Corbans fight against Duchenne

06/08/2026

12 weeks results have came back perfect 😍
Now the count down begins to Turkey 😁
If anyone deserves a break from appointments and have some fun its this little super star.. 💙

03/08/2026

Early start.. bloods done. 3 month Givinostat testing 💙
Nearly time for some well deserved holiday sun 😍

26/07/2026

Corbans loving these evening walks, sunsets and beautiful skies 😍
And a bag of blackberries 💙

17/07/2026

A lovely evening strole. Another good walk from corbz.. forever proud! 💙🥰

13/07/2026

Another day of fun 🙂
The zoo with the school.
Corban has been amazing walking around proper champ. lets hope Givinostat is working well and protecting them muscles 💙

12/07/2026

A lovely walk in the sun watching the emirates plane take off..
Walked over a mile like a trooper.. 😁🥰

05/07/2026

💙

Today, the world is captivated by a wedding.

Headlines. Photos. Every arrival analysed. Millions of people watching every moment unfold.

And while all eyes are on one story, thousands of families living with Duchenne muscular dystrophy continue fighting a much quieter battle.

We're fighting for research. We're fighting for access to treatments. We're fighting for independence. Most of all, we're fighting for time.
Imagine if Duchenne received even a fraction of the attention that celebrity news does.

How many more people would know the signs? How much more funding could be raised? How many more lives could be changed?

Joshua's story matters. Every young person living with Duchenne matters.

So while the world is watching one headline today, we're asking you to spare a moment for another.

Share this. Start a conversation. Help make Duchenne impossible to ignore.
Because awareness isn't just about being seen. It can change lives. 💛

27/06/2026

Today was corbans First Holy Communion 😍
May god protect you always my sweet boy 💙

02/05/2026

After what feels like forever, we have finally had the green light and collected Givinostat 😁
Heres to the next journey of kicking Duchenne back!
❤️💙