04/06/2026
đđ»đđ» This is our sonâs story of recovery.
For parents of children with autoimmune neutropenia (and really, for parents of any limiting chronic disease) â I HEAR YOU! I have been there. Itâs hard to explain to people who have not experienced it. Your world is reduced to: what is dangerous for my immuneâcompromised child? You are hypervigilant. You are overprotective. But to other people you seem âover the topâ and âobsessive.â Itâs because they have not gone through the countless hours of hospital visits. They have not experienced the countless nights of coughs, fevers, crying.
With neutropenic children, itâs not just a little bit of fever. Itâs: get stuff ready in case we need to go to the hospital.
Let me tell you: itâs incredibly hard. And you are in a vicious circle: you are scared that THIS particular fever could be dangerous, so you always go to the doctors. They run blood tests, but before the blood tests are ready (to confirm that maybe this is nothing to fear, itâs just viral), they prescribe antibiotics â because if it is bacterial, autoimmune kids can very quickly become septic, and itâs a medical emergency. Nine out of ten infections are viral, but that does not help you because your child is getting ATB for almost everything. The ATB are destroying their gut and further damaging the immune system. Itâs a vicious loop.
As a mother of an autoimmune child, you have to be incredibly brave.
Comment NEUTROPENIA and I will send you the 6 steps we did to get our son better. For free, no commitment (thereâs just not enough space here in the caption).