ScoliStrong

ScoliStrong This page supports my blog about my experiences with scoliosis. I was diagnosed with adolescent idiopathic scoliosis (AIS) in early 2008, age 12. Scoliosis blog

Then had posterior spinal fusion surgery back in December 2009, age 14.

27/07/2021
Happy International Scoliosis Awareness Day to all my fellow   💚Being brave by posting the second photo from May Ball in...
26/06/2021

Happy International Scoliosis Awareness Day to all my fellow 💚

Being brave by posting the second photo from May Ball in my 2nd year of uni. I hate it bc is the only thing that ever springs to mind when that night gets mentioned. I probably will always dislike it a little for tainting the memories of a good night out because after seeing that image I convinced myself that’s all anyone would have noticed the entire time I was out. (Prior to seeing it I had thought I looked really nice that evening 🙈) But I’m trying my best to embrace my extra curves and love the residual rib hump, so here we are ✌🏻

Ps my back no longer looks like the first photo 🥲 thanks corona stones 🐽 and backne from my body hating the super hard water in London (legit the only reason I’d probs ever consider moving back up north 😂)

26/06/2021

Today is International Scoliosis Awareness Day.
We are sending Love and support to everyone affected by Scoliosis.
❤️



All on the board book is available here https://www.amazon.co.uk/Tfl-Quote-of-the-Day/dp/1473691249 and all good book stockists. ❤️

Daryl Hannah Usain Bolt Rebecca A. Romijn Vanessa Williams Yo-Yo Ma Scoliosis Association UK (SAUK)

27/01/2021
15/10/2020

We are pleased to announce that Her Royal Highness Princess Eugenie has agreed to become the Royal Patron of the Scoliosis Association UK.

HRH Princess Eugenie’s own personal story has been an inspiration to many of us and our families who are affected by scoliosis. We know that she will not only relate to the work that SAUK does in supporting those with scoliosis and their families and raise awareness of scoliosis, but also help to raise the profile of the charity and expand its appeal and its message.

Stephanie Clark, co-founder and chair of SAUK, says 'I am absolutely delighted and grateful that Princess Eugenie is to be our Royal Patron. Her bravery and experience makes this a very personal decision, and will continue to offer encouragement to the many people of all ages who are struggling to come to terms with their scoliosis.'

https://www.sauk.org.uk/about-us/latest-news/post/55-the-scoliosis-association-uk-is-delighted-to-announce-a-new-royal-patron

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02/06/2020

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June 1st marks the start of Scoliosis Awareness Month 💚Scoliosis is a condition that causes a 3D curvature in the spine ...
01/06/2020

June 1st marks the start of Scoliosis Awareness Month 💚

Scoliosis is a condition that causes a 3D curvature in the spine and in many cases the cause is unknown (there are many research efforts ongoing to try and find the cause); this type of Scoliosis is called Idiopathic Scoliosis. The condition is much more common in girls and generally occurs in Adolescence between the ages of 10-15.
Adolescent Idiopathic Scoliosis is a condition I have. I was diagnosed when I was 12 after hiding the warning sings ⚠️ and the changes to my body for almost a year. Some early indications that someone might have scoliosis include leaning to 1 side, uneven shoulders, 1 shoulder or hip sticking out, the ribs sticking out on 1 side and clothes not fitting well.
Treatment options for this condition are also pretty limited. If you have severe scoliosis your only option is to undergo surgery to straighten out the spine to prevent further medical complaints such as reduced lung capacity.
This date also happens to be exactly 10 & 1/2 years since I underwent life changing surgery to correct my AIS in the hope I could live a more normal independent life as I grew up. Due to unexpected complications around finding a surgeon 👨‍⚕️ who could carry out my surgery I had to wait almost two years for the operation which left time for my spine to deteriorate. When I was first diagnosed I had a 55 degree thoracic curvature which only just fell into requiring surgery but by the time it came to my op it had increased to 80 degrees. Though I was lucky 🍀 despite its progression my spine was still flexible and I got a really good fusion result 🔩 and my spine is now classed as being “normal” as my curvature is less than 15 degrees.
I will forever be thankful that I had this surgery so I can lead the live I do now 💚

27/04/2020

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