Stand by Benny

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Benny, 4 đź’™
Stage 4 high risk neuroblastoma
Diagnosed February 2023
Relapse September 2025
Documenting his journey and fundraising to get him to Rome for CAR-T cell therapy.

11/09/2026

Hi everyone đź’™

Craig isn’t doing very well at the moment so I’ve decided to make this post on his behalf.

After seeing Richie Howies post yesterday about different ways we can raise more money and most importantly create more awareness around Craig’s story, we’ve decided to try something a little different.

We’ve created a QR code for Craig’s GoFundMe which you can save to your phone, share online, print out and if you’re able to put up in busy places such as gyms, workplaces, cafes, community centres or anywhere you think people might see it.

There are still so many people who haven’t heard Craig’s story and we’re desperately trying to reach as many people as possible. One share could reach the person who helps give Craig another chance.

Please share this as far and wide as you possibly can. If you can print one and put it somewhere even better.

You could genuinely help save my husband’s life. ❤️

Thank you from the bottom of my heart to everyone who continues to support Craig and our family. It means more than you will ever know. 🙏🏼

We’re so grateful to Solving Kids' Cancer for all of their kindness, support and hard work. They’ve been a listening ear...
08/09/2026

We’re so grateful to Solving Kids' Cancer for all of their kindness, support and hard work. They’ve been a listening ear when we’ve needed it most. They’ve also been invaluable from a practical perspective in helping us get to Rome. There have been so many times when we’ve felt overwhelmed and being able to send a frantic email or pick up the phone and offload has really been such a huge help.
They truly have been by our side throughout the whole journey. They’re really wonderful people doing wonderful work and we can’t thank them enough 💛



Evie is an 11 year old girl receiving cancer treatment at the same hospital as Benny, the RVI in Newcastle. Her family h...
06/09/2026

Evie is an 11 year old girl receiving cancer treatment at the same hospital as Benny, the RVI in Newcastle. Her family have recently been told that the treatment isn’t working as hoped and they are now fundraising to make as many special memories as possible with Evie.

Please can you share her fundraising link and follow her page. If you’re able to donate a small amount the family would be so grateful ❤️

https://www.gofundme.com/f/evie-stronger-than-the-storm?fbclid=IwVERDUAUKQGFwZG9mBWZkaWQWUN4lSBfNFwppDoa-AZLkx4z1CErdX2V4dG4DYWVtAjExAHNydGMGYXBwX2lkCjY2Mjg1NjgzNzkAAR5d2T770hfTMewC_5pi3geSbp0rv5L7TFYSKw4U85WdcrXEDBHJUGxHrUNlpQ_aem_uGsw6b2n7Ze--bcuC2T8mA

Im Evie’s aunty. Evie was diagnosed at 9 years old and has been fighting cancer for… nicola carnall needs your support for Evie stronger than the storm

Thank you so much to County Durham & Darlington Fire & Rescue Service. Benny had another great visit to the station this...
20/08/2026

Thank you so much to County Durham & Darlington Fire & Rescue Service.

Benny had another great visit to the station this week and had the biggest smile on his face the whole time we were there.

Right from the start of our fundraising journey Gary Tough and the Fire Service have gone above and beyond to support us and we can’t thank them enough.

We also wanted to say a huge thank you to the North East Fire and Rescue Boxing Team for supporting Benny at their upcoming tournament. We know how much work and effort goes into setting this up and we’re so grateful to them for getting into the ring to support Benny.

There are still tickets available for the event at the Crowne Plaza in Newcastle. The link to tickets is in the comments of the original post if anyone would like to attend.

We’ll be in Rome which means we’ll miss it but we’ll certainly be cheering them on from afar 🥊



We’re back in Rome for his week 10 check up. We haven’t had any more news since his scans at the end of July. We might f...
13/08/2026

We’re back in Rome for his week 10 check up.

We haven’t had any more news since his scans at the end of July. We might find out more today but he’s got another week of scans at the end of August so we’re staying hopeful for good news from those. He’s well in himself and has lots of energy which is great to see.

Over the last couple of weeks he’s been able to visit family, catch up with a few friends and went back to his football sessions so it’s been lovely to have some normality and to be able enjoy the summer holidays. It’s sometimes the simple things that fill up your cup the most.

Thank you as always for all of your support and kind words. It really does mean a lot to us ❤️



We would like to say a massive thank you to The North East Fire and Rescue Boxing Team who are helping to raise funds an...
09/08/2026

We would like to say a massive thank you to The North East Fire and Rescue Boxing Team who are helping to raise funds and supporting Stand by Benny at the boxing tournament at the Crowne Plaza Newcastle on Friday 28th August.

Firefighters from across the North East and further afield will soon be going head-to-head in the ring for what promises to be a great night of boxing. 🥊

If anyone would like to share or support, please find the link below:

https://www.justgiving.com/page/ne-fireandrescueboxing?utm_medium=FR&utm_source=CL

Thank you for your continued support 🩵

Help Gary Tough raise money to support Solving Kids’ Cancer UK

“Life is a combination of magic and pasta” 🍝 On our way to the hospital for our week 8 evaluations.
30/07/2026

“Life is a combination of magic and pasta” 🍝

On our way to the hospital for our week 8 evaluations.



It’s now 7 weeks since Benny had his CAR T-cell infusion and we were able to fly home a couple of days ago. We’ll fly ba...
24/07/2026

It’s now 7 weeks since Benny had his CAR T-cell infusion and we were able to fly home a couple of days ago. We’ll fly back to Rome again on Wednesday as his doctor wants to see him but we jumped at the opportunity to come home. Benny has quite quickly adapted to being in Rome and just accepts it as his new normal but we’re hoping he’ll feel the benefit of being back home and surrounded by his friends and family for a few days.

We haven’t yet received the results of his bone marrow biopsy, lumbar puncture and CT scan but his MiBG scan was clear which was a huge relief and we’re hoping the rest of the results go the same way 🤞

It sometimes feels difficult to write down the positive news in case we jinx it but we’re trying to move away from that way of thinking and celebrate the wins when we can. We also wanted to share it with you as we’re so grateful to you all for getting us to this point 💙



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