TREAT NMD

TREAT-NMD is a global network dedicated to advancing diagnosis, care and treatment for people with neuromuscular diseases.

We bring together patients, clinicians, researchers and industry to accelerate progress worldwide.

12/09/2026

The is underway!

We're bringing together people living with , families, carers and experts to:

✓ Connect with the community

✓ Hear the latest research updates

✓ Share experiences

✓ Learn from one another

✓ Engage in meaningful discussions

11/09/2026

We're ready and excited to welcome attendees to this year's Becker Education & Engagement Day.

Together with and Hub, we're looking forward to bringing the Becker community together, reconnecting with familiar faces and welcoming new ones for a valuable programme of learning, discussion and connection.

We are grateful to our funders, without their support, this event would not be possible.

Therapeutics SpA

07/09/2026

Today, we’re joining the Duchenne community around the world to mark World Duchenne Awareness Day and this year's theme: Access changes lives 🎈

TREAT-NMD believes all people living with and the affects of Duchenne should have access to the right care, support, treatments, information and opportunities when they are needed.

We are proud to work alongside the global Duchenne community, patient organisations, clinicians, researchers and partners to help advance diagnosis, care and treatment.

Explore our Duchenne resources in the comments.

02/09/2026

📣 Final spaces available for our Becker Education and Engagement Day!

We’re hosting our second Becker Education and Engagement Day for patients, carers and families, in collaboration with Muscular Dystrophy UK and BMD-Hub.

This event is an opportunity for patients, carers and families to connect with the wider Becker community. Across two days, attendees will hear from clinical experts and people with lived experience, with opportunities for open discussion, shared learning and connection with others affected by Becker muscular dystrophy.

11–12 September 2026
📍Radisson Blu Hotel Manchester Airport, Manchester, UK

💡 This is the last chance to apply to attend. If you or someone you know may be interested in attending, apply now or share with your network. Link to apply in the comments.

19/08/2026

We're hosting our second Becker Education and Engagement Day for patients, carers and families in collaboration with Muscular Dystrophy UK and BMD-Hub.

Join us and the Becker Community for a two-day event, learn from both clinical experts and individuals with lived experience, creating opportunities for open dialogue and shared learning.

11-12 September 2026
📍Radisson Blu Hotel Manchester Airport, Manchester UK

💡Applications are open, apply via the link in the comments.
*Please wait until your place is confirmed before booking travel or accommodation.

12/08/2026

This , we are sharing the SMA Family Guide, developed in 2017 collaboration with SMA Europe, Spinal Muscular Atrophy UK, Cure SMA and Muscular Dystrophy UK.
The guide expanded on the 2017 care recommendations published by medical professionals to enable families to better understand what best practice in SMA should look like.

The guide covers a range of key guidelines – diagnosis, treatments, pain management, physiotherapy and emergency care - aimed at providing important medical information in a practical way.

Currently the guide is available in 10 languages, including English, French, Spanish and German.

View our guide here 🔗https://www.treat-nmd.org/resources-and-support/care-guides/sma-care/ #1695210803951-6e11031c-eecc

27/07/2026

Living with Becker muscular dystrophy can sometimes feel isolating, but you don't have to navigate it alone.

Join us in Manchester this September for the third Becker Education and Engagement Day, delivered in collaboration with Muscular Dystrophy UK

This free event brings together people living with Becker muscular dystrophy, parents, carers and leading experts for a day of learning, discussion and connection.

You'll have the opportunity to:
• Hear the latest research updates
• Learn from clinical experts
• Connect with others in the Becker community
• Ask questions and share experiences

If you or someone you care for is living with Becker muscular dystrophy and can travel to Manchester, we'd love to welcome you.

💡Applications are open, apply via the link in the comments.

*Please wait until your place is confirmed before booking travel or accommodation.

16/07/2026

We're delighted to announce the release of a Persian/Farsi translation of our BMD Care Guide. With this latest addition, the guide is now available in seven languages, helping to make standards of care, best practice, patient insights, and practical advice more accessible to individuals and families affected by Becker muscular dystrophy around the world.

With special thanks to, Mahla Rahmani khoram, Narjes Jafari and Marzieh Babaee for their support in making this translation possible.

View the care guide here 🔗www.treat-nmd.org/wp-content/uploads/2026/07/BMD-1.pdf

15/07/2026

The TREAT-NMD Global Registry Network continues to grow.

We're delighted to welcome The Muscular Dystrophy Campaign Nigeria to the TREAT-NMD Global Registry Network.

Joining our network of 65 registries across 40+ countries marks an important milestone for the neuromuscular community in Nigeria, helping to strengthen research, support future clinical trials, and improve understanding of neuromuscular diseases both nationally and globally.

Every new registry expands the collective knowledge needed to accelerate research and improve outcomes for people living with neuromuscular diseases worldwide. Read more 🔗 https://themusculardystrophy.org/muscular-dystrophy-campaign-nigeria-joins-the-treat-nmd-global-registry-network/

Address

Newcastle Upon Tyne
Newcastle Upon Tyne

Website

https://www.treat-nmd.org/, https://linktr.ee/TREATNMD

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