15/05/2026
REDS4VEDS, 15th May
Vascular EDS is a rare and life-threatening type of Ehlers-Danlos syndrome which affects tissues, arteries and internal organs, making them extremely fragile, and people with this syndrome are at risk of sudden arterial or organ rupture. Because it is rare, affecting only 1 in 90,000 people, many health professionals will not have seen someone with this diagnosis.
On REDS4VEDS Day, we are invited to raise awareness of this condition, and you can join in! Wear red, take a photo, and share it on your socials using . Find out more at
REDS4VEDS DAY is a global campaign which takes place on the third Friday of May each year. The aim of the campaign is to help raise the profile of Vascular EDS.