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🚨 PCOS HAS A NEW NAME — AND IT MATTERS.PCOS (Polycystic O***y Syndrome) is now being renamed:PMOS — Polyendocrine Metabo...
13/05/2026

🚨 PCOS HAS A NEW NAME — AND IT MATTERS.

PCOS (Polycystic O***y Syndrome) is now being renamed:

PMOS — Polyendocrine Metabolic Ovarian Syndrome

The change follows more than a decade of international research, expert collaboration and over 22,000 patient perspectives worldwide.

So why the change?

Because “PCOS” was widely considered misleading.

Many people diagnosed with PCOS:
• don’t actually have ovarian cysts
• experience symptoms far beyond reproductive health
• struggle with insulin resistance, inflammation, fatigue and metabolic issues
• felt the old name minimised the complexity of the condition

PMOS better reflects the reality that this is a whole-body endocrine and metabolic condition — not simply an “ovary disorder.”

🔹 Polyendocrine — multiple hormone systems are involved
🔹 Metabolic — recognising insulin resistance and long-term health risks
🔹 Ovarian — acknowledging ovarian involvement without defining the entire condition
🔹 Syndrome — because symptoms vary hugely between individuals

This is more than just a name change.

Names influence:
• diagnosis
• research funding
• medical understanding
• healthcare policy
• and how seriously patients are taken

For millions living with PCOS/PMOS, this feels like long-overdue recognition.

Here’s to a more informed, supported and hopeful future for this underrepresented condition. ✨

HAPPY HALLOWEEN FROM 🎃
31/10/2025

HAPPY HALLOWEEN FROM 🎃

✨ Story Share Thursday ✨Your story matters — and it could help someone else feel less alone. 💬Whether you’re living with...
21/10/2025

✨ Story Share Thursday ✨

Your story matters — and it could help someone else feel less alone. 💬

Whether you’re living with PCOS, endometriosis, adenomyosis, or another reproductive health condition — your experience deserves to be heard.

At Cysterapp, we’re creating a space where real stories inspire change, connection, and awareness. 🌸

Share your journey in the comments or DM us to be featured in next week’s Story Share Thursday!

Let’s rewrite the narrative together — one story at a time 💪💗

World Menopause Day — Awareness. Education. Empowerment.Menopause is a natural transition — not a disease to be hidden o...
18/10/2025

World Menopause Day — Awareness. Education. Empowerment.

Menopause is a natural transition — not a disease to be hidden or endured in silence. Yet too many are still dismissed, misinformed, or told to “just get on with it.”

According to NHS guidance: Menopause typically happens between 45–55, when periods stop as hormone levels fall. Some experience early menopause before 45 — and those with PCOS or other hormone conditions may find the transition looks or feels different.

Common symptoms: hot flushes, night sweats, anxiety or low mood, brain fog, fatigue, irregular cycles, and vaginal dryness or discomfort.

Key facts:
• 13 million in the UK are peri- or post-menopausal
• Symptoms can last up to 7 years — sometimes longer
• 1 in 4 say it severely impacts daily life

Myth busting — Cysterapp style:
✖ “It only happens to older women.” — Perimenopause can begin in your 30s, especially for those with hormone conditions.
✖ “You just have to put up with it.” — You deserve proper support, treatment, and validation.
✖ “HRT isn’t safe.” — For most, HRT is a safe and effective option when prescribed correctly. Always discuss what’s right for you.
✖ “It’s all in your head.” — Hormonal changes can affect body, brain, and mood — all are real, and all deserve care.

Trusted support:
NHS: nhs.uk/conditions/menopause
Menopause Matters
The Daisy Network (early menopause)
Balance (Dr Louise Newson)
Wellbeing of Women

Cysterapp stands with every person navigating hormonal change — from PCOS to perimenopause. Knowledge is power. Compassion is care.

Representation matters. Always.PCOS doesn’t have one face or one body type.It isn’t just missing periods. Hairy chins. N...
18/10/2025

Representation matters. Always.

PCOS doesn’t have one face or one body type.
It isn’t just missing periods. Hairy chins.
Nor is it just a fertility problem.
It’s a complex hormonal condition that affects people across every community — and yet, most of the research, images, and advice still cater to one narrow view.

