Tubie Accessories UK

07/08/2026

Tubie pads with covers

07/08/2026

A week into Stanley’s NICU journey, the couple in the bed opposite us said “you should try 5 weeks and counting”. I discreetly shook my head at my husband and said “leave it, it’s not a competition”.
They had no idea of our history or what we’d been through with our others. Let them have their moment because 5 weeks is HARD! Norah spent 15 weeks in NICU and I very vividly remember weeks 6-8 being the hardest weeks mentally. I remembered watching everyone around us coming into our room and then leaving 2-3 days later while we just seemed stuck in limbo. Part of the furniture. So close to the end of our journey but still nowhere near. But in that moment I suddenly realised that 15 weeks was nothing. I’d have done anything to do 15 weeks all over again, because our longest NICU journey wasn’t our hardest. Our shortest was 💔 It’s not a competition, and it’s certainly not a competition you want to win. Every second in NICU is soul destroying.
Norah 15 weeks in NICU
Stanley 14 days in NICU
Edward 7 days in NICU
Ivy 8.5 hours in NICU

Sometimes the NICU journey asks more of us than we ever thought we could give. 💔

You walk in every day with a smile, but inside you're scared, overwhelmed, and exhausted. And yet… you show up. You sit beside the incubator, whisper words of love, and hold onto hope tighter than ever before.

"You have to be the bravest you've ever been."
Not just for your baby—but for yourself too.

To every NICU parent out there: You are doing an amazing job. Your strength is seen. Your love is felt. And your bravery is unmatched. 💜

06/08/2026

Navy spot Tubie pads with covers 💙💙

05/08/2026

Boys all in one outfits ❤️🤍💚

04/08/2026

“Where’s the normal white kid”

I um’d and ah’d whether to post this, but I feel like it needs flagging.

I was scrolling through Facebook and came across this Sainsbury's Tu Clothing school uniform post. My first thoughts were how amazing to see a wheelchair user in the advert. I clicked on the comments and expected to see the same opinions as mine. I was hugely mistaken.
“Where’s the normal white kid”.
Now, there’s lots of things wrong with good old Richard’s comment, and many of the other comments on there too. But what a sad world we’re bringing our disabled daughter up in where a kid isn’t classed as “normal” because they’re using a wheelchair.
When 1 in 4 people in the UK have a disability, I don’t think it’s THAT far fetched to see a disabled child in an advert.
Have a day off Richard, your ableism is showing.

04/08/2026

Buzz lightyear with peg tube 🔫👽🧑‍🚀

04/08/2026

Hi guys! My messenger is playing up and isn’t letting me respond to some messages and is saying unavailable. If you’ve messaged me and I’ve not responded yet, please bear with me while I try and figure out what’s going on with my messages. I’ll be in touch as soon as messenger lets me reply. Thanks 😊

03/08/2026

Bo peep Tubie pads 🩷💙

01/08/2026

Using our feeding station on the go 🧡🌼🧡

30/07/2026

A year ago today we had to leave our 10 day old baby in NICU to attend our daughters inquest. The same NICU that she passed away in 19 month earlier. Thankfully, they take away the element of surprise by sending all the documents for you to read before hand. So we already knew her cause of death, everything they’d done to try and save her and what went wrong. I didn’t leave feeling like there were any questions that still needed answering, but I also didn’t leave feeling satisfied with the answers we were given. I will never fault the NICU, or the care that she received while she was with them. Especially after reading all the coroners documents, I found out a lot of things I wasn’t aware of at the time. But what I do know is that the doctor that cared for her did everything in his power to make sure that we met each other, despite the fact he knew she wasn’t going to survive.
We didn’t get to leave the hospital with our baby, we left with a memory box. A box with a teddy, photos and her hand and footprints. A box filled with keepsakes that you otherwise wouldn’t think to make because in the moment you’re in too much of a blur to even think about it.
When I had Stanley, we were under the rainbow clinic. A team of doctors trained to look after mums who have experienced a stillbirth or neonatal death. With extra scans in quieter clinics. This time we were given a different kind of memory box. A box filled with rainbow coloured things to symbolise the light after a storm. I don’t know how I feel about that term “rainbow baby”, because it can insinuate that the storm is over, when it isn’t. The storm still very much lives on quietly in the background. Sharp bursts of thunder and lightening randomly going off at unexpected moments. But a rainbow baby is a reminder to everyone around them that although the storm is still silently happening in the background, the sun still pokes through, and happiness can still exist beside the sadness.
Ivy’s story doesn’t end here, and we hope to have even more answers to her story very soon 🩷