Leiomyosarcoma - LMS Research UK

18/08/2026

Fibroids are often a suggestion given by medical teams but it is important to question that and ask for further testing. Ask the question - could it be a sarcoma?

Here's an article about how Leiomyosarcoma is often mistaken for fibroids 👇🏼

Is it just a fibroid? Fibroids are common, and most are benign. But a small number turn out to be leiomyosarcoma — a cancerous growth that can look the same on imaging. There's no reliable way to tell before surgery. Dr. Priscilla Merriam, medical oncologist and clinical director of the Sarcoma Ce...

17/08/2026

🧬 Genomic testing is making headlines... but what does it actually mean for people living with Leiomyosarcoma?

With the NHS expanding access to genomic testing, many people are wondering whether it could change the future of cancer treatment. While it's not yet routine for everyone with LMS, advances in personalised medicine are creating exciting possibilities for the future.

We've broken down what genomic testing is, how it works and why it matters to the LMS community.

Read more on our website... https://lmsruk.org/news/genomic-testing-and-leiomyosarcoma/

💜 Together, we will find a cure.

15/08/2026

💬 Thinking about a second opinion?

It's completely understandable to want reassurance about your diagnosis or treatment plan. Our FAQ explains when a second opinion may be appropriate and how to request one.

Read more:
👉 https://lmsruk.org/news/faq/do-i-need-a-second-opinion-leiomyosarcoma/

12/08/2026

📖 Medical jargon can be confusing.

From biopsy to metastasis, our Leiomyosarcoma Glossary explains common medical terms in clear, easy-to-understand language.

Explore the glossary:
👉 https://lmsruk.org/news/faq/leiomyosarcoma-medical-terms-glossary/

10/08/2026

Stories like this from a patient at The Christie NHS Foundation Trust shows how important medical trials are. Tracy took the opportunity for the trial in the hope it would help her but also help others in the future.

Many of these trials then go on to support other trials and the education and results are shared far wider. Stories like this give LMS patients hope.

The Christie Charity

Tracy Tomlinson, 58, was given the drug as part of a clinical trial evaluating a new type of treatment for several types of cancer.

09/08/2026

👩‍⚕️ What is an MDT meeting?

Your treatment isn't decided by just one doctor. A multidisciplinary team (MDT) of specialists works together to recommend the best care for you.

Learn how MDT meetings work:
👉 https://lmsruk.org/news/faq/understanding-your-mdt-meeting/

08/08/2026

Sarcoma patients are supported all over the globe by various organisations and we all work together wanting the same goal - more funding, more research, more awareness.

Thanks to Sarcoma Patient Advocacy Global Network - SPAGN for highlighting the support available during last month's Sarcoma Awareness Month 20226.

More than 80 organisations in the network represent patients, survivors, caregivers, families, and advocates across the world, working to improve awareness, support, education, research and access to care.

Nobody should journey on their own.

07/08/2026

🏥 Did you know specialist sarcoma care matters?

People diagnosed with Leiomyosarcoma should be treated by teams with expertise in sarcoma. Learn what a Specialist Sarcoma Centre is and why it plays such an important role in your care.

Read more:
👉 https://lmsruk.org/news/faq/what-is-a-specialist-sarcoma-centre/

05/08/2026

🔬 How is Leiomyosarcoma diagnosed?

Diagnosis often involves scans, biopsies and specialist review. Our FAQ explains the process and why each step is important in confirming an LMS diagnosis.

Find out more:
👉 https://lmsruk.org/news/faq/how-is-leiomyosarcoma-diagnosed/

04/08/2026

Travel insurance for people who have had cancer or still have cancer, along with other serious conditions, can often be more expensive than the holiday itself.

MP Richard Burgon wants to change this...

What's your thoughts - do you think it's fair and allows you to travel knowing you are covered and understand treatment might be costly? Do you think anyone could become seriously ill whilst on holiday and they don't pay a premium?