatment at the right frequency - guided by symptoms, not a fixed date - means better outcomes and fewer complications

Less travel and fewer appointments means less disruption to patients' working and family lives

Greater independence means better quality of life

And as research into alternative B12 delivery methods develops - from pharmacy access to technologies like microneedles - the opportunity grows to make lifelong autoimmune treatment more flexible, more accessible, and more sustainable for everyone who needs it.

This is exactly the kind of systemic patient led thinking that the Pernicious Anaemia Society represents. ✨

We are beginning to see NHS trusts listen to our evidence and logic! Let's keep pushing.

This is the year things change.

💜 Today is the day.The B-12 Alliance House of Commons Reception takes place today at the Palace of Westminster—bringing ...
10/09/2026

💜 Today is the day.

The B-12 Alliance House of Commons Reception takes place today at the Palace of Westminster—bringing patients, advocates, clinicians, researchers, MPs and health policymakers together to address the urgent need for change in B12 care.

For PAS, this is one of the most significant moments in our 20-year history. Today, the patient stories, research and evidence our community has built over two decades will be heard in the room where policy can change.

Please continue sharing and supporting this campaign. Every voice helps strengthen the call for better diagnosis, individualised treatment and an end to preventable harm.

🔗 https://www.b12alliancewestminster.org.uk/

✨ 20 Years of Education, Research & Support. This Year Things Change.

 members have worked so hard for this event, and we will look forward to telling you all about very soon ! We are still ...
09/09/2026


members have worked so hard for this event, and we will look forward to telling you all about very soon !
We are still trying to raise money to cover the costs of the event so if you can help in any small way, it would be greatly appreciated. Thank you

The Pernicious Anaemia Society

🏛️ Tomorrow the Pernicious Anaemia Society will be a the House of Commons Reception with the .

For 20 years, we have listened to patients. We've heard the stories of missed diagnoses, dismissed symptoms, and treatment that doesn't meet individual needs. We've funded research, educated healthcare professionals, and supported thousands of people to advocate for themselves.

And now we're taking all of our experience and adding it to clinicians and researchers in the cluB-12 expert environment

On 10th September 2026, PAS joins the B12 Alliance at a Reception at the House of Commons - bringing MPs, health policymakers, and leading medical experts face to face with the reality of B12 deficiency in the UK.

Why the B12 Alliance? Because this is bigger than one condition and one organisation. Pernicious Anaemia is one cause of B12 deficiency - but the systemic failures in diagnosis and treatment affect people across every cause. United, our voice is stronger.

What we're asking for is clear:
Modernised diagnostic standards that go beyond a single blood test

Treatment that responds to individual symptoms, not a fixed calendar

Self-administration and pharmacy access that puts patients in control

Education for healthcare professionals that reflects the evidence we already have

The tools exist. The guidelines exist. The patient evidence exists.

What's been missing is the political will to act on it.

That's what September 10th is about.

💜 Help us make the strongest possible case - donate to the campaign:
🔗 https://bit.ly/4cBRqCE

✉️ Write to your MP and ask them to be in the room:
🔗 https://lnkd.in/diaZ_J_p

✨ 20 Years of Education, Research & Support. This Year Things Change.

Tomorrow, patient voices, research and evidence about B12 deficiency will be taken directly to the House of Commons. 💜To...
09/09/2026

Tomorrow, patient voices, research and evidence about B12 deficiency will be taken directly to the House of Commons. 💜

Today, we’re sharing an important article by Julie Wichlin—Pernicious Anaemia Society trustee and founder of our U.S. support group.

In Dear Doctor: The B12 Crisis Hiding in Plain Sight, Julie highlights an issue that urgently needs greater recognition among healthcare professionals.

This is exactly why tomorrow’s B-12 Alliance reception matters: improving awareness, diagnosis and treatment so that fewer patients are overlooked or left without the care they need.

Please read Julie’s article and help us share its message:

🔗 https://b12bandit.substack.com/p/dear-doctor-the-b12-crisis-hiding?r=5oph0t&utm_medium=ios

✨ 20 Years of Education, Research & Support. This Year Things Change.

PAS members can get support through our helpdesk:
https://pernicious-anaemia-society.org/member

🔗 Join the Pernicious Anaemia Society:
https://pernicious-anaemia-society.org/member/

09/09/2026

🎥 Tomorrow, the B-12 Alliance is taking patient voices to Parliament.

This video shows why the House of Commons Reception on 10th September matters—and why meaningful reform of B12 diagnosis and treatment is urgently needed.

People living with pernicious anaemia and B12 deficiency have waited far too long to be properly heard. Tomorrow, patient experiences, research and evidence will be taken directly to MPs, health policymakers and medical experts.

Please watch, share and help us make sure these voices reach the people who can create change. 💜

Learn more and support the campaign:
🔗 https://www.b12alliancewestminster.org.uk/

✨ 20 Years of Education, Research & Support. This Year Things Change.

💜 Tomorrow is the day. Can you help us make an even bigger impact?Tomorrow, 10th September 2026, the B-12 Alliance will ...
09/09/2026

💜 Tomorrow is the day. Can you help us make an even bigger impact?