👉 PCOS affects trans men, non-binary people, and women of all ethnicities and body types.
👉 Healthcare bias and lack of inclusive research mean many are overlooked, misdiagnosed, or ignored.
👉 We can’t change outcomes if we don’t see everyone who’s impacted.

At Cysterapp, we’re building a space where everyone with PCOS is seen, heard, and supported. 💚

World Mental Health Day 2025Every mind matters. Living with PCOS or any chronic condition can take a toll on your mental...
10/10/2025

World Mental Health Day 2025

Every mind matters. Living with PCOS or any chronic condition can take a toll on your mental health — and it’s okay to not be okay.

In the UK, 1 in 4 adults experience a mental health problem each year. Women are more likely than men to experience anxiety or depression, while men make up 3 in 4 suicides. Trans and non-binary people are among the most at risk, often reporting unmet mental health needs.

Support your mind:
• Speak your truth — you’re not alone.
• Create small, kind routines.
• Set boundaries that protect your energy.
• Ask for help early.
• Use grounding techniques when things feel heavy.

If you’re struggling, reach out:
Samaritans 116 123
Mind.org.uk
Andy’s Man Club
Mermaids UK / Gendered Intelligence
NHS Talking Therapies

Your mental health matters as much as your physical health. Healing starts with being heard.

✨ NEW FREEBIE ALERT! ✨We’re giving away our Free GP Appointment Guide — designed to help you feel confident, informed, a...
07/10/2025

✨ NEW FREEBIE ALERT! ✨

We’re giving away our Free GP Appointment Guide — designed to help you feel confident, informed, and in control at your next appointment. 💪🩺

💌 DM us to get your free copy!

And don’t forget to like, share & follow to support PCOS advocacy and women’s health empowerment 💖

💚 September = PCOS Awareness MonthPCOS (Polycystic O***y Syndrome) is the most common hormonal condition in people with ...
01/09/2025

💚 September = PCOS Awareness Month

PCOS (Polycystic O***y Syndrome) is the most common hormonal condition in people with ovaries — affecting 1 in 10 (WHO).

And yet? Up to 70% go undiagnosed.
Because symptoms get brushed off as “normal” or dismissed with: “just lose weight.”

Here’s the reality 👇

⸻

⚖️ Weight changes — 40–80% also live with obesity, often due to insulin resistance, not “lack of willpower.”
⬆️ High testosterone — acne, excess hair growth, hair loss on the scalp.
🥱 Fatigue — blood sugar crashes + hormonal chaos = more than just “tired.”
🔴 Irregular or absent periods — heavy, rare, or none at all.
💉 Insulin resistance — in up to 70%; raises risk of type 2 diabetes + heart disease.
💥 Acne — persistent, often resistant to treatment.
🥚 Infertility struggles — PCOS is the leading cause of anovulatory infertility.
🙈 Excessive hair growth — affects up to 70% with PCOS.
😡 Mood swings + 🌧 depression & anxiety — much higher rates than the general population (NHS).
👀 Skin changes — dark patches (acanthosis nigricans), skin tags, oily skin.
😴 Sleep issues — including sleep apnea + disrupted cycles.

⸻

🚨 Why PCOS isn’t “just a period problem”
It’s systemic. Long-term risks include:
🫀 Diabetes, metabolic syndrome, cardiovascular disease
🩺 Endometrial cancer
🧠 Mental health struggles that often go unsupported

And despite this? PCOS research funding is still tiny compared to other conditions of similar prevalence.

⸻

💥 This Awareness Month we demand:
🧪 More research
🩺 Better healthcare
📊 Data, not dismissals
💚 A louder, stronger community

⸻

👉 Your move:
✔️ Save this for your next GP appointment
✔️ Share it so others know they’re not alone
✔️ Tag someone who’s been dismissed

Because awareness isn’t just teal ribbons.
It’s real people. Real bodies. Real struggles.
And a fight for better health.

Here’s to 30 ✨🍾🥂
11/08/2025

Here’s to 30 ✨🍾🥂

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