22/07/2026
🌿 Sjögren's - Awareness, Understanding & Recognition
I've been spending some time watching the excellent Sjögren's Summit organised by Kara Wada MD.
It has been a valuable reminder of how important it is to keep learning. I’ve learnt a lot, especially from the menopause and Sjogrens talk. One of the messages I've taken away is this:
Sjögren's is far more common than many people realise, and it is frequently missed or diagnosed years after symptoms begin.
It disproportionately affects women, and whilst it’s most common over 40 it can affect anyone.
Different factors such as viral infections, hormonal changes during perimenopause and menopause, genetics, immune and nervous system dysregulation may all contribute in different ways for different people.
Although many people associate Sjögren's with dry eyes and dry mouth, it is a systemic autoimmune condition that can affect multiple body systems, contributing to symptoms such as:
* fatigue
* brain fog
* muscle and or joint pain
* gastrointestinal symptoms
* dry, itchy skin
* dental problems
* and much more
What has particularly struck me is how varied the condition can be — there are 60+ ways Sjögren's can affect the body! The most common system has been suggested to be fatigue.
Like many persistent conditions, no two people present in exactly the same way.
Several of the talks also highlighted the growing understanding of the immune system, nervous system and gut. There are exciting developments in more targeted immune therapies that may become available in the future (currently in different phases of research).
As someone working with people living with persistent pain, ME/CFS, Long Covid, fibromyalgia, post viral fatigue, PoTS, and other long-term conditions associated with pain and fatigue, these conversations are incredibly relevant. They reinforce how important it is remain curious and consider all the different factors that could be contributing to symptoms.
Something I learned from the summit has already informed my clinical reasoning this week.
If you're a healthcare professional, or someone living with Sjögren's, I would recommend taking a look at the summit. It’s available to watch free until 27 July, with an option to purchase longer access if you wish.
https://www.sjogrenssummit.com
Have you watched any of the sessions?
💭 I'd be interested to hear which talks you found most valuable.
Stronger With Sjögren's: Thriving in the New Era of Treatment & Self-Management. Claim your complimentary Live Access Pass to VSS2026, July 16–18, 2026.