Tomorrow, 10th September 2026, the B-12 Alliance will hold a Reception at the House of Commons—bringing MPs, health policymakers and medical experts face to face with the reality of B12 deficiency in the UK.

For PAS, this is one of the most significant moments in our 20-year history. A chance to take the patient stories, research and evidence we’ve been building for two decades directly to the people who can change policy.

But getting there takes resources.

To make the biggest possible impact—with professional patient testimonies, media coverage and educational toolkits for patients and clinicians—and because this campaign won’t stop on 10th September or with the UK, we need to raise £30,000.

Every donation, however big or small, goes directly towards making sure this moment counts.

The stories our community shares every day—the years of misdiagnosis, dismissed symptoms and treatment rationed by calendar rather than need—deserve to be heard in the right rooms by the right people.

This is that room. Tomorrow is that moment.

💜 Donate to the B12 Alliance House of Commons Reception & National Awareness Drive:
🔗 https://www.b12alliancewestminster.org.uk/

✉️ Can’t donate right now? Write to your MP and ask them to attend tomorrow:
🔗 https://www.b12alliancewestminster.org.uk/contact-your-mp

✨ 20 Years of Education, Research & Support. This Year Things Change.

🏛️ In two days the Pernicious Anaemia Society will be at the House of Commons Reception with the .For 20 years, we have ...
08/09/2026

🏛️ In two days the Pernicious Anaemia Society will be at the House of Commons Reception with the .

For 20 years, we have listened to patients. We've heard the stories of missed diagnoses, dismissed symptoms, and treatment that doesn't meet individual needs. We've funded research, educated healthcare professionals, and supported thousands of people to advocate for themselves.

And now we're taking all of our experience and adding it to clinicians and researchers in the cluB-12 expert environment

On 10th September 2026, PAS joins the B12 Alliance at a Reception at the House of Commons - bringing MPs, health policymakers, and leading medical experts face to face with the reality of B12 deficiency in the UK.

Why the B12 Alliance? Because this is bigger than one condition and one organisation. Pernicious Anaemia is one cause of B12 deficiency - but the systemic failures in diagnosis and treatment affect people across every cause. United, our voice is stronger.

What we're asking for is clear:
Modernised diagnostic standards that go beyond a single blood test

Treatment that responds to individual symptoms, not a fixed calendar

Self-administration and pharmacy access that puts patients in control

Education for healthcare professionals that reflects the evidence we already have

The tools exist. The guidelines exist. The patient evidence exists.

What's been missing is the political will to act on it.

That's what September 10th is about.

💜 Help us make the strongest possible case - donate to the campaign:
🔗 https://bit.ly/4ggKr4x

✉️ Write to your MP and ask them to be in the room:
🔗 https://www.b12alliancewestminster.org.uk/contact-your-mp

✨ 20 Years of Education, Research & Support. This Year Things Change.

There are several common misconceptions about Pernicious Anaemia (PA) so it is important to be aware of the facts.1️⃣ Pe...
07/09/2026

There are several common misconceptions about Pernicious Anaemia (PA) so it is important to be aware of the facts.

1️⃣ Pernicious Anaemia only affects older people. This is not true. People of all ages, and this includes young children, have been diagnosed with PA.

2️⃣ You can get enough B12 from your diet. PA is an auto-immune disease. If you have PA, no matter what you eat, you cannot absorb sufficient B12 from your food. You will require lifelong vitamin B12 therapy usually through regular injections.

3️⃣ Pernicious Anaemia is not a serious condition. PA is a serious condition and, without the correct treatment it is debilitating and can be life-threatening. If you have been B12 deficient for a long time recovery may also take some time., Neurological symptoms resulting from B12 deficiency may take several months or even years to resolve completely

4️⃣ Once you've had your injection you will be fine. This 'one size fits all' regime is not true. Whilst some people manage perfectly well on 3 monthly injections, others find their symptoms returning long before their next injection is due. The clinical picture is the most important factor in assessing the frequency of treatment and serum blood tests and further testing of B12 levels are not required once Vitamin B12 treatment has commenced.

Support our charity by becoming a member or donating, and follow our page for more insights and useful information about PA!








📣 Join us for the PAS Annual Seminar 2026!This online seminar will feature Katrina Burchell, Professor Kourosh Ahmadi an...
05/09/2026

📣 Join us for the PAS Annual Seminar 2026!

This online seminar will feature Katrina Burchell, Professor Kourosh Ahmadi and Rachel Barnes discussing the work of PAS, precision medicine in pernicious anaemia management and the size of the B12 problem.

📅 Saturday, 3 October 2026
⏰ 10:00 AM–12:00 PM BST
💻 Online
🎟️ £5 for PAS members | £15 for non-members

Learn more and book your place:
https://pernicious-anaemia-society.org/event/pas-annual-seminar-2026/

✨ 20 Years of Education, Research & Support. This Year Things Change.

PAS members can get support through our helpdesk:
https://pernicious-anaemia-society.org/member

🔗 Join the Pernicious Anaemia Society:
https://pernicious-anaemia-society.org/member/

